My fatigue has got a lot worst over the last 2 months and been getting really bad headaches
Got my eyes checked they fine but optician said your not on iron tablets no more could this be why your tired
I booked in to have my tsh freet3 freet4 and calcium check some had fbc and ferritin checked
My endocrinologist rang and said your ferritin lower than normal your need to start ironbut for me to do that round my meds it’s 5am and midnight
Ferritin 6 (lab ranges 11 - 307)
Haemglobin 131 (121 - 160) he said I’m not anemica as haemglobin normal
Previously my ferritin been on average 13 - 15 but the highest it’s ever been is 29
I have no thyroid and prior to this couple of months still sleeping quite a lot but on thyroxine and t3
My endo phone me late Friday night but was going to write to dept in hospital regarding me having a iron fusion but he did say I might be told no and have to go on iron tablets. Saturday night out of hrs recommend co codamol to help with headaches
You have what is called non-anaemic iron deficiency.
If you don't get your ferritin level up you can end up with iron deficiency anaemia in a few months. In other words your haemoglobin level will be affected.
If you don't get your iron infusion and you aren't likely to get it due to NHS rationing, then standard treatment is two times ferrous sulphate or ferrous fumerate per day. If you can't stomach either of those, then buy yourself via Amazon UK ferrous gluconate or ferrous bisglyincate e.g. Solar Gentle Iron supplements and take the same amount of tablets per day as what you are prescribed.
The headaches are a symptom of iron deficiency. There are many more horrible signs and symptoms.
Unfortunately you aren't likely to be seen as a priority for an iron infusion.
If you feel dizzy and faint - especially if you actually faint - then get someone - family, friend or even a neighbour to accompany you to A&E by taxi or take you in their car asap. If you faint in the street then a paramedic will be called.
The letter was done Monday to fusion dept it went in the internal post so will await reply my endo away till Thursday but left message with secretary to ask if we can investigate what causing it to be that low
My only concern with tablets is you need to take them ages for it to go up abot
I was checked for celiacs in 2015 but I had only just started introducing wheat bread daily for 6 weeks prior I got wheat intolerance which upsets my stomach two days later
Since being moved to the mini pill I have a period 2-3 days for me I wouldn’t say it was heavy a year before that I bleed heavy whilst having a smear and had a colonoscopy who suggested the pill change so womb lining wouldn’t bleed so much
I am not sure if you have been made aware that if you have been confirmed with celiac's that you need to eliminate wheat, all wheat products, and all grains that contain gluten like barley and rye. Even oat unless it is stated it is gluten free.
If you have experienced some gluten intolerance in the past it is also best avoiding it with or without a confirmation of having celiac's.
Like all inflammatory food you'd get a delayed reaction which you have already experienced 2-3 days after. This is an indicator that your body doesn't want it.
Gluten also inhibits the absorption of the minerals iron and zinc as well as other vitamins.
I have been off wheat for quite a few years on and off I actually went through a period where it didn’t affect me then bam it did
They did biopsy and said I didn’t not have celiac I try and avoid wheat as I believe I have a wheat intolerance the only time I avoid gluten is if it’s an item marked gluten and wheat free
But I still find having gluten and wheat free bread and biscuits bloats me a lot and gives wind but only have an upset stomach if had wheat
The biopsies are not always a definitive diagnosis.
Since it wheat/gluten affected you, it is best to avoid it and totally 100% for your body to heal and for you to start feeling the benefits. I am personally not very fond of gluten-free bread and biscuits products. They are loaded with sugar and they are empty in terms of nutrition. Have good food that you can identify what it is like fruits, vegetables, good meat, fish, eggs. Bone broth is something to have daily (by boiling organic Chichen bones for a long time over slow heat. You can add vegetables and herbs for added flavour).
Nuts and seeds are good but at later stages when your guts have healed.
If I may recommend that you please stop drinking soya milk and avoid any soya products. This is the worst thing for your thyroid and for your guts. Soy is one of many goitrogens which are a category of foods that include certain vegetables, fruits and that promote the formation of goiter, an enlarged thyroid. Soya has a definite antithyroid effect and appears to be able to slow thyroid function, and in some cases, trigger thyroid disease.
If you have plans for further gluten investigation; then, yes, you have no choice but to continue to consume gluten until the tests (blood test and further biopsies are done)
Progesterone levels and triiodothyronine are positively correlated in macaques. Dietary soy increases triiodothyronine in pre-ovariectomized monkeys and prevents a decline in thyroxine following surgical menopause. The outcomes observed in this study suggest soy protein and isoflavone consumption does not adversely affect and may even preserve thyroid function in postmenopausal women.
Can’t remember when vitamin d last tested but at the time need d3 but couldn’t have it due to the alfacacidol I’m taking which don’t show on blood test and told to get more sunlight for d3
Waiting for printout of bloods to see what full blood count was
My new dr not helpful at mo
As for Somerset CCG every letter I get it says no evidence that t3 works therefore no funding
Everyone says can’t prescribe because of ccg there hands tied
Thank you that was interesting was seaside susie said
Magnesium helps with headaches especially if you are deficient. I initially took it to help the thyroid and with vit d3 supplements. I’ve since discovered it helps with headaches and my blood pressure is now normal where before it was high and dr was looking at putting me on blood pressure tablets.
My ferritin was as low as your and I started taking iron and it did not help until I started taking digestive enzymes with HCL at every meal. Low stomach acid is a symptom of hasimoto that can leave you nutrient deficient
I suspect the ompreazole is part of the problem. There are many articles that say that PPIs cause an issue with gut absorption which might explain your low ferritin?
The above link says about ferritin being between 70 and 90
So pleased to say when I rang the hospital they have now squeezed me in to have an iron transfusion Wednesday at 9.30am
in reply to
My gp rang me tonight and said it was a good job my endocrinologist picked up on my low ferritin levels and that the hospital are quick to get me in
He apologised that the receptionist had missed discuss with dr on the notes (d/w GP)
I told him about the thyroid patient advacapy quoted 70 - 90 ferritin levels for hypothyroid patients for thyroid meds to work he didn’t realise this and said I no longer be able to have iron tablets as it affect my thyroid meds
So it iron fusions till my levels get up to that range from 6
A blood test 4 weeks after iron fusion to see what my ferritin level is
He said I will feel so much better after iron fusion
Iron fusion went well we left two hrs prior appt to get to hospital as hitting work traffic. The hospital have agreed next appointment can be at a nearer hospital to me 30 mins away.
Fill in questionnaire how I was feeling I do another in 2 weeks the idea is if they see symptoms coming back they get me in for another fusion
Head nurse of fusions was not aware of the iron range for hypothyroid patients and took a copy of my sheet
She said we will make a note on your notes that your iron to be between 70 and 90
Have a blood test in a month to check my levels and was suggested my b12 and folate was checked and then after every month. It be very high too start with but will eventually come down if your dr or endo see its come down below that range we get you in for iron.
Still got bad headache. Had metallic taste in mouth whilst having iron administrated
Slept a lot today too but feel a huge weight been taken off my shoulders
Really disappointed as I’m still feeling exhausted and got mild headaches I was so hoping to be like tigger bouncing around full of energy by now
Has anyone else had iron fusion and how long till u felt improvement
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