Should I try going on just T3: Any opinions on... - Thyroid UK

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Should I try going on just T3

Loriputnam11 profile image
11 Replies

Any opinions on going strictly on T3. What's so interesting to read on this support group is how expensive Levo is there, here my T3 is far less expensive than my Tironsint. I am on 50 mg of Tironsint and 15 mg of T3, 10mg in the am and 5mg in the afternoon. My TSH is very low and my T4 is upper 2/3 and T3 is at the very top end of range. All antibodies are normal, high cortisol levels though. Thank you for any personal input. I have one doctor my naturopathic and an endocrinologist who are completely opposite on what they think should happen.

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Loriputnam11
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11 Replies
EbonyEvans profile image
EbonyEvans

Hello Loriputnam11,

I assume you’re in America? We’d need to the ranges to help with your TSH and T3 and T4. Your ranges sound like they are ideal and pro badly best to stick with what makes you feel good. Sounds like you’re one of the few of us who has found their sweet spot. Those that need T3 only are usually - T4 makes them ill, T4 makes no difference or their thyroid has completely given up.

As an FYI it’s is T3 that’s expensive not T4 (Levo).

Ebony

MaisieGray profile image
MaisieGray

Your results are exactly as you would want them to be, when taking any T3 or NDT; why are you thinking of changing - are you nevertheless symptomatic?

Loriputnam11 profile image
Loriputnam11 in reply to MaisieGray

Still not close to what I was before the crash a year ago. Some brain Fog but much better, anxiety horrible with numbing in my forehead that is constantly there and travels down to my cheek bones when anxiety hits daily. Been to neurologist that say that cant find anything. Still horrible hair-loss and muscle weakness. Vision seems to have gotten somewhat better. Nails and skin very dry. But I do feel like Im better than a few months ago. Cortisol is still high and they are retesting saliva and urine next month. Thank you for your time:)

Howard39 profile image
Howard39 in reply to Loriputnam11

Hi

You need to have dhea tested at the same time with saliva. Without it is only half a picture . Hopefully they’ll do it four times during the day. Ashwaganda is good to help with anxiety/ high cortisol symptoms. That said it would be better with your results.

Including vitamins levels b12, folate, ferretin and Vit D 3. If a red serum magnesium test is available that’s v helpful.

Also what’s your diet like.

I’m order of importance it’s

Diet

Absorbtion( Slowdragon has excellent tips too)

Vitamins ( seasidesusie also has great info)

Then thyroid and adrenals.

It’s a good idea to monitor temps with a basal thermometer.You ideally need 4 a day and aim for 36.50 degrees.

See Dr Rinds graph.( ddrrind.com)

He charts how to monitor thyroid and adrenals which can save cost on too many blood tests. This is also covered in drmyhill.co.uk

In the search engine on the top right hand corner is Dr Myhill’s Home page you can type in orchestra.

It explains how to address severe health issues including thyroid adrenals absorbtion vitamin deficiency and diet. She addresses the order of importance . She’s one of the top endos( amongst other things too) with 40 years experience.

There is literally pages of information with excellent help on hundreds of issues. Toxic poisoning ( mentioned later is covered).

Also some 14 books she’s written.

Whilst Isobella Wentz addresses hashimotos her books have also excellent info on helping the thyroid.

thyr01d profile image
thyr01d in reply to Howard39

I question the order you have put. I used to eat a very healthy diet but was ill because hypothyroid, ending up with a TSH of over 95 - no amount of good eating will cure that. I don't want an argument but think it's important for all of us to take care that we write 'in my opinion' or 'there is a view that' unless what we are stating has been found to be so with peer-reviewed controlled research trials.

Howard39 profile image
Howard39 in reply to thyr01d

The next post from Jollydolly explains her and other people’s diet changes after just meds failed to improve their health enough.

I never said it alone is the answer.

My own tsh was 177 and my free t3 nil. My cortisol is on your scale 99.

My phone froze so I could not add the link but I did say I would and I did as soon as I could .

I do wish you all the best for the future. Am glad to read your tsh has reduced greatly.

thyr01d profile image
thyr01d in reply to Howard39

Hello again Howard, this is what you wrote:

"In order of importance it’s

Diet

Absorbtion( Slowdragon has excellent tips too)

Vitamins ( seasidesusie also has great info)

Then thyroid and adrenals."

As you pointed out some people find they need also to make dietary changes, and I didn't question that, but remain certain that your 'order of importance' is mistaken. If you are trying to infer that you fixed your TSH of 177 (?range) by attending to your diet before taking meds I'll have difficulty believing you. It seems to me more likely that it came to be so high because you tried diet first.

Do you not consider it irresponsible to suggest to people on here, who may be at or near coma level, that they attend to their diet before getting treatment for their thyroid?

You mention patients, I'd like to know what your profession is.

Howard39 profile image
Howard39 in reply to thyr01d

If you read the web page the information is from an endo with 40 years experience not me.

She does not say diet alone fixes thyroid issues but many people concentrate too much on just thyroid meds alone.

thyr01d profile image
thyr01d in reply to Howard39

It sounds to me as if you have a vested interest in the statements you have made, especially as you referred to patients. I presume you are something like a naturopath, nutritionist or some such making money out of people who believe you. Not that I'm suggesting you are dishonest just that the reason such treatments are referred to as alternative is because they can not be proven when unbiased controlled research is carried out. Those of you who believe in it don't allow for that fact when telling patients it will work.

Which web page are you referring to? You quoted two in your first post and mentioned Isabella Wenz.

jgelliss profile image
jgelliss in reply to Loriputnam11

Loriputnam11 , I'm wondering if your on these doses long enough to give It a chance to work . Slow wins the race .

Are you on nutrients that help the thyroid meds work better . Vitamin "D"/K2, B-12/folate , B-Complex , Iron if you test low , Magnesium , Vitamin "C" , Some Celtic Sea Salt to support adrenals if needed it .

stainglass profile image
stainglass

I wanted to reply to you asking about just going on T3.. Your body converts T4 into T3 to begin with..One has to be very cautious how much T3 one takes.Too much T3 can cause your tendons in your body to constrict ! I know as I am dealing right now with 50%tear in right hip and 25% tear in left hip. Surgery is the only way to repair.

Best to you Stainglass

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