Underactive Christina61 New Here....: The above... - Thyroid UK

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Underactive Christina61 New Here....

Christinah61 profile image
15 Replies

The above says it all.. been underactive since my teens after contracting glandular fever... prescribed levothyroxine and told to get on with it... teens, twenties, thirties, forties symptoms not to bad liveable apart from heavy periods.. but when I hit my 50s WHAM I have never felt so poorly ...nausea, balance issues, no sleep awake all night.. aching muscles headaches and occasional migraine... sometimes bed bound. After many trips to the doctors..i went to a private endo at the beginning of this year and asked to be put onto A NATURAL THYROID REPLACEMENT, was prescribed NatureThroid 2 grains straight away... I was on 150mcg levo,, felt terrible..after blood tests results decided to take B12, vit D3 &K2 and magnesium this has helped with balance and aches, however still feel nausea's and also feel that 10 months on NT hasn't really changed my symptoms at all... just emptied my purse very quickly... fed up of blood test's and getting nowhere and feeling terrible. Just sent for Blue Horizon test, thyroid plus 11 to see what's going on... just want to be me again... long battle ...Sorry to be so downbeat... I want to wish all you lovely ladies out there a Very Happy Christmas 2017.

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Christinah61
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15 Replies
Clutter profile image
Clutter

Welcome to the forum, Christinah61.

Post your Blue Horizon blood test results and ranges when you get them and members will advise whether you are optimally dosed on 3 grains.

Christinah61 profile image
Christinah61 in reply to Clutter

Thank you so much Clutter will do x

Christinah61 profile image
Christinah61 in reply to Christinah61

Clutter do I need to stop taking NT or any vitamins before I do my test? not sure as I have not done one of these before

Clutter profile image
Clutter in reply to Christinah61

Christinah61,

Leave 8-12 hours between last dose of NT and blood test. Stop supplementing biotin or supplements containing biotin a week before blood tests.

Christinah61 profile image
Christinah61

Thanks Clutter

shaws profile image
shawsAdministrator

You should do the blood test at the very earliest and fasting although you can drink water. This helps keep the TSH at its highest as it drops throughout the day.

Christinah61 profile image
Christinah61

Thank you Shaws

elwins profile image
elwins

Sorry to hear you are having problems, but in the earlier days when you found out you had thyroid problems you were just given a dose to take and left to get on with it. The same thing happened to me, was found I had a underactive thyroid at about the age of six after a lot of pushing by my mum. Left to get on with it throughout my school days. I understand very much what you are going through, have been on thyroxine for over 60 yrs. best of luck and hope you will be feeling better soon.

marigold22 profile image
marigold22 in reply to elwins

elwins and Christinah61 . I too was diagnosed Hypothyroid with a TSH of 75, but had felt awful all through my childhood. I too was given levo (T4) only when diagnosed but always felt worse on it than before even taking it. Fourteen years later I discovered that I can only take T3 to feel well. Hypo patients are being chucked T4 only, and left to get on with their lives, despite continually returning to their GP complaining of a whole myriad of symptoms. It never seems to be connected to the Hypothyroid condition. I have wasted literally hundreds of hours of GPs' time, just by them not looking deeper into my hypothyroid condition. Keep on pushing Christina - you have your early Xmas present - your Blue Horizon test and I'm sure it will show you what is happening in your thyroid / body.

Christinah61 profile image
Christinah61 in reply to marigold22

Thanks Marigold for your kind words,,,, yes I hope so.. been struggling all this year felt awful ...been on NDT since feb 17 and still not much better, in bed most days so yes cant wait for the kit to come so I can then post my results on the forum for Clutter and others to help me understand what I need to do to get myself up and about again THATS MY ONLY WISH FOR XMAS TO FEEL LIKE ME AGAIN. Have a Wonderful Christmas marigold.

christina61 profile image
christina61

Thank you el ...for ur kind reply yes we just had to get on with it...i remember feeling so poorly some days at school but just got on with it ....it was difficult and now i am in my 60,s struggling again to try and get some life back awaiting the finger prick test from blue horizon tomorrow so i can find out whats going on with me. Wish you a healthy happy xmas.

Good Luck with your tests and a very Happy Christmas

Christinah61 profile image
Christinah61 in reply to

Thank you Bunnyjean and you have a wonderful time ...waiting for the postman he has not come yet with my Blue Horizon test !!!

Christinah61 profile image
Christinah61

H

Christinah61 profile image
Christinah61

Hi to all my lovely friends I hope you all had a wonderful xmas. Unfortunately I spent my Christmas day in bed feeling dreadful all the lovely thyroid symptoms have stopped me again enjoying my Christmas. I have a new blue horizon kit and I am planning on doing my test on Tuesday 2nd Jan 2018 when most are back to normal work, this time I know exactly what to do and will not mess this one up...need to know why I am feeling so poorly all the while, seeing my 31 year old son crying at the bottom of my bed because I cannot get up to make Dinner, open presi's etc. it was heartbreaking...when Mum are you going to feel well???? Not for want of trying spent most of 2017 with endo, trying NDT instead of Levo but hey getting nowhere.... so I will post my results when I get them back from BH and go from there.

Happy New Year to All

Christina X

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