At my wits end and need help

[F4yes]

Hi everyone. I’m looking to hear from people who have maybe had the same experience as me but are further down the road and have some advice.

Over the last 5 or so years I haven’t been well. My get up and go has gone, I suffer with aches and pains and much much more. I saw a doctor at one hospital who after a number of tests including an MRI scan said I had Ankylosing Spondilitis as well as Fibromyalgia. This then followed a year of extremely nasty skin rashes where, after a skin biopsy I was diagnosed with lupus - this was at another neighbouring hospital.

It has been brought to my attention, by my husband that I move and twitch my legs A LOT when asleep at night. This has resulted in me not feeling rested in the day. I sleep late and have to have an early evening nap. It’s not sustainable, I work for myself so I can make it fit around my schedule but it just isn’t normal and I don’t like feeling so tired.

On top of the health issues I have mentioned, I am also low in Calcium - have been for a few years so take calcium and vitamin d tablets (prescribed), I also have to take folic acid tablets and have b12 injections every 2 months.

I take citralopam for anxiety, sulfasalize for my AS and Quinoric tablets for lupus.

With all this I still hurt and am still exhausted.

I have seen an endocrinologist 2 years ago and he couldn’t find a problem. A few people have said my issues all sound thyroid related but the doctor says no.

Does anyone have any advice, knowledge or similarities with my situation? I have just passed my mid 30’s and am at a crucial point in my life where I need to make a decision as to whether I’m going to have children. At the moment I don’t think I have the energy to look after anyone.

Looking forward to hearing anyone’s thoughts.

[fibrolinda]

Have you got the test results from when your thyroid was tested? You really do need to get TSH, FREE T4, FREE T3, antibodies, folate ferritin, b12 and vitamin d tested. If necessary you can do private testing using finger prick via thyroid UK website.

thyroiduk.org/tuk/testing/p...

Blue horizon and medichecks have offers on at different times. £79-£99 for tests you need.

Good luck, if you do private ask for advice on how to do sample etc and post results on here.

X

[Samantha12]

Hi I also have twitchy legs and fibro. I'm on amitryptiline which helps with the restless legs and sleeping better. I had a thyroid blood test yesterday and am waiting for results!