I'm newly registered,
Can an endo stop Levo?
Diagnosed in 2011 with hypothyroid, feeling very unwell
Thanks in advance
TSH 4.9 (0.2 - 4.2)
Free T4 14.8 (12 - 22)
Free T3 3.1 (3.1 - 6.8)
Once diagnosed as hypothyroid medication is for life. What reason did the Endo give for stopping your medication? You are clearly hypothyroid as your THS is above range. What were your thyroid results when first diagnosed?
Visit your GP, get your levothyroxine reinstated. We're seeing people every day on this forum to whom this is happening and there's usually a back-story and something going on in the Endo world that is not helpful for patients. Were you prescribed T3 at some point, are you slim and what were your thyroid test results when the Endo stopped your meds?
Endo said he can no longer treat me
Levels when diagnosed
TSH 104.5 (0.2 - 4.2)
FT4 10.2 (12 - 22)
Never given T3
Thyroid results above are the ones that prompted endo to say can no longer treat me
Were those blood tests when you were diagnosed, while you were taking Levothyroxine or after you stopped taking Levothyroxine? What reason did endo give for stopping Levothyroxine?
When I was taking Levo
You were undermedicated then so I don't know why endo stopped Levothyroxine. Has endo discharged you back to your GP?
I am not sure if I'm discharged I have been trying to get hold of him for a dose increase which he has said he will not do
Endo has said my condition is becoming too difficult for him to manage
Then you need to see another endo, preferably someone who knows something about thyroid treatment. Write to the head of endocrinology or the hospital PALS service and ask to be assigned a different endo. In the meantime make an appointment to see your GP for a Levothyroxine prescription.
We need more info on your particular story
Similar post here too
Given all info as above
See your GP urgently today if you have no Levothyroxine
How much Levothyroxine are you now taking.
If none, when was it stopped
Your results show you are very under medicated
Dose should be restarted at 50mcg, or if already on a dose, it needs to be increased by 25mcgs
Retesting 6-8 weeks after each dose increase and dose increased in 25mcg steps until TSH is around one and FT4 towards top of range and FT3 at least half way in range
Presumably you have high thyroid antibodies? This is Hashimoto's also called autoimmune thyroid disease
Extremely likely you have very low vitamin levels unless supplementing because you are so under medicated.
Have you got recent test results for vitamin D, folate, ferritin and B12
If so add them on here
About 90% of all hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12.
Always get actual results and ranges. Post results when you have them, members can advise
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ask GP for coeliac blood test first
Persistent low vitamins with supplements suggests coeliac disease or gluten intolerance
Your endocrinologist should be reported for leaving you without medication
You need a new endo.
Email Thyroid UK for list of recommended thyroid specialists
please email Dionne
Thyroid peroxidase antibody 679 (<34)
Thyroglobulin antibody 266.5 (<115)
Told not autoimmune
That underlines that your endocrinologist had absolutely no idea
These results show you definitely have autoimmune thyroid disease
TPO antibodies above 34 - so is positive
TG antibodies above 115 - also positive
Levo stopped Nov 2017
Was taking 175
Do you have any Levothyroxine to take
See GP immediately and get started on 50mcg minimum. You may be able to tolerate 75mcg after 3-4 weeks.
Depends how terrible your vitamin levels are
Ask GP to do coeliac blood test and all vitamins
Typical Low vitamins due to under medication and detailed advice on supplements and how to improve
Can you add test results from when on 175mcg. Very much doubt you were over medicated
As Slowdragon has said, get an urgent apt with GP to have Levothyroxine reinstated. It sounds like Endo should have told you to see your GP and get referral to a thyroid specialist. It's no good leaving you hanging and you definitely need Levothyroxine and definitely have autoimmune thyroid disease.
Please tell us the outcome after seeing GP.
taking 75mcg Levo. Thanks in advance. TSH 9.3 (0.2 - 4.2) FT4 14.7 (12 - 22) FT3 3.2 (3.1 - 6.8) TPO ANTIBODY...
20-150 TSH 3.10 0.27-4.20 (this TSH is very high for me: usually 1.0 or less when feeling well) T4
I am stopping my levo I feel better when I do not take it. I was diagnosed with hypothyroid in 2013 and...