How do you get aboard the NDT train?: Howdy, I've... - Thyroid UK

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How do you get aboard the NDT train?

DanW profile image
DanW
4 Replies

Howdy,

I've made the decision to have a go at trying NDT. By the time my GP gets around to sorting out anything of importance, I'll be an octogenarian.

Now the problem I've got, to put it bluntly, is money.

I understand that I'm to have a blood test that includes T3 first (and it's been recommended to me that I also have a raft of vitamin tests done at the same, although I have had these done by the GP previously, and they've all come back okay). I've looked on the Blue Horizons site and I'd be looking at about £50 for the most basic test.

Then there appears to be seventy gazillion different types of NDT, none of which appear to be the best. Searching brand Z just yields dozens of results that claim it didn't work as well as brand X. But the you search brand X, and there's dozens of results that say it doesn't work as well as brand Y, searching brand Y yields dozens of results that say it doesn't work as good as brand Z, and, well, you get the idea.

So it seems each brand is quite subjective and you've just got to keep trying them until you find the right one, but I can only find each variety of them in bottles of 1000 that cost at least £50, which seems a fair bit if they don't work and you have try another.

I'm guessing there's no easy or cheap way of reaching a conclusion, but does anyone know where you could possibly buy like, a taster pot size tub of each brand, or do I need to start selling furniture to afford a seat at the NDT roulette table?

Thanks very much

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DanW
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humanbean profile image
humanbean

it's been recommended to me that I also have a raft of vitamin tests done at the same, although I have had these done by the GP previously, and they've all come back okay

Did your doctor tell you your vitamins and minerals levels were okay? Or have you seen the actual results and reference ranges yourself and they match the optimal levels given on this forum?

If I use vitamin B12 as an example, you could have a test done with a result of 201 and a reference range of 200 - 800. Many doctors will say that result is "okay" or "normal" because it is within the reference range. But people on this forum have found that they need a much higher level of B12 in order to feel at their best - a minimum of 500 up to about 1000 is often mentioned. This is why we insist on people getting copies of their blood test results - because what is "normal" to a doctor is often miles away from "optimal".

There have been people who've had results actually below the reference range and the doctor still says the result is "normal", presumably on the basis that it is "close enough".

So, ask for copies of your blood test results and reference ranges from the last 2 or 3 years (or longer) from your surgery, and post the latest ones on here. Another thing that might shock you is how little has actually been tested - it often happens!

Then there appears to be seventy gazillion different types of NDT, none of which appear to be the best.

Well, what suits one person may not suit another. What makes you feel well might make me feel dreadful. So it is trial and error for us all. Assuming that you don't have a prescription I would suggest buying from Thailand, start with the cheapest and work up in price. Why pay more than you have to?

For a list of NDTs available see page 16 onwards in this document :

thyroiduk.org/tuk/treatment...

It doesn't cover the Thai products (I don't know why) which are Thiroyd, Thyroid-S, and TR Man.

DanW profile image
DanW in reply to humanbean

Thanks for the reply. Up until the most recent tests, I hadn't got a copy and they were mostly just testing TSH, but I was given a copy of the most recent for other reasons and it's a fairly comprehensive one. Fortunately everything is roughly in the middle of the reference ranges.

For instance B12 range is between 197-771ng/l and my result is 512ng/l.

I have found a webpage that sells smaller bottles of NDT so I've ordered 100 tablets of Thyroid-S so we'll see how that one goes. At least I won't have 990 tablets left over if it doesn't suit me.

I couldn't find any of the non-Thailand brands for sale, but then I didn't do a terribly comprehensive search for them.

serenfach profile image
serenfach

When I made the decision, I just ordered some from America (so the GP would not throw a hissy hit!). It came and it sat like an unexploded bomb for a few days until I thought, what the heck, I cannot feel worse, and I went for it. I now kick myself for not doing it sooner. I hope you take the plunge and feel better soon.

DanW profile image
DanW in reply to serenfach

Thanks, did you very slowly start to introduce it whilst reducing the Levo? I'll not ask where you got it from as I know it's not allowed, but I found it difficult to find any from America or Canada that wasn't really expensive, so I went with the Thai stuff (I hope I don't have to explain to the doctor that I'm ordering medicines from the far east, using mildly shady banking services. They might die of fright and/or laughing).

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