Good private endo near Suffolk?: Hello.Could... - Thyroid UK

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Good private endo near Suffolk?

annajon1 profile image
annajon1

Hello.Could anyone recommend private endocrinologist anywhere near Suffolk please? For last two years I continue to have big TSH level drops and my nhs endocrinologist wants me to either have surgery to remove it or radioactive iodine.He didn't explore possibility of adrenal issues neither did he want to prescribe thyroxine/t3 combo of any kind. my recent results are TSH 31,13(0.5-4) and T4 8,4 (12-22) with 67.5of levothyroxine only. I will be very grateful for any information on good private practitioner before I go nhs route as do not trust him.

4 Replies
SlowDragon profile image
SlowDragonAdministrator

As you have Hashimoto's are you on strictly gluten free diet and do you test your vitamin D, folate, ferrritin and B12? Supplementing if necessary.

Would definitely get full private testing before seeing any endo

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after.

Email Louise at Thyroid Uk for list of recommended thyroid specialists

Louise.roberts@thyroiduk.org.uk

annajon1 profile image
annajon1 in reply to SlowDragon

I am not on strictly gluten free diet as have been tested for celiacs and came back negative.I have had vid D ,folate,ferritin and b12 tested and go perscribed iron for a month as been in lower range.Trouble I have is that my thyroid stays stable for 3-4 months and than within 2-3 weeks takes sudden dips.At the moment nhs endocrinologist wants to do tft's every month to see how big the swings in levels are.

clubby29 profile image
clubby29 in reply to annajon1

Hi I'm in Suffolk and went to see a guy at the Nuffield in Ipswich, long story short it turns out like many of them he works for nhs 3 days and private for the rest of the week. The problem is they are nhs trained so it's the same old same old. Other problem is he charged me £200 for 20 mins of crap. I would also agree with the gluten removal it does help so does a big enough dose of Levo or t3 or like me both.

Anthea55 profile image
Anthea55 in reply to annajon1

Your unstable times could be a thyroid storm which I understand can happen if you have high antibodies.

The gluten free diet is supposed to help this even if you are not coeliac. I understand that it's something to do with antibodies confusing the thyroid with gluten and attacking the thyroid by mistake.

Someone else may be able to describe this better.

I'm not coeliac but I do try to stick to gluten free.

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