Hi all, I’m new here
I’ve been diagnosed for Hashimotos accidentally when I was abroad for holidays a month ago
I’ve never known that I had a thyroid issue
I was very tired, couldn’t breath normally and was very anxious
They did some blood test my tsh was 27 , free t4 low and the antibodies highly positive
My vitamin and serum iron were low and I had also a scan, there was a little goiter
I’ve been put straightaway on levothyroxine 75
Here in the uk I’m seeing an endocrinologist since more than a year for a pituitary adenoma, it is a macro prolactinoma of 12 mm
My prolactin level were around 3500 when diagnosed ( range less than 500)
Since the diagnosis I’m on cabergoline 2 tabs a week
My prolactin dropped but still high ( tested abroad around 1500 in the end of December)
In the last mri the tumor was the same size as when diagnosed
The endo that I’ve seen told me that I should take more cabergoline (3 tabs a week) because in her opinion if the prolactin didn’t drop to range and the tumor didn’t shrink in more than a year we have to increase the medication
Before holidays, I had a follow up appointment at the hospital with the endo. That day I did also blood tests
Two days ago I called the hospital to have my labs result as they didn’t send them
Prolactin 3290
Tsh 24
Ft4 was 8
They did fsh, lh. Oestradiol and IGF1 as well
I told the nurse why you didn’t contact me to tell me about my labs especially because they weren’t normal at all and that you had to put me on medication, if they did I wouldn’t have all the symptoms
She told me that in my case they don’t care about tsh, they just see free t4 and she told me 8 was normal!!!!!!!! It isn’t! And why they don’t put in medication someone who has tsh at 24!!!!! Why they didn’t test the antibodies??? It should be automatic when someone has tsh that high
I’m really upset and disappointed, I don’t know what to do ???!
Can someone help me please and tell me what I can do in my situation
I’m not from the uk, I settled 18 months ago and feel really lost in all this
Thank you