Research!

[Cmoor]

Hi all,

I would like to thank you all for your help and replying to my last post regarding finding T3. I went to see my GP again to see if he could give me a prescription on the NHS rather than paying privately and he was eager to help but he could not get a prescription he said he literally can not order it as it was not on the system! So as I don't think levo suits me and endo wants me to have T3 do you think Armour could work?

Many thanks

Clare x

[greygoose]

Not on the system? Are you sure you were both talking about the same thing? You were talking about taking T3, sounds to me as if he was talking about testing it. Or is there some new system I don't know anything about?

[Cmoor in reply to greygoose]

Morning yes he was searching on computer and he said I literally can not order it as it will not allow me meaning NHS will not allow it, so do you think I should swop levo to armour?

[greygoose in reply to Cmoor]

Well, I'm still not sure about that. Did your endo not write to him to tell him that he recommends you take T3? The GP should do as the endo wants.

And, if the computer won't allow T3, I'm not sure it will allow NDT, either. Did you ask?

[silverfox7]

If Endo wants you to have it then why isn't he ordering it for you? I thought the latest advice was for Endo to do that.

[Shaza70]

I was told the same by my hospital doctor. He said they don’t prescribe anything for t3 and that it’s only t4.

I’d say it costs the nhs too much money compared to levo. That’s my thoughts. Hope you get sorted elsewhere. I’d love to try it myself.

[Gcart]

My endo in the west coontry told me it is because of cost that they are instructed not to use it .

He then advised how to source privately

[cwill in reply to Gcart]

Was that said or written as well? You have a great case for a complaint as the endo has accepted clinical need but has used the money excuse not to provide it. The outcome of the consultation that it must be prescribed if clinical need established, those already prescribed should continue and new patients allowed a trial. BTA agree and doctors are responsible for refusing your care.

But they are not going to do this for you unless you fight for your right to trial T3 by being very clear with the endo, CCG and GP and anyone else that you can complain to. A number of well written complaints will be necessary but if patients don’t stand up for themselves then they simply carry on telling us that the drug is too expensive and they can’t prescribe, but you can buy it yourself on the Internet.

[Gcart in reply to cwill]

No. Not written sadly

😕

[DemelzaPoldark in reply to Gcart]

Hi Gcart and Cmoor,

I have recently started on T3 25mcg daily and think I am feeling a positive effect. I have conversion issue T4/3 .... my prescription came from a consultation with specialist GP in Hong Kong when I was visiting. She will continue to prescribe but I have to rely on my friend to post onto me in the UK and she travels a lot. I’m hopeful to find another source, could you PM a reliable source for T3 without prescription please?

Also as I’m in Cornwall I’d really like to find a sympathetic private endo in the SW ... perhaps you could PM contact details?

Wishing all our forum folk a happy and healthy 2018.

Best wishes

DP

[Madge72 in reply to DemelzaPoldark]

I find MMDS is. very good

[DemelzaPoldark in reply to Madge72]

Hi Madge72,

Isn’t that a psychedic drug ?

Or a website I can’t find?

DP x

[Madge72 in reply to DemelzaPoldark]

Can you message me x

[heathermr]

its not up to the Gp to order the medication, its the job of the pharmacist to locate it. Try a small independant pharmacist rather than Boots or a supermarket and supply them with a list if the specialist import comapnies for thyroid medication listed on the ThyroidUk website. I have Cytomel on prescription which a small local pharmacy get from one of these specialist import companies from Canada for me at about a quarter the cost to the NHS of British T3. As I am on just T3 this is a regular order and sometimes is available next day, other times I may have to wait 6 weeks for a batch to arrive from Canada.

Ask your GP for a written prescription and just see if a pharmacist can get it for you.

Good luck

Heather

[mistydog in reply to heathermr]

That depends if they are a prescribing practice. This is why I hate them, you have no choice.

[Pamboz]

I get mine from a GP in Australia. Once the NHS takes something off the available to be prescribed list the doctors have no access to it. My endo said it had been removed, but she does my testing and oversees my results, and supervises my use. The NHS needs to source the drug from a different supplier so it is affordable, but they have a contract with the current manufacturer at an exorbitant cost. It's politics. Suits them not to permit doctors to prescribe it.

The thing is that it makes you feel so much better, and it's counter productive to make people use a drug that doesn't optimise their condition. Levo works for lots of people, but not for all.

[MarthaF]

I have just been prescribed a trial of t3 by an NHS endo and got the prescription from the hospital pharmacy. However I think she mentioned that their hospital prescribes possibly inferring some don't. So it is possible but seems there is a postcode lottery and they are ignoring guidelines.