NDT - always too hot: I’ve been on NDT for... - Thyroid UK

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NDT - always too hot

fixit profile image
14 Replies

I’ve been on NDT for 4 years but I always feel really hot & overheated. I am wondering if it is the ratio of FT3:FT4 that maybe doesn’t agree with me. I’m not over educated & I have experimented with different doses but I always feel too hot. Anyone else find similar?

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shaws profile image
shawsAdministrator

Have you taken your temperature to make sure it is higher or do you just feel hot? Because thyroid hormones run our whole metabolism which keeps our body warm. Usually if undiagnosed/undertreated our temp can be low.

fixit profile image
fixit in reply to shaws

It normally still runs a bit lower than normal although my bloods are good

shaws profile image
shawsAdministrator in reply to fixit

It could also be due to the weather being so good. If your temp is lower you aren't overmedicated.

Naomi8 profile image
Naomi8

Have you taken a look at the website "Tired Thyroid"?She makes the case for upping the T4 with NDT.I know many people do better on NDT plus a bit of T4,which makes the ratio a bit more like human thyroid hormone,though others do better with NDT plus a bit of T3,& many do just fine on NDT-only.

I have experienced being too hot when a bit overmedicated,even though my basal temperature can be a bit low.

I was too hot & had clammy skin & hot flushes when my T3 was too high,though my heart rate & BP were normal.

fixit profile image
fixit in reply to Naomi8

I’ll have a look thanks Naomi8. That’s sounds just like me although I’m not over medicated & BP & heart rate are normal. Maybe a little T4 is what I need.

Naomi8 profile image
Naomi8 in reply to fixit

Me too.Am sticking at 2 grains NDT for 6 weeks,as recommended by "Tired Thyroid" I have changed doses twice recently due to over-range FT3 on June blood results.She recommends 6 weeks between dose adjustments.I am going to try adding 25mcgs thyroxine to see if I get the improvements she gained.

SlowDragon profile image
SlowDragonAdministrator

Do you have Hashimoto's also called autoimmune thyroid disease? Diagnosed by high thyroid antibodies

Low vitamins are extremely common with hypothyroidism

What are your most recent results and ranges for vitamin D, folate, ferritin and B12

TSH should be below one on NDT and FT3 at least half way in range. FT4 is often low on NDT

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, and if on T3 or NDT don't take in 12 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

fixit profile image
fixit in reply to SlowDragon

Thanks Slow Dragon, I don’t have high thyroid antibodies and I have posted my blood results below which I think are good results. I need to work on my vitamins which are all low in range, but I’m not sure if this would cause me to feel hot all the time. B12 288 (140-724), Folare 5.98 (2.91-50) and Vit D 72.3 (50-200).

Jazzw profile image
Jazzw

Last time you posted you were considering getting some private bloods done - did you?

fixit profile image
fixit in reply to Jazzw

Hi Jazzw, my latest results are TSH 0.005 (0.27-4.20), FT4 20 (12-22), FT3 5.69 (3.10-6.80). I’m taking these as good results.

SlowDragon profile image
SlowDragonAdministrator in reply to fixit

Yes these thyroid results look pretty good

Your vitamins are still too low

What supplements do you take?

B12 and folate likely to benefit from good daily vitamin B complex, one with folate in not folic acid eg Igennus Super B or Jarrow B-right

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Vitamin D is too low. Dose needs increasing. How much are you taking?

Aiming to improve to around 100nmol. Vitamin D mouth spray by Better You is good as avoids poor gut function. Suggest you increase supplement for 2-3 months and retest. It's trial and error what dose each person needs.

Once you Improve level, very likely you will need on going maintenance dose to keep it there. Retesting twice yearly via vitamindtest.org.uk

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

betterbones.com/bone-nutrit...

articles.mercola.com/sites/...

healthy-holistic-living.com...

articles.mercola.com/sites/...

betterbones.com/bone-nutrit...

easy-immune-health.com/magn...

No ferritin test?

fixit profile image
fixit in reply to SlowDragon

Thank you so much for your lengthy reply Slow Dragon. I have Bile Acid Malabsorption which causes poor absorption of vitamins. I only take a multivitamin as advised by my Gastroenterologist. I will invest in some better supplements as you recommend. Strangely Ferritin is high 238 (13-150).

SlowDragon profile image
SlowDragonAdministrator in reply to fixit

Ferritin is often high with Hashimoto's or inflammation.

10-20% of Hashimoto's patients never have raised antibodies.

thyroidpharmacist.com/artic...

drknews.com/unraveling-thyr...

fixit profile image
fixit in reply to SlowDragon

Ah, that’s interesting thanks. I didn’t realise that.

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