NDT: Hello community, Who is using NDT? Could... - Thyroid UK

Thyroid UK
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NDT

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Hello community,

Who is using NDT? Could you please tell me a little bit about how does NDT works for you. I'm thinking about switching from Synthroid to NDT. Thank you much

17 Replies
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I use NDT and I think it’s better than Levothyroxine. I was unable to get well on NDT alone and so I take T3 too. I feel that the T3 in NDT is longer acting than T3. I feel better now than I ever have. I think that NDT is a good choice, I wish I’d done it 20 years earlier!

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in reply to Aurealis

Thank you. No side effects?

shaws
shawsAdministrator
in reply to Hidden

NDT stands for 'natural thyroid hormones' and is the very original replacement for a dysfunctional thyroid gland - first introduced in 1892 as before that people died an awful death. No blood tests available then and we were diagnosed upon clinical symptoms alone. These days no doctor appears to have any knowledge of clinical symptoms and only looks at the TSH. If it doesn't reach 10, probably people wont be diagnosed/prescribed.

NDT saved lives from then on but in the 1960's (I believe) Big Pharma entered the market with a blood test and levothyroxine (T4 only) which has to convert to T3. T4 is inactive and T3 is the Active hormone needed in our millions of T3 receptor cells and the brain and heart contain the most. This is a link which gives a good explanation and previously under the NHS NDT was prescribed if patient wasn't improving on levo. It was then discontinued through False Statements made about it by professionals who should know better. Many then were prescribed T3 added to T4 if there wasn't an improvement on T4 (levo) alone (I am one) but some months ago because the Pharma Company increased the cost so high (I think about £600 per month T3 was withdrawn without notice). It was also withdrawn from people who cannot convert levo to liothyronine (T4/T3) and forced to go back onto levo if they didn't source their own.

tpauk.com/main/article/a-hi...

Hidden
Hidden
in reply to shaws

Thank you for this precious information

Aurealis
Aurealis
in reply to Hidden

Not for me

I was using synthroid for 3 years. I went through 5 doctors before finding an endo that would prescribe NDT, test the Free T3 and Reverse T3, and know how to dose the NDT. 1 doctor let me become so hypo that i nearly ended up in the hospital. Once i found a doc that knew how to use NDT i was fine. I have more energy than when i was using synthroid. My body was not converting the T4 synthroid into T3 properly. The NDT is very helpful to me.

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in reply to Celestialbeing

That's good to hear. Thank you

Celestial being, would you be willing to share the details of your helpful endo? I'd be so grateful.

shaws
shawsAdministrator
in reply to mouldylocks

Celestialbeing mouldylocks

Any information about helpful endos always has to be by Private Message. I think you know that this is a rule as we don't want any to get problems with their Associations.

Yes, I know that. TY.

Celestialbeing, If you are in the UK, I would really appreciate it if you would PM me the details of the doctor you found. I have a friend who really needs help.

After about 5 years on Thyroxine, with my results all over the place, I pursuaded my GP to trial me on T3 as well (following knowledge gained on here). Instant improvement but every meeting with GP was a battle. So thinking if I am taking T4 and T3, why not try NDT and get it all in one pill?

Much better. Almost human! I was always employed for my brain and that went missing while on T4. Bits came back with the combination and a lot more now with NDT. I was taking WP and thought I had at last cracked it! Oops - cannot get that any more and am trying others with mixed results. Still a darn sight better than T4+T3.

Just finished lambing (lllooooonnnnnggg hours) and I coped although I was a walking zombie, but this is common with those who lamb. When you offer the lamb the kettle and not the bottle....or fumbling at the front end of the sheep to check the udder....

Good luck with your trial. If it does not work for you, at least you know, but it helps many on here.

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in reply to serenfach

Thank you

I am following this because I have been taking synthroid/levothyroxine for 34 years. I have only recently become aware of the need to assess reverse T3 levels and discovered that mine are at the top end of the range, while free T3 is at the bottom. My (now former) endocrinologist refused to consider this, would only look at TSH, and told me that I could do what I wanted with my body, but he wouldn’t help me. Nice.

shaws
shawsAdministrator
in reply to Nerkalj

I think you are in the USA as you take Synthroid. This is a link to a USA doctor/scientist/researcher (deceased due to an accident) and he hated the way patients are diagnosed/treated. He was also an Adviser to Thyroiduk.org.uk. The following are Chapters from his book. His website is now archived and can be difficult to find. I will give you a link to both but some links within them may not be accessible.

He only prescribed NDT and T3 alone for thyroid resistant patients. You can click on topics in the following- some may not be accessible.

web.archive.org/web/2010103...

web.archive.org/web/2010103...

nebula.wsimg.com/b822d36efe...

web.archive.org/web/2010112...

Nerkalj
Nerkalj
in reply to shaws

Thank you!

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in reply to Nerkalj

Insane. Hope you'll find the right doctor. I'm seeing my primary care may 7. Hope he will cooperate.

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