Thyroid UK
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TSH 4.58 still no treatment

I wrote on here 3 months ago my TSH was 3.27 and i have high antibodies and a diagnosis of Hashimotos. They refused to treat me so i pushed to be seen again. This time my TSH is 4.58 yet they're still saying no. 😡 i could scream! She even said my symptoms are probably nothing to do with thyroid and down to my neuro condition or maybe i have something else causing it! Went on to say they'd normally trial thyroxine if my TSH was between 4-10 with hashimotos but as mine is just over 4 then she will wait 3 months and test my TSH again. Needless to say i demanded a 2nd opinion which will be about 8 weeks in waiting. I hate doctors and hate having to fight battles all the time just to try to feel better. Angry doesn't cut how i feel right now.

2 Replies

Hashimoto's very often affects the gut, leading to low stomach acid, low vitamin levels and leaky gut.

Low vitamins that affect thyroid are vitamin D, folate, ferritin and B12. Important to test these.

If they are too low they stop Thyroid hormones working.

Have these been tested, if not ask that they are. Always get actual results and ranges.

If you can't get full thyroid and vitamin testing from GP

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting for highest TSH

As you have Hashimoto's then hidden food intolerances may be causing issues, most common by far is gluten. Changing to a strictly gluten free diet may help reduce symptoms. Very, very many of us here find it really helps and can slowly lower antibodies.


lf you are in the UK, email and aks for a copy of the Pulse Online article by Dr Toft, ex President of the BTA.

Highlight the part where he states that if we have antibodies we should give given levothyroxine and the starting dose.

In other countries we will be prescribed if TSH goes above 3+. In the UK the BTA advises Endos and doctors to wait till our TSH reaches 10 before prescribing.

I think myself whomsoever decided on this figure must have had a dysfunction of their own thyroid gland to put such a high figure for the initial diagnose. Before levothyroxine and blood tests were introduced we were diagnosed upon cinical symptoms alone and given NDT and if our symtpoms got better we were hypo. If we didn't improve then they looked elsewhere.


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