Worried about results, don't understand what is wrong with me

[Eleanor_k]

Hi I am new to this site. I have gotten these results and I am worried about them, what do they mean please? I have tremor, muscle cramps and aches, tiredness, pins and needles, puffy eyes and feet. Thank you

TSH 100.3 (0.2 - 4.2)

FREE T4 10.2 (12 - 22)

TPO ANTIBODY 375.5 (<34)

[shaws Administrator]

Welcome to our forum and you have a thyroid hormone disease called 'Hashimoto's (or Autoimmune Thyroid Disease) the commonest cause of hypothyroidism. I shall give you a couple of links.

Your TSH is high and you will feel very awful. I was diagnosed too with a TSH of 100 and it is a horrible period to remember. I am now well.

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

You don't say if you've been prescribed levothyroxine and you should have been given 50mcg. You then have a blood test every six weeks. It should be at the very earliest, fasting (you can drink water) and an increase of 25mcg each time until your symptoms are 1 or below with FT4 and FT3 towards the upper part of the range.

Also ask for B12, Vit D, iron, ferritin and folate as all have to be optimal.

Always get a print-out with the ranges for your own records and you can post if you have a query.

[Eleanor_k in reply to shaws]

Hi thanks I haven't been prescribed anything for thyroid yet

[Puska]

Did you Dr give you these results or did you just pull them from offline? If the latter then that’s worrying you can get results without being advised about the implications. In any event go and see your GP who will prescribe thyroxine. Others will be in shortly to make sure you ask for other relevant testing and start a gluten free diet to get the antibodies down.

[Eleanor_k in reply to Puska]

The GP gave me the results

[Puska in reply to Eleanor_k]

Ok. And did he/she start treatment? I really hope so.

[Eleanor_k in reply to Puska]

Thanks no I have to wait to see him tomorrow.

[Puska in reply to Eleanor_k]

Ah. Ok. That’s fine. Most likely he will start on 50 mcg thyroxine. More blood tests after 6 weeks to monitor. But others here will advise the additional tests you need to ask for. You’ve landed in a helpful site. Most of us here have had very similar results at one stage.

[Eleanor_k in reply to Puska]

Thanks yes he wants to run other tests because of symptoms I am having - dizziness and fainting, dark patches in skin creases, blood pressure dropping when standing.

[SlowDragon Administrator in reply to Eleanor_k]

Dark patches in skin creases....make sure to point these out and ask for full testing for Addison's

Its likely due to the fact you are very hypo, but if Addison's or low adrenals you may need steroid support of your adrenals first.

[Treepie in reply to Eleanor_k]

I fainted whilst on holiday,was told dehydration but I had never fainted before and it was hypothyroidism with TSH 101.

[Eleanor_k]

If there is anything specific that my doctor needs to test me for I can request them at the appointment tomorrow thanks

[greygoose in reply to Eleanor_k]

It might be a good idea to ask for vit D, vit B12, folate and ferritin. These are often low when you're hypo, but they need to be optimal - not just in-range - for thyroid hormone to be efficiently used by the body.

[Eleanor_k in reply to greygoose]

Thanks I had these done a few weeks ago, can post these if they're still valid.

[greygoose in reply to Eleanor_k]

Very valid, yes, please do.