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Thyroid UK
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Really unwell

Hi all as some of you no I have graves.endo told me to stop carbimazole on the 12 Oct cause my t3 were low.stopped at once no graduale decent. Had bloods. Done again on the 3 Nov had a phone all from go to have bloods done again which is 21nov.no explanation why.so no meds since 12oct.by now I'm feeling very I'll.I feel I could end this misery. And all this distress I. Can barely function . I am a very strong willed wo man even though I've got lots of other health issues iam not a defeatist but enough is enough .I just want the old me back.thankyou

4 Replies

Contact your Endo and tell him you are unwell, if you've relapsed you need to go back on Carb.


Also make sure they check vitamin D, Folate, ferritin and B12

For full evaluation you ideally need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

Plus have you had TSI antibodies tested for Graves

If you can not get full thyroid and vitamin testing from GP


Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

Link about antibodies



Hi slowdragonthanks. Yes I did have blood culture done. I don't take any meds they stopped the carbimazole cause the t3 were low felt I'll ever since. Rang endo this morning as bantam suggested told him my symptoms .I could hardly speak cause my voice is so hoarse. He asked if my throat was sore I said no so he said it can't be my thyroid then .and wait till I have my next blood test done which is next Tuesday then ring him again.


Make sure you find out exactly what they have tested and results

You are legally entitled to your test results

Very likely to not test adequately.

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