Trusted sources of Liothyronine : Hi please could... - Thyroid UK

Thyroid UK

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Trusted sources of Liothyronine

Ivorheadache profile image
11 Replies

Hi please could anyone with a trusted source of Liothyronine without having a prescription please send me the details by private message. It would be much appreciated. NHS supply stopped.

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Ivorheadache profile image
Ivorheadache
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11 Replies
SeasideSusie profile image
SeasideSusieRemembering

Ivorheadache

Why has your NHS prescription for T3 been stopped? Were you doing well on it and showed a clinical need? If so then you shouldn't have it withdrawn and you can appeal. Other members have details of how to do this, maybe SlowDragon has this information.

Ivorheadache profile image
Ivorheadache in reply to SeasideSusie

Oh dear my brain! I’ve replied to myself Lol

Ivorheadache profile image
Ivorheadache

Hi SeasideSusie,

I was counted as being on a trial in Cambridgeshire, and so had a NHS prescription. This was cancelled when I moved to the East Midlands. The local prescribing policy excludes DIO2 as a reason to have Liothyronine unless further research proves its need. More info in previous post and profile. Slowdragon has also messaged me. Many thanks for reply.

SeasideSusie profile image
SeasideSusieRemembering in reply to Ivorheadache

Wouldn't it be nice if they all sang from the same hymn sheet. Health care really is a lottery, and the odds are just as poor :(

Ivorheadache profile image
Ivorheadache in reply to SeasideSusie

Yes wouldn’t it be nice. It’s called the National Health service, so it should have one National policy/pathway for each diagnosis, treatment, medication etc. That would save lots of overheads on staff, offices etc. for those idiots that dream up local NHS policies. They should also sack the people who agree the contracts within the NHS at horrifically inflated prices.

SlowDragon profile image
SlowDragonAdministrator

Apparently on hospital in Kent is actually offering DIO2 test on NHS and Liothyronine if found to be positive

You need to lobby your MP, CCG, pals etc etc

Recent debate in House of Common

theyworkforyou.com/debates/...

trelemorele profile image
trelemorele in reply to SlowDragon

Do you have details of that hospital slow Dragon?

SlowDragon profile image
SlowDragonAdministrator in reply to trelemorele

You could find out. Info was on Improve Thyroid Treatment campaign on Facebook

trelemorele profile image
trelemorele in reply to SlowDragon

Oh, is there, but where? I haven't seen post about that on there.

Can you drop me a link to that, thanks?

SlowDragon profile image
SlowDragonAdministrator in reply to trelemorele

It's a closed group on Facebook - search

Improve Thyroid Treatment

Simply request to join

The post on there is from Jan 3rd 2018

Here's relevant extract

"Whilst in conversation with my local CCG representative they have now opened up a new Project into Thyroid Care and are about to ensure a new best practice method is developed should patients not respond well to Levo this will include DNA testing and looking into gut microbiome - they are going to work closely with all endos in my area to ensure they are further educated with the new found areas of concern - Anyone living in the Swale (Sheppey, Sittingbourne & Faversham) area of Kent "

trelemorele profile image
trelemorele in reply to SlowDragon

Found it, thx

m.facebook.com/groups/47337...

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