Anyone else get tremors in their chest and body? The shakes aren't visible externally and nobody can feel them except for me, it's like shaking but on the inside its really hard to explain, my doctor was very offhand about it and said nothing, seems worse sometimes at night when I am sleeping it can worse and often wakens me up. Anyone?
Internal Tremors: Anyone else get tremors in... - Thyroid UK
Internal Tremors
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GMason
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Hi kittyjump I also get bad tremors inside body only.the tremors often wake me up if not that it's pain somthink else
The tremors started about 10years ago and have got more aggressive over time,when I mention it to different doctors over many years they look at me af if I'm making it up or it's in my head.
I also mentioned it to my pain specialist he didn't seem to know either.At times the tremors are so bad it scares me and also is affecting my daily life.
Would u mind me following ur post in the hope we can both find an answer to one of many problems we have.Sorry I couldn't be more help but you are not alone.
Thanks for getting back to me 
No I don't mind you following it at all, have you found anything that makes them worse or improves them?
I've found nothing that I'm proves anything.i just know it's got more aggressive over the years.It feels like u lying on a washing machine that's on a spin cycle.thats the best way I can discribe it.I think it's got something to do with the nervous system.I have not been told that by any doctor or consultant.
Could it possibly be adrenaline? Do you get it worse at night? I have had no sleep tonight as every time I fall asleep it kicks in and it wakens me up, is scaring me 
It may seem worse at nite plus when u lying there resting so my doctor said blah,blah,blah
Do you get it all the time? I only get it sometimes, it's not massively terrible a feeling in itself I think it scares me most as I do not know what it is, so my mind leaps to the worst possibility
Like I said doctors know nowt.
1 doctor years ago said could it be my mind playing tricks WHAT I never seen that twat again.
No it's not in my mind tiny as it is lol.
This is real and like I said getting worse I have no answer☹️☹️
Damn doctors well hopefully someone may post some answers here and we can both have less worry, is crazy that doctors don't know what this is
I like that, yes most docs are twats, i would like them to just suffer 1 week in our shoes and see how they would cope!!! Thyroid is a vile thing to have.😠
I totally agree there .
I'm hypo have a shit memory I forget what I'm saying call people by other names have many senior moments to many.dont know what I'm doing or saying most the time.and it gets me 😡.
Lol.😊 i can tell your not impressed.
And not forgetting fobro? 2stone plus in weight on blah blah.
Its not great is it, ive lost weight but i know the weight thing will not skip me.
The bad part is I don't eat junk,chocolates eat sensible so why the 2 stone plus weigh gain WTF.
Ive just seen another thread of people fed up with weight gain when being hypo, especially taking levo.
The bad part is most tablets are known to cause weight gain especially levothroxine.But what can we do.
Hi
ive never heard that levothyroxine causes weight gain -where did you read that?
Ashwagandha although I can only afford to take one a day because I insist upon organic don't want any pesticides thank you
I also have trembling and body jerking in my sleep they have improved slightly after coming of propranol which i was taking for hyperthyroid and are now on carbimazole for 3 weeks. But i k ow what you both mean. I too mentioned this tobmy doctor and he looked at me as if i was on another planet😨
I do not understand why so many symptoms like this get consistent scorn from doctors, I have had exactly the same, they seem to think it's all in our heads, but surely that view only masks their own total ignorance about what must be happening?
It only starts for me just as i nod off , bang it happens and then again and again, im feeling quite poorly at the moment with this hyperthyroidism so im mot sleeping anyway, if i have a nap in the day it will also get me then aswell. I dont find them quite ad scary now. Its being breathless that scares me. But yes i think it does have something to do with adrenaline. Docs dont know everything. Are you hyper or hypo?
I am hypo but not on medication yet as the levothyroxine was giving me palpitations
Do you also get stomach problems?
Yes i do its all connected, acid reflux and also swallowing problems with food, neck is swollen at the moment. Before diagnosis i always had upset stomachs then this horrid disease.
I am glad to hear from you that it is all connected. I am hyper and had swollen neck but the ultrasound came back fine. I also taking medication for acid reflux and is feeling better. Sorry I am also jumping on this thread!
Hi gk818, thats fine for popping in, yes i have been hyper for 1 month now and started carbimazole 3 weeks ago only 20mgs one a day but feel even more rubbish. I dont see endoc until 3rd october and yes my neck is swollen at front and the sides and get very tight suffocating feeling aswell, this morning i had a strangevfeeling in my top neck and mouth like a horrid nervousness.
