Thyroid UK
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Visiting gp

I had to go to medical walk in centre yesterday having had problems with what I believe is TED I was referred to local hospital only to be told that only hyperthyroidism causes TED they said it was an alergy .I thought that was strange but what got me really angry was,handing the nurse specialist ( gp unavailable )my recent blood results who dismissed them saying that the results and ranges were not the ones we use in UK . I informed him that I have suffered from hypothyroidism for over 25yrs and I know when I need to increase dosage .this was dissmissed and when I actually mentioning hashimo s I was laughed at and told that I was to have 'proper' blood tests next week again I was told that 125mmg would only be increased if there is a problem I was,also told by receptionist that I didn't have to fast want to know if I reduce the 125 mmg to100 will it show up on blood tests next week I have recently self medicated and I know I need an update to 150mmg Nothing was said about vit D and other deficiencies.so I know that if I had mentioned T3 I would have been taken out to the car park for a firing squad feel better just being able to share, especially when I paid good money for the private tests

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They are soooooooo ignorant! And, yet, they think they know it all.

TED is usually associated with Grave's but has been know with Hashi's. But, as they obviously don't even know what Hashi's is, there's not much point arguing with them.

As for the blood tests, that was such a stupid comment. Ranges vary throughout the UK, according to the lab, it's got nothing to do with being in the UK. And, a result is a result. As long as you have the range, you can interpret it. What she was actually saying was that she doesn't know how to interpret blood test results!

I don't think one week is long enough to show a reduction in 25 mcg. The TSH doesn't move that fast - and I imagine that's all they look at. You could try, but no guarantees. Can't you go back to self-treating? We're never as well treated as when we treat ourselves (old French proverb).

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Thani will

Thanks Greygoose If I need to improve both my mental and physical i will have to go back to self medicating even if I have to spend some of my own money to pay for medication etc and the thing I have asked gp for for over 20yrs is T3 still not sure where to by this from reputable pharmacies thanks again xxx J

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Start a new thread asking people to PM you their trusted sources of T3 - and also T4 if you need it. :)

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Joy12 I have hashies. Never had greaves. I have TED. I think all uniformed people need refresher courses in how not to appear stupid. TED can also manifest in people with no signs of thyroid problems though all have antibody indicators

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I too have heard a specialist eye nurse in a specialist eye hospital insisting that TED only occurs in Graves/hyperthyroidism. Quite clearly, as you wrote, that is not the case.

I think part of the issue is that so much training emphasises the usual, the common, the less rare. To the extent of totally ignoring even the possibility of something rare. The old "When you hear hoofbeats, think of horses not zebras". That was never meant to deny the possibility that the travelling zoo or circus might be in town. Or that you might actually be in the savannah in Africa.

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Thankfully I had an extremely good eye team and optician. Doctors useless

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I have done away with the GP and Endo I have private blood tests done and post them on here for help.

I have self medicated for over two years now and feel well, without a thyroid too.

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