Wow! Just wow!
My endocrinologist has agreed I need to try some T3!
However he can’t prescribe it unless it’s authorised by the CCG! This can take about a month for them to decide
Has anyone had a similar experience? I’m in Dorset so not sure what the success rate is
Thank you for reading
My endo gives me a prescription to buy my own from germany. Cant help with website as my supplier no longer available so when i get my next prescription ill be looking for a new german pharmacy. I did get some t3 from gp to tide me over till the german ones arrived, i was told this was a one off. I do actually prefer the german tablets, much easier to cut up.
What hospital is your endo from?
Royal Bournemouth Hospital
When I lived near Bournemouth and was on NDT an endocrinologist at Bournemouth Hospital refused to see me as I was on a non-standard treatment. She would not even see me privately. So well done.
There are two women endocrinologist in Dorset area who have titles of endocrinologist but are extremely useless and unhelpful to thyroid sufferers.
Then there's one guy (who also does bupa on a side) who seems to "get it" a little bit but often doesn't really care.
Looks like she got him to see but then again he fed her some BS about CCG.
Pretty much confirming my past experience with him.
I’ve seen the man from the start! The medication has to be authorised by the CCG so not home and dry yet 😳
In Dorset - liothyronine is not banned however it is classed to be initiated by secondary care - which is your endocrinologist.
So he should have given you hospital script for three months and write a letter to GP to continue (or not yet if he thinks of just trial first). That's it.
He hadn't done that, instead he fed you fairy tale about CCG approval.
That's what I meant when I said he "gets it but is disinterested"
Either way good luck. Let's hope you get from NHS what you came for.
This shouldn’t be a battle, should it. It’s abuse really as one is feeling rotten and unable to fight as one well as one might and one is treated really badly by a profession which should help not hinder. I can sort of forgive the ignorance it is the absolute refusal to learn which gets me. “He who knows that he knows not is a wise man; he who knows not that he knows not is a fool.”
As trelemorele says
Your endocrinologist should prescribe initial 3 month trial via hospital. Then, assuming you benefit from adding T3, GP should take over responsibility and cost of prescribing on NHS
If an NHS endocrinologist says you have clinical need you should be prescribed
You might find this useful
dorsetccg.nhs.uk/Downloads/...
See paragraph 3
whatdotheyknow.com/request/...
BTA guidelines
british-thyroid-association...
Patients Association
healthunlocked.com/thyroidu...
Improve Thyroid Treatment campaign on Facebook has lots of useful info on how to fight for getting prescribed
If you get stonewalled then write to your MP, also to Lord O'Shaughnessy and Lord Hunt
theyworkforyou.com/search/?...
Thank you I’ve not had T3 before and I’m not sure if I read it right but it does say that the consultant has to refer to the CCG first
Fun enough I’m actually being seen by TR who is mentioned in the whatdotheyknow document. He is the one who said I need it!
Essential to have optimal vitamin levels FIRST before adding in T3
How are your Vitamin D, folate ,B12 and ferritin levels?
Do you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies?
If so it's more likely you have low vitamin levels
Also very many of us with Hashimoto's need to be strictly gluten free
I have an excellent doctor who knows that my vitamins and others mentioned need to be optimal not just ok. My ferritin is low so I’m taking iron supplements 🤢
I have had my anti bodies checked once and they weren’t raised
I’ve also had my parathyroid checked as well
She also wrote to consultant suggesting I try T3
I’m not holding out any hope of getting it after reading the whatdotheyknow document. I can’t afford to self fund as just have lots of spare cash
Thank you for your support and information very much appreciated
Private prescription enables access to cheap EU Liothyronine at 31 Euro for 100 tablets 20mcg.
As most patients only need maximum of one tablet a day (sometimes only half a tablet per day) then that's only approx 100 euros a year
NHS currently paying £258 per 28 tablets - around £3000 per year
But they need to sort this cost out, it's not your problem
If you have clinical need you should be prescribed
Wow you know your stuff thank you
Just fed up with having to fight for everything when clearly it’s purely down to cost!
Can I take you when I go back for my next appointment please 😁
I had to fight very hard to get prescribed ....more on my profile
If you have printed evidence that they can and should prescribe, always take copies along to consultation!
Push for NHS prescription.
It's unclear if UK patients will be able to access EU pharmacies with UK prescription after March 29th 2019. Depends on Brexit small print.
Genova results back - what is going on?!
What does a GOOD thyroid result look like?
Finally some results but not sure what they mean!
Negative results for an under active thyroid - what next?
New blood test results - what do they mean?
