Thyroid UK
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DIO2 genetic test counselling session

To all who took this test and went through so called counselling.

Please can you tell me what to expect during counselling session. Do you ask questions, if so what sort of, what does the councillor talks about, and any other things you can think of.

Decided to go for it but want to make the best out of obligatory “counselling”

Big thanks to marigold22 in particular as you have given me hope and strength to go for this test.

thanks all

12 Replies

Have you already got the test kit? Have you done your spitting into the tube? And returned the package back to the company? Have just had a thought - If you haven't already done all that, it will get all mixed up with the Festive Season and maybe wisest to leave off doing the spitting and returning the parcel until 3rd January ?

If you have used Regenerus, (don't know about other companies), they have to send the saliva sample off to another country. I used Regenerus and from the company receiving my saliva sample, it took about 3 weeks before they had my results.

When they did have the results, they emailed me to say a counsellor of theirs would be phoning me and told me which day, and I think whether morning or afternoon.

When the counsellor lady phoned me, she was very friendly, very approachable. Firstly I stayed silent whilst she explained my results and what they meant for me. Then I started to ask a few questions and she answered. My results were heterozygous = from one parent. But homozygous = from both parents. She explained what my heterozygous genetic make up meant.

There isn't really anything much else you can ask the counsellor. Good luck


I've only just ordered and paid with the idea I'm going to do it after 2nd of Jan. So yes, just like you advise.

I'm aware I'll have to wait. It is regenerus.

What sort of questions did you ask? Was it in anyway helpful what the woman said?

Thanks marigold

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I found it helpful obviously that she told me I had a dodgy thyroid gene from one parent, although can't prove which parent it's from. (I have a good idea though). I found her helpful, very pleasant & friendly. I honestly can't remember exactly which questions I asked her. Just chill out and it will flow when you are speaking with the counsellor. You will probably get a different counsellor to me anyway. However the counsellor I got, did insist on talking for half an hour, and was talking about scientific facts which went well over my head. She was in fact endeavouring to sell me her services of 'alternative therapy', but she had done a degree &/or course in genetics. I wrote notes on what she was saying about the scientific stuff but threw it away a few days ago! I got my results in June 2017 so those notes had been hanging around since then.


Thanks, much appreciated. You're a star!

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If it's not too personal, you say you suspect one parent.

Was there any obvious signs I.e. thyroid or anything else you'd think broken gene came from that parent?

If it's too personal don't answer. I'm just curious, just the way I am. It could also may help me to do some detective work on my own parents.


I am fairly sure it came from my 100% Scottish mother. No, it's not too personal. I don't care nowadays who knows what about me!

I think my mother because :- 1. I read that it is a known scientific fact that the Scots have gone through many bad famines over the centuries, and in order to survive all those famines, their thyroid and metabolism changed. 2. My Scottish uncle was diagnosed with schizophrenia at age 20; I have recently read that the scientists/specialists/clever people think schizophrenia is based on an auto immune disease; and I now believe that it could well have been linked to his thyroid. In the past, prior to recovery, I have displayed schizophrenic symptoms. 3. My Scottish great aunt was incarcerated from age 20 til her death age 53, in an asylum; nobody ever told me her symptoms, all whispers and silence; that poor woman probably had a dodgy thyroid gene, had myxoedema madness. Her brother (my Scottish grandfather) went away to the French trenches aged 18 in 1914; whilst he was away, my grandfather's & great aunt's mother died of cancer and their father was chronically ill and died in 1919 (soon after the war ended in 1918). So my Scottish great aunt was left without her brother, knowing he was involved in a horrendous war far off in France, and she was dealing with two ill parents. She probably already had a dodgy thyroid gene, and the stress and trauma pushed her over the edge. My heart bleeds for them.


P S I have done Genealogy, which has helped me a lot to understand both sides of my family, and their health.


Oh... I'm ever so sorry. That all there with your family sounds horrendous. 😱

Thank you for sharing it.

Very much appreciated.

I don't really know where it leaves me with my parents as both sides of my family suffered famine during both wars. But that's good starting point. Thanks 😊😘

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You may find that yours comes from both sides. In which case I think you may have more severe symptoms. But not really sure, sorry.

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Ahhh yes that will be interesting 🤔 to learn.

We'll see.

Thanks for all your valuable input. I'll let you know how it all went. But it will be some time next year.

Thanks for all 👍

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I had a similar experience to marigold22 after I did the DIO2 test. I received an email from Regenerus to let me know a counsellor would phone to discuss my results. I had a male counsellor who explained the result - heterozygous in my case too. He asked about my thyroid problems and asked what supplements etc I was taking and gave some advice in his capacity as an alternative therapist (I googled him later and he’s known in his field). I didn’t really have any questions for him. I’d done the test because I knew I wasn’t converting well and, although receiving T3 on the nhs, I was concerned I would lose it. My gp used the results to prevent me from having it stopped.

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Thanks chunipet 😉


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