wilsons temperature syndrome (wts): hi! i have... - Thyroid UK

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wilsons temperature syndrome (wts)

deelcee profile image
5 Replies

hi!

i have been diagnosed as hypo for the past 20years and still feel aweful with all the usual symptoms. gp's always go by the tsh test and prescribe t4 but i never feel better.

i have recently come across 'wts' and have been monitering my body temperature and its low.

dr.wilson who discovered this syndrome back in the 80's recommends taking t3 only

1st. has anyone in this community had any experience of 'wts' ?

2nd. could somebody message me where i can obtain t3 only in the uk

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deelcee
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Clutter profile image
Clutter

Deelcee,

Wilson's Temperature Syndrome is not medically accepted and Denis Wilson was struck off after one of his patients died after following his protocol to take large doses of T3.

If your GP only tests TSH it won't indicate what your T4 and T3 hormone levels are like. You can order private thyroid tests to check your TSH, FT4 and FT3 via thyroiduk.org.uk/tuk/testin... Medichecks offer #ThyroidThursday discounts. Hypothyroid patients are often low/deficient in ferritin, vitamin D, B12 and folate so it could be worth ordering Blue Horizon's Thyroid Plus 11 or Medichecks UltraVits to check vits/minerals as well as thyroid levels.

If you post your results and ranges in a new post members will advise whether you are optimally dosed on Levothyroxine or whether a dose increase or the addition of T3 might be beneficial.

deelcee profile image
deelcee in reply to Clutter

thanks for the info!

i shall ask my gp for a free t3 test and if unsuccessful i shall look into the tests that you suggest

regards

bluebug profile image
bluebug in reply to deelcee

Unfortunately you are unlikely to be successful as in primary care practitioners may request it but the labs will ignore the request as they don't deem it necessary for the NHS.

You are far better to try and get your GP to test vitamin D, ferritin, folate and vitamin B12 to save yourself money doing them privately.

deelcee profile image
deelcee in reply to bluebug

Looks like your right cos ive asked my gp this afternoon and she said she will request it but doesnt hold out much hope...

bluebug profile image
bluebug in reply to deelcee

Forgot to say when you ask your GP for any test or talk to them about information from this forum make sure you don't simply say you got it off the internet.

State you go the information from Thyroid UK, a charity for those with thyroid disorders that is recommended by NHS Choices.

Many doctors don't understand the resources on the internet for patients with specific conditions and will just think you are a crackpot if you simply say "I got this off the internet".

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