Yes stomach complaints are part of it and i too was on omprazole for a while but discontinued as side effects were not nice. Good old gaviscon for me. I had noticed a good 6 months before this diagnosis thatbi was getting horrid painful acidic upper stomach pains and have been told all connected.
Michelle, I actually start taking carbimazole 20mg since end June but I just got that neck tightness 2 weeks ago. It is as if i have a very bad sore throat but towards the top and sides. The condition got better with omprazole too but I took only 10 days. So these few days is on and off. Still losing sleep and having cramps on my limbs occasionally at night! frustrating!
In fact my stomach issue date back to a few years ago but did not attribute it to hyperthyroidism as the levels were normal.
Now is wait till blood test next week.
Yes i have shortnessbof breath and horrid neck tightness and throat but you do know about the sore throat and fever with carbi? Its not nice this thyroid business i feel poirly with mine and off work sick fir 1 month. Ive got to get my bloods re tested on monday alongside antibodies.
Yes i have a hiatus hernia dating back 6 years ago when i had endoscopy. Just be careful with ppi's with side effects and alongside carbimazole but you probably have asked that, also withdrawl symptons of ppis are quite bad, within 2 weeks it was out of my system. would you day you felt better on carbiband have you seen endoc yet?
I went to the doctor one day in may or june cos my condition got so bad...I had hand tremors and heart palpitations. plus my legs were shaking even though i was standing normally. I woke up with the whole body shaking literally. The blood test showed very high TSH levels so was on 20mg carbi and propranolol 20mg daily.
I put on almost 1 stone in 1.5 months and still feel tired and quick tempered. really feeling lousy about this whole thyroid issues.
Yes i understand and can imagine how you feel as i too was exactly the same, i toobwas on propranolol but decided to stop after 10 days when the doc prescribed carbi, i have gone to being a very energetic mum of a 12 yr old and a part time worker who loved to be out places but noe its more house bound because feeling poorly and breathless, its hard isnt it yoy feel like you have had things taken away from you. I just wanting to see endoc now and try to get a feeling of me again. Did endoc start you on carbi then?
Hope you dont mind me jumping in on your post!!
I think the internal tremors could be a cortisol issue - either too high or too low. Another possibility is hypoglycaemia (low blood sugar).
Checking the low blood sugar possibility is easy. Just before you go to bed eat a snack containing complex carbs with a low Glycaemic index. Try this for a few nights. If it makes no difference to your internal tremors then low blood sugar isn't the problem.
I agree with humanbean, check your blood sugar. If not that then likely adrenal issue. This can cause both palpitations and tremors. When hypo and undermedicated the body doesn't have enough hormone to function properly so the adrenal try to compensate by pumping out extra cortisol to allow us to do things like standing up without falling over for instance. When we assist our bodies by taking enough thyroid hormone, this usually ( though a few people need to do more) balances out by itself. Palpitations when on levo which don't subside after a couple of weeks at each dose level are usually linked to the nutritional deficiencies which are almost universal with hypo.
So where you need to start is request a copy of your thyroid test results from your gp's receptionist. You are entitled to these by law. Please post any you can get of TSH, ft4, ft3, TpoAb, TgAb, folate , ferritin, vit d and vit b12. These are the absolute basics for thyroid, but your GP is unlikely to do them all. Many of us use private testing through Medichecks or Blue Horizons.
Once you get some results out them in a new post and ask for advice. Make sure you give ranges as labs differ. Should look something like TSH 2.1 (0.4-4.2).
Gillian
I also have problems with trembles/shakes and also disequilibrium ( dizzy, dropstuff etc.) but had not put it down to Hypothyroidism as I also have Diabetes T1 ( insulin injections) and Fibro. I will certainly get my TSH tested again but really had ignored Hypot'ism as I have never thought of it as an illness or the cause of any of my problems ( which have taken over my life). I have only had T1 for two years and seem to just exist from day to day. I am on Levrothyroxine 125 per day, I have no idea if that's high or low! Never given any info as obviously the GP did not think it a problem. I guess it's back to the medical books for me if I want proper answers, unless any of you knowledgeable people can advise me?
Hypothyroid can cause an awful lot of issues that can seem unconnected. If you want to learn more then a good place to start is our parent website thyroiduk.org . Look down the bar at the left hand side to one that says something like "About the Thyroid/Hypothyroid". Any questions at any time, come back and write a question in a new post and there are plenty of people willing to help.
We all had to start somewhere with the learning!
