Is there anyone on here suffering from Chronic Fatigue Syndrome or from ME?
If so, you will likely find this of great interest - please digest and consider if you would like to use this method of complaint. Be happy that someone is batting for someone 
Also, there is much in here for someone, SOMEWHERE, to consider a not dissimilar 'complaint' re the appalling treatment of so many of us hypothyroidees and beyond
Thanks for posting and many know of Dr Myhill's good work and not succumbing to difficulties she's faced with the authorities.
Thank you for the post. Incompetent doctors including consultants tend to push patients into this category (CFS) when they are unable to diagnose accurately a condition, especially when patients have multiple complex physical issues. It's a way of getting rid of such patients rather than trying to find the cause (ie: mitochondrial dysfunction, viral disease and immunity problems, etc.). So there is little hope to get support and real help in getting better.
JGBH, that is absolutely the case. Rather than run different tests, they either restrict people to some hopeless range or ignore... sadly, there is so little support out there, especially when - as you say - there are multiple issues, obscuring one on top of the other BUT that should not deter any doctor. Take care and be well. xox
LindaC, I am absolutely fed up and despair... We simply must not let this poor service and carelessness push us in an obscure corner where nothing will really help whilst our health keeps on deteriorating. How can we start turning this situation around? Is it possible? Take care too. xx
I know JGBH, just when I get some renewed gumption about me to sort out all of the papers etc, just to take to someone who can/will, I get that spurt to try to just catch up with a little life... then I'm back on my knees again. If we get some warm weather this year... I'm on it xox
I feel like printing this off and sending it via Royal Mail to my GP surgery.
Peanut31👹😇
I am taking aspects of it out and taking it to mine too... also this below is from a CFS researcher at Newcastle University - in line with Dr Myhill's "It's Mitochondria not Hypochondria". (I have an interest, it's my own uni but also the City where one of the first hypothyroid persons was treated with NDT AND where I've had less than reasonable treatment from endos.)
meassociation.org.uk/2017/1...
Please excuse the intrusion, but are you still in the north-east, LindaC? I am, but I live about as far west as it's possible to be in the region.
I had no idea about the first treatment with NDT having taken place in Newcastle. Still haven't tried the regional endos...
I am Hillwoman! I'm intrigued as to where you are.
Yes, George Murray was one of the early pioneers - I'll try posting the link tomorrow.
NOTE ON THE TREATMENT OF MYXCEDEMA
13Y HYPODERMIC INJECTIONS OF AN
EXTRACT OF THE THYROID GLAND
OF A SHEEP.
Read in the Section of Therapeutics at the Annual Meeting of the
British Medical Association held in Bournemouth, Jul41,
1891.
By GEORGE R. MURRAY, B.A., M.B.CAMB., M.R.C.P.LOND.,
Newcastle-on-Tyne.
MIYXCEDEM1A has until recently been considered an incurable
disease. Since the pathology of this remarkable conditioi,
however, has become more fully understood, hopes of the
possibility of greatly relieving the symptoms, if not of curing
the disease entirely, have been entertained. The observations
of the symptoms which followed the removal of the
thyroid gland in man made by Professor Kocher, of Berne,
and the results of the experimental removal of the gland in
monkeys obtained by Mr. Victor Horsley 1 have firmly established
the view that this disease is due to the loss of function
of the thyroid gland. It was found by Dr. von Eiselsberg that
if the thyroid gland was successfully transplanted from the
neck of an animal to some other part of the body, it was capable
of continuing its functions, and so preventing the onset
of the symptoms which would otherwise have followed its removal
from the neck. Mr. Horsley then suggested that grafting
a healthy sheep's thyroid gland into a patient suffering
from myxcedema should be tried as a means of arresting the
I Brown Lectures, 18b5.
Good idea Peanut. I might just do that too. We need to show them we refuse to be fob off anymore and need to be taken seriously and that they just can't hide their incompetence behind such diagnoses as CFS, Fibromalgya, etc.
I’m not brave enough to sign it, only two GP surgeries to pick from in area. One was in special measures. But I’m definitely printing it off and putting a stamp on it to post.
Think we all need to do it, maybe add the thyroid symbol?.
Best wishes
Peanut31
Linda, I agree. They may just start testing blood and say as usual "all normal" and thta will be that.No forsight at all. We certainly need someone who has the ability and willingness to corellate all the data/information and push forward to find an understanding. But WHERE are we likely to find such a person? It's certainly easier, quicker and cheaper to put it down to psychological/personality problems of patients rather than a physiolocal/physical problem.
Dismissing patients, particularly women, has been happening for the last couple of thousand years, it is nothing new.
However, what is new is the formalisation of this dismissal as part of standard medical practice for many, many conditions. Patients are being told they have "Medically Unexplained Symptoms", are mentally ill, have Bodily Distress Disorder (or Syndrome), and what they need is Cognitive Behavioural Therapy to overcome their "false illness beliefs".
People with ME/CFS have been suffering this dismissal and sadistic behaviour for years. Soldiers with Gulf War Syndrome have been similarly dismissed.
Now the NHS is doing it to women (and a few men) with chronic pelvic pain, fibromyalgia, migraine, TMJ, chronic indigestion and gut problems and many other chronic and poorly understood conditions.
Some links on the subject :
healthunlocked.com/thyroidu...
forums.phoenixrising.me/ind...
The second link has a tendency to go off-topic but if you page through it returns to the topic eventually.
Wessely and Weetman are major culprits re CFS/ME and hypothyroidism respectively. Thank you for those links humanbean - it is an appalling indictment on the medical profession... 'Boys Club' 
It's a long story, but I once ended up in the Wessely clinic, around 1991/92, having been referred by a private neurologist who failed to diagnose the neuro damage of pernicious anaemia. Wessely had already gained some notoriety for his views on ME and Gulf War Syndrome, so when I realised that I'd travelled some 150 miles only to end up in a department that had his name near the entrance, I was horrified.
I saw one of Wessely's sidekicks, Maria Ron, who had a registrar in tow. They quizzed me for about an hour, determined to find a psychiatric cause for my ill health and asking for the details of mental health problems in my family. The best I could do - being young, naive and trying to cooperate in the hope of useful treatment - was to dredge up a great uncle with epilepsy who died in a pre-war accident. How they fell on that detail...
Ya talk about lack of help. Some years ago I was seen by s consultant who told me it was my responsibility to feed myself .
!! Yes I did know that but but it was found that I had a tumour in my bowel that was causing the trouble. ! I never forgave his attitude towards me 👹
CFS book / thyroid / scientific paper on ME/CFS by Dr Sarah Myhill
Hypothyroidism and ME/CFS
No pharmacy will issue me the prescribed thyroid medication (Aristo)
Gluten, CFS, Thyroid Dilemna
