NHS England Liothyronine (T3) Consultation last... - Thyroid UK

Thyroid UK

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NHS England Liothyronine (T3) Consultation last day today

Clutter profile image
11 Replies

The consultation closes tomorrow so if you have not already done so please complete the consultation.

engage.england.nhs.uk/consu...

Pamela0106 has kindly written a guide to help you complete the survey docs.google.com/document/d/...

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JGBH profile image
JGBH

Have done so Clutter but having read some notification from the BTA (in Facebook, i think, yesterday) I do not feel very confident about the outcome. BTA were saying they did not get many responses for need of liothyronine... Very odd indeed! I think everything has been decided a long time ago and will not change...

Incidentally should the decision be reversed I hope patients who never had the chance to try T3 but are still "dragging themselves" on levo will be given the chance of evaluating if T3 improves their health and quality of life.

Pamela0106 profile image
Pamela0106 in reply to JGBH

The BtF claimed they hadn’t heard much from patients on the matter but it doesn’t mean the NHS haven’t via the consultation itself.

I think from the posts on BtF a lot of people have lost faith in them which explains why patients wouldn’t have been actively contacting them to represent them on the matter of T3.

Also I’d suggest the BTF should have been actively opposing T3 Withdrawal from the beginning and not waiting until now to mention it x

JGBH profile image
JGBH in reply to Pamela0106

Agree with you, and probably many other people, the BTF have not exactly been proactive in the support for use of Liothyronine.... while so many patients are left struggling and having no quality of life at all because of inadequate treatment for hypothyroidism. x

Clutter profile image
Clutter in reply to Pamela0106

Pamela0106,

As they follow the BTA stance which states its preferred therapy is Levothyoxine I'm not surprised.

amasufindme profile image
amasufindme

Completed and submitted - thank you!

lucylocks profile image
lucylocks

Completed and submitted.

Pamela0106 profile image
Pamela0106

Fingers crossed everyone fills it in with time to spare 🤞🏼😍 xxx

Clutter profile image
Clutter in reply to Pamela0106

Pamela0106,

4 hours 30 mins to 21st October. They'd better crack on with it if they're going to.

Pamela0106 profile image
Pamela0106 in reply to Clutter

It’s still open now xx I’m assuming it’s midnight tonight it closes. Who knows x

Clutter profile image
Clutter in reply to Pamela0106

Pamela0106,

I was playing safe :-D

Pamela0106 profile image
Pamela0106 in reply to Clutter

Haha I like your thinking 😂

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