Anyone with tinnitus & double vision?

Saw my Endocrinologist yesterday & he has discharged me as he says that he cannot explain the unresolved symptoms I have as a result of my hypothyroid / pernicious anaemia & feels he has optimised treatment.

I still have continual tinnitus, double vision requiring prism lenses in my glasses to correct & sometimes feel weak (so my arms/legs feel like pieces of string). I have always been a fainter, especially when standing for a long time / when I get up too quickly. I also occasionally lose words, which I think is “brain fog”.

I am on thyroxine 125mg, Vitamin D 800 IU & have hydroxocobalamin every 3 months. I am also on lymecycline for rosacea & lofepramine for depression. I do not have my latest blood test results yet, but the endocrinologist says they are all well in range & advises me to go back to my GP as “there may be other factors, thinking holistically”.

I completely understand and embrace the holistic approach, but I thought that these symptoms were known symptoms associated with hypothyroid & pernicious anaemia. Can anyone clarify and, more importantly, can anyone explain why they vary & whether they might improve or not please?

I would just like to understand what I am going to be living with. Thank you

[shaws Administrator]

You have to get a print-out of your latest results. I should think the Endo should have sent a copy to your GP.

So, your Endo has washed his hands and sent you back to GP as he couldn't suss out why you had clinical symptoms?

They love looking at numbers on a piece of paper and then dismissing the patient who then has to look elsewhere. After all they are supposed to be the 'experts' but not so expert after all.

Our bloods should not be -"but the endocrinologist says they are all well in range "- they should not be within range but optimal in range".

This is a link - tick off your 'clinical symptoms' and send a copy to this Endocrinologist as he is in need of some knowledge about them and the wide variety and I bet you can tick more than a few.

thyroiduk.org.uk/tuk/about_...

If your GP has a copy of your blood test results ask for a copy. Did you have your blood test at the earliest, fasting etc. etc.

B12 is important and that especially should not be in range but towards the top of the range, so that we can maybe avoid other serious problems. I have P.A. as well.

If you've not had vitamins/minerals tested for a while ask for them, B12, Vit D, iron, ferritin and folate. If you've not had a blood test for a while, request TSH, T4, T3, Free T4, Free T3 and thyroid antibodies.

Follow the advised procedure to get the best possible results from your blood test.

[Hidden in reply to shaws]

Thank you kindly, I do appreciate you taking the time & trouble

[shaws Administrator in reply to Hidden]

That's o.k. We have all 'been there' 'done that' so doing it ourselves seems to be the best way to have a healthy life.