Thyroid / Ferritin: Hi All Can you please tell me... - Thyroid UK

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Thyroid / Ferritin

health2015 profile image
10 Replies

Hi All

Can you please tell me if any of you are familiar or have been diagnosed with hemochromatosis, too much iron is major organs I have just been diagnosed and doctor told me it's likely it's hereditary. I have had symptoms which mirror low ferritin which he does not understand, the symptoms are dizziness, headaches, irritability, shortness of breath, which are similar to under/overactive thyroid. I have to now got to get my thyroid, liver,kidney and ferritin tested again.

Can you tell me if not enough or too much thyroid medicine can have a detrimental effect on iron.

Thanks you

Mazamoomoo

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health2015
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SlowDragon profile image
SlowDragonAdministrator

Presumably you have Hashimoto's?

Hashimoto's and hemochromatosis may be linked

ncbi.nlm.nih.gov/pubmed/182...

Hemochromatosis can be cause of hypothyroidism

"Rarely, certain diseases, like hemochromatosis, can deposit abnormal substances (iron, in the case of hemochromatosis) in your pituitary gland, causing central hypothyroidism, or less commonly, your thyroid gland, causing primary hypothyroidism."

verywellhealth.com/hypothyr...

Hashimoto's and hemochromatosis

redriverhealthandwellness.c...

functionalhealthnews.com/20...

health2015 profile image
health2015 in reply to SlowDragon

Hi Slowdragon

Sorry for delay in my reply to you, internet went down.

I do have hashimotos. I went for my annual test on 31/10/2018 and they decided to test ferritin. The results for the ferritin was 549ug-L range is (13-150). As I said in my last post I was showing symptoms that were similar to low ferritin which contradicts the high reading, which would indicate to me noe that my thyroid is off kilter although I don't know if it's over or under. My thyroid results were not at the surgery Friday morning so phoned in the afternoon still not there. So I don't know if I need to reduce or increase. Hopefully I will get the results today.

Thank you for the info attached.

SlowDragon profile image
SlowDragonAdministrator in reply to health2015

Ask your GP to do full iron panel and to test for hemochromatosis

This is more common with Hashimoto's and needs testing

healthunlocked.com/thyroidu...

health2015 profile image
health2015 in reply to SlowDragon

Hi Slowdragon

I'm getting all the tests including my thyroid again on 28/11/2018.

Will post when I have results.

Mazamoomoo

SlowDragon profile image
SlowDragonAdministrator in reply to health2015

You need full iron panel to see if iron is high as well as ferritin

Then referral to haematology

health2015 profile image
health2015

Hi SlowDragon

Thanks for the advice.

Mazamoomoo

SlowDragon profile image
SlowDragonAdministrator in reply to health2015

Just seen on previous posts you were using a lucky iron fish and have been on ferrous fumerate

I hope you were not still doing so?

This could account for high ferritin

health2015 profile image
health2015 in reply to SlowDragon

Hi SlowDragon

I couldn't get on with iron fish, so stopped using it and I haven't used ferrous fumerate for a long time neither. However I have been using Soleray adrenal supplements x 6 a daywhich I started when I was on Levothyroxin, should have dropped it down when I started NDT but didn't (forgot), and only just realised that they have quite a bit of iron in them, so I have stopped using them as of yesterday. I have also started looking at foods that will help in my quest to get ferritin down, although I do only eat fresh meat fruit and veg, I stay away from everything processed apart from Birds Eye frozen peas, so trying everything I can to get the levels down.

It's known as Celtic curse in Ireland and Scotland.

Mazamoomoo

SlowDragon profile image
SlowDragonAdministrator in reply to health2015

Cut out orange juice or vitamin C supplements too

But obviously get tested for hemochromatosis

health2015 profile image
health2015

Hi SlowDragon

I don't drink orange juice and I have also stopped vitamin C, I do have 1/2 squeezed fresh lemon in a tumeric tea, or do I need to cut out the lemon juice?

Mazamoomoo

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