Hello, I have APS/Hughes and am a member of the health unlocked forum and it was recommended on that site that I have my thyroid tested, which I have now done. It was then suggested I join you and post my results. The company that carried out the tests says my thyroid seems healthy but my peroxidase antibodies are raised, suggesting Hashimoto/Graves. I am to test again in 12 months although my GP says maybe 6 months. I take vitamin D tablets and folate daily (prescribed by APS consultant.
I hope the test results are displayed!
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Ageingfemale
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Well, it doesn't seem that healthy to me. But, I expect they only looked at the TSH, which is ok - ish. But your FT4 and FT3 are very low, so wouldn't be surprising if you had hypo symptoms.
Your B12 could be higher - over mid-range is better - but your folate is ok. I can't read your result for ferritin.
I agree with your doctor, 3 months would be better.
Agree with greygoose ...your FT4 is right at bottom of range and FT3 very low
Your high antibodies confirm you have Hashimoto's
Considering you supplement vitamin D and folate, they are not very high
Vitamin D may be better around 100nmol
How low was vitamin D when first prescribed
How much vitamin D are you currently taking?
Folate and B12 might benefit from daily good quality vitamin B complex, one with folate in. This keeps all B vitamins higher, not just B12 and folate
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
Ferritin is ideally above 70. Eating liver or liver pate once a week should help improve
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. (Dairy is second most common.)
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
You might want to consider changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
When you get bloods retested, all thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
Thank you so much. You are all so well informed, no wonder I was advised to put my results up. I DO suffer with eating. Sometimes it’s a rush to get to toilet as soon as I’ve eaten or at least within 30 minutes. I will speak to GP re meds. I take cholecalciferol 800units x 2 daily and folic acid 5mg x 1 per day. Those tablets and the 20 others I take a day too. Heart tablets (10) APS tablets (2) and then Warfarin and clopidogrel for metal heart valve and APS. I have had 7 mini strokes. Usually they occur when inr drops and I do something like transferring my husband who is bed bound with MS and I am his main carer. So I tend to ignore myself and just carry on but am finding it harder and harder to get around. Now with this I am realising maybe it’s time to take more notice of my body and what its trying to tell me! Thank you again.
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