Newly diagnosed

[Niknak99]

Hi guys this is the third time I’ve written this 😂

I’ve recently been diagnosed with hashimotos and I’m struggling a bit I’m male 42.

I’ve been feeling so bad for about 8 weeks symptoms are......

Tinnitus

Eye floaters

Pins and needles in hands

Tingling in my body

Weakness

Fatigue

No energy

No concentration

Memory is pants

Tiredness

Insomnia/ broken sleep

Internal tremors

Shakes

Burning feet

Dry itchy skin

Either to warm or cold

Broken nails

No libedo

No appetite

Can’t be bothered with anything

Irritated

Blurred vision

Pressure/pulling under left rib

Bloating

Constipation/loose stools

Excessive wind

Joint/muscle pain

Joints clicking/cracking

I could go on......

My blood tests are.....

Tsh 11.4 (0.35-5.00)

T4 11.5 (9.0-21.0)

B12 274 (200-883)

Folate 4.5 (3.1-20.0)

Ferritin 523(15-300)

I’m being tested for celiacs and pernicious anemia tomorrow cause I think especially b12 maybe adding to my problem. I’m also booked in for a ultrasound next week and I’ve been referred to a gastro and a rheumatologist.

My question is could all these symptoms be down to hashimotos or do you think I’m right to think my b12 is low?

Also I’ve just changed doctors so we had a look back at my blood results over the last 15 years when I’ve been ill for weeks and my thyroid has always been above 5.0 my folate always below 5.0 my b12 was always lower 200s and my ferritin above 500 any ideas what this points to..have I always had hashimotos and a b12 deficiency it would explain my periods of illness throughout these years and the foggy tiredness aches and pains I’ve always had and thought was normal or does this point to another autoimmune disease????

Nic

[Niknak99]

Anybody?

[Hidden in reply to Niknak99]

Hi I’m not sure what the answer is but just wanted to say keep going with the referrals and keep pushing for answers. It’s a long haul with waiting for appointments but you will get there. Just wanted to give you some support 🤓

[greygoose]

I would say that the burning feet could be down to the low B12 - and maybe even some symptoms you haven't really noticed yet. It is too low, and you do need to be tested for PA, and you do need B12 shots, because low B12 is very serious.

But, the rest is more than likely down to hypo/Hashi's. Your TSH is much too high, you are overtly hypo. Have you been prescribed any levo yet?

Your ferritin, on the other hand, is too high. Is your doctor investigating that?

You mustn't be too impatient about getting answers. There's not a permanent staff waiting for a question to come in. People log in and out as they have the time, and you posted your question around the time most people were seeing to the evening meal/eating/dealing with their families. A lot of people won't even see this post until tomorrow. So, no panicking!

[Niknak99 in reply to greygoose]

Yeah I’ve been on 50 dose for 2 weeks. I have some inflammation in my bowel so my doctor thinks it might be the reason my ferritin is so high but as I said looking back 7/8 years my ferritin was always 500+ and my tsh was always over 5.0 and my folate alway under 5 and my b12 in the 200s haven’t a clue what this means tho.

[greygoose in reply to Niknak99]

It means you've been hypo for a long, long time, and should have been treated a long time ago!

[Niknak99 in reply to greygoose]

So basically my body’s fecked 🤣 and this is why I feels so bad,I’m beginning to think I’ll never feel normal again 😢

[greygoose in reply to Niknak99]

I think that might be going a bit far, but it does explain why you feel bad. And, it does mean it will take you longer to recover than someone who was diagnosed early on. But, if you get all your ducks in a row, there's no reason why you shouldn't feel good again.

[SlowDragon Administrator Ambassador in reply to Niknak99]

If your ferritin was very high at over 500 then this could be hemochromatosis

hemochromatosis.org

this iron over load can cause thyroid to slow down

you need referral to haematology.

stopthethyroidmadness.com/h...

And this link

jamanetwork.com/journals/ja...

[Niknak99 in reply to SlowDragon]

Thanks for the reply’s guys,I’ve been told that ferritin levels can be high with unmanaged hashimotos .

[Niknak99 in reply to Niknak99]

Which I feel mine has been for a long time .

[SlowDragon Administrator Ambassador in reply to Niknak99]

Not usually that high

Mind you the range is 300 - (normally range is 150)

so yes perhaps it’s just inflammation due to Hashimoto’s

[Niknak99 in reply to SlowDragon]

Who knows but I do know it’s been this high for years and my tsh has been high b12 and folate been low I found this out by looking back at previous blood results from 7/8 years ago with the doctor 🤔🤔

[SlowDragon Administrator Ambassador in reply to Niknak99]

Just amended my previous reply