I was diagnosed with Hypothyroidism when I was five and am currently on 125mg Levothyroxine. I've not been feeling right for months/years and every time I get my Thyroid checked the results come back as normal from the GP - the most recent being this week with TSH 1.25.
I have the following symptoms: periods of feeling exhausted, brain fog, difficulty losing weight, memory loss, occasional low mood, amongst other usuals...
I've arranged for a telephone conversation with my GP next week but would like some advice on things I should maybe ask him if he tries to fob me off. Hope someone can help
Written by
Cgee1980
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It's not your TSH that makes you feel bad - or better. Your doctor shouldn't be dosing you on the TSH alone. He should at least be doing an FT4, if not an FT3. If he refuses, then you really should do them privately. You need them both tested together to see if you're actually converting the levo you're taking, into the active hormone, T3.
You should also ask him to test the vit D, vit B12, folate and ferritin. These could be low, as you're hypo, and they need to be optimal for your body to be able to use thyroid hormone.
Welcome to our forum, and it saddens me that you were diagnosed so young so you've not really known what is is like to be symptom-free and healthy.
The first learning point is 'never accept "normal" ' with regard to blood test results. We need a TSH of 1 or lower or suppressed. No we wont get heart attacks or osteo. We want relief of clinical symptoms. Tick off the ones you have and I think it will be more than a few.
Never mind a 'conversation' request a new blood test. It should be at the very earliest possible, fasting (you can drink water) and allow a gap of 24 hours between your last dose of levo and the test and take afterwards.
Request B12, Vit D, iron, ferritin and folate too.
Get a print-out each time of your results, with the ranges. (Ranges are important as labs differ).
Thank you both for your replies - it's very much appreciated! I feel much happier now I know what to ask for. I'll post back once I've had my other tests, whether that be through the GP or privately.
Due to being diagnosed so young I think I have just accepted a lot of the symptoms listed on the Thyroid UK website as 'just the way I am'. I was amazed at how many symptoms I ticked off!
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Can I please ask some advice?
Please can I have some feedback back.
Can I have some help with results please?
