Accessing blood results! : Why oh why does the GP... - Thyroid UK

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Accessing blood results!

StillEverHopeful profile image

Why oh why does the GP surgery make you feel like a naughty child just because you ask for 5 years of blood results to present at Endo appointment as they are unable to access them as being seen out of area?! (I have hovered around borderline hypo for many more years)

“There’s an awful lot” .... “well IF the doctor will let you have them” ... I feebly muttered about knowing I was allowed them and “freedom of information”

The militant in me wants to complain, but don’t want a black mark on my records.

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StillEverHopeful
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12 Replies
Haze1975 profile image
Haze1975

If your in the u.k your entitlement to see them. Better still if you have access online. You should be able to see them. As long as you request to see it.

StillEverHopeful profile image
StillEverHopeful in reply to Haze1975

Yes I’m in U.K.

I know I have a legal entitlement to have print out too...

it seems the receptionist have been told to make getting print outs as difficult as possible and ignored patients rights. I so hate having to make a fuss just to access results when it really should be simple.

Nanaedake profile image
Nanaedake in reply to StillEverHopeful

Ask if you can access them online. There is a 'share' feature. It looks like you could share them with Endo. If their system is set up, it might make it easier for them and you??

StillEverHopeful profile image
StillEverHopeful in reply to Nanaedake

I asked the surgery about this a while ago, and was told I have to apply in writing and then wait many months (6?) but the doctor might not approve it as they wouldn’t want me seeing results with bad news before the doctor.... I was really made to think that I wouldn’t get approval.

I think once I get the printouts I’ll write in with a request for on line access. (Won’t need to speak to them that way either)

Nanaedake profile image
Nanaedake in reply to StillEverHopeful

That's a good idea to write in. I just got a form from reception, filled it in and then when I saw the doctor I asked him to sign the form for me to gain access. I then logged on at home and hey presto. I would ignore the receptionists opinion as online access is an NHS national initiative and should be available to all.

helvella profile image
helvellaAdministratorThyroid UK in reply to StillEverHopeful

It is illegal to require a form to be filled in:

How do we recognise a request?

The GDPR does not specify how to make a valid request. Therefore, an individual can make a subject access request to you verbally or in writing. It can also be made to any part of your organisation (including by social media) and does not have to be to a specific person or contact point.

A request does not have to include the phrase 'subject access request' or Article 15 of the GDPR, as long as it is clear that the individual is asking for their own personal data.

This presents a challenge as any of your employees could receive a valid request. However, you have a legal responsibility to identify that an individual has made a request to you and handle it accordingly. Therefore you may need to consider which of your staff who regularly interact with individuals may need specific training to identify a request.

Additionally, it is good practice to have a policy for recording details of the requests you receive, particularly those made by telephone or in person. You may wish to check with the requester that you have understood their request, as this can help avoid later disputes about how you have interpreted the request. We also recommend that you keep a log of verbal requests.

ico.org.uk/for-organisation...

On the same page, it is clear that they have limited time to comply:

How long do we have to comply?

You must act on the subject access request without undue delay and at the latest within one month of receipt.

MoonbeamXX1 profile image
MoonbeamXX1

Hello

I read somewhere the other day that you have a legal right to have copies of your blood tests and that they are no longer allowed to charge you for the copies.

These are your blood tests about your body!

Just ignore the practice staff who still have that automatic 'God like' deference to doctors.

helvella profile image
helvellaAdministratorThyroid UK in reply to MoonbeamXX1

Can we charge a fee?

In most cases you cannot charge a fee to comply with a subject access request.

However, as noted above, where the request is manifestly unfounded or excessive you may charge a “reasonable fee” for the administrative costs of complying with the request.

You can also charge a reasonable fee if an individual requests further copies of their data following a request. You must base the fee on the administrative costs of providing further copies.

ico.org.uk/for-organisation...

StillEverHopeful profile image
StillEverHopeful in reply to helvella

That sounds fair and would have willingly paid sensible charge to cover expenses.

Asked for the records going back 5 years as that’s when my health started to decline after a viral summer cough that caused severe fatigue for 3 months.

helvella profile image
helvellaAdministratorThyroid UK in reply to StillEverHopeful

Genuine cost (e.g. 30 pence per page or something like that) might have been acceptable. Trouble was, we saw many people charged £10 even for one sheet. In the situation of a patient asking for results, there was pressure on them to simply pay up and not complain. The only answer seems to be eliminating charges.

Lovecake profile image
Lovecake

I got mine on my online access account. But there is stuff missing from past results and some bits in the wrong place! Really annoying, but I suppose better than nothing.

I think it’s because someone has to put them in by hand and they are probably not medically trained. (Like a miscarriage and 2 normal births as minor occurrences. They were pretty major to me!)

But I also found out that a GP hadn’t bothered to tell me my TSH was 5 and rising for several years. So get your results and take control of your health and feel better. 🙂

StillEverHopeful profile image
StillEverHopeful in reply to Lovecake

The support here has really helped me to take control or else I would be slowly dying as they stopped looking at symptoms and declared CFS even with T3 just below range!

Once I get the printout I’ll request online access. You would think even a non medical person would recognise miscarriage & births as major life occurrence! I have also had a friend tell me that if you haemorrhage during birth you don’t find out until a subsequent birth. I am sure I haemorrhaged but as I was unable to get pregnant again never found out.

I dread to think what I’ll discover about my TSH!

I asked for 5 years of test results as

have first endo appointment next week and as out of area they cannot see my past results and I want them to have a clear picture of what is going on. They have ordered a mass of blood tests...so currently remaining StillEverHopeful 😊

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