Gillian
Some describe it as like sitting on a washing machine! I have had it very ovmccasionally it is an extremely odd sensation. I am glad it has only happened a few times! I must be some malfunction due to I think it is called dystonia or tremors. I used to get really annoying head nodding too when I was very overtly hypo.
It is rubbish to say thyroid disorder does not cause tremor it was one of the few things I was tested for when under the care of an endo. I had to hold out my hand and they watched to see if it was steady I am sure they were not doing it just to waste time! It is a known symptom 🙄 I don't see any reason why the sensation cannot be experienced internally as well as externally. If you google there are a lot of people asking about it as a symptom they can't all be independently imagining it. Doctors should listen and learn from those with the disorder not dismiss what we say it is a darn cheek
Hi
i think the tremors that are being talked about here are not externally visible which is why doctors dont understand what they are since they cant see them
alchemilla
I am sure you are right. However, doctors can't see your heart but if you tell them you have heart pains, they never seem to disbelieve you! Many symptoms cannot be seen but they are still real those internal tremors are real and related to hypo for sure. Why can't doctors just accept that patients know what they are talking about given it is happening in their body, they could do some very interesting research to improve their knowledge not tell patients no such thing exists as if we are inveterate liars or fantasists - the arrogance of it! So much more is unknown than known, you think they might have twigged that important fact. I am not sure if essential tremor only covers external symptoms. Will have a look....
well they will have seen a heart in anatomy dissection lectures ! they dont seem to understand that there is more to the human body than what is necessarily told them in anantomy and physiology classes -nor do they seem to be naturally curious about things which for supposed " scientists " you would think it would be a given....
@alchemilla12 I quite agree - no imagination whatsoever. It ought to be an interesting job helping people regain their health but that approach must make it as dull as dishwater - good money tho for dreary dishwashing!
Very interesting to hear about internal tremors. I thought when I lived in London that it was the underground passing beneath my basement flat. I've moved several times and now live deep in the country and still it continues at night when I'm trying to get to sleep. I feel strangely reassured now I know others are experiencing something similar.
DemelzaPoldark it isn't funny but your post did make me laugh! When I was very ill I used to itch like hell at around 7pm every night. I though it was something I was eating but once I excluded everything it persisted so I convinced myself it was the dogs who must have flea infestations but they didn't so I decided it was dust mites, then cigar smoke residue on my boyfriends clothing - it all seemed very plausible at the time. I think it was actually some hormone clock going bonkers with lack of T3 and setting off cytokines. Who knows.
Yes me too but not just internal and can be very frightening. My gp sent me to be assessed for Parkinsons but they told me it is most likely essential tremor so no further with it. I am working on nutrition. My ferritin was low but not tested for any other deficiency. I may get these privately now. Went gluten free a year ago and that helped for a while.
My ferritin is also low very bottom of the range, folate only a little liw but b12 top range, im taking solgarrs gentle iron 20mgs. But i font think its enough when i asked doc the other day about injections he said no because it scars the stomach. As if that bothers me im not going to go out in a crop top atv47!!!!
I noticed my internal tremors about 4 years ago. It was about the time my thyroid symptoms started changing. I've had a very strange tremor in my thumb - it has a mind of its own - if I lie on it it sounds like it's ticking. It comes and goes - sometimes I go weeks without it, and when I notice it it happen numerous times a day. It's all rather haphazard. I was so worried about it I thought I have Parkinson's but thankfully the neurologist says I don't. Whether is coincidence or not it has definitely lessened since I started T3.
Other tremors I have seem to be in different parts of my body e.g. head, foot and mainly noticeable at night. It seems if I take deep breathes and concentrate on relaxing they calm right down.
I like to have answers to things so it's frustrating when doctor's shrug their shoulders and can't explain it.
I got them a bit when i started NDT. Its because your adrenals are probably caput. It slowly went away for me after about a week or so of NDT.
I had this off and on for almost a year. It stopped the day they did a thyroidectomy. I had a huge nodule and I think I had Hashimoto's. (never confirmed or discussed but surgeon said it looked that way) So it was probably due to intermittent hyper? My levels were always 'normal' and they say it couldn't be related. Yeah, right.
Hi I had this when transitioning from Levo to NDT last month. I had good FT3 levels and was trying NDT due to muscular issues since levo, not poor dosing like most. It only happened when I started titrating and I believe it was my body reacting to the extra T3. I have also read posts where people get the typical hyper symptoms of tremor/palps when under medicated. Definitely NOT in your head! Adrenal problems are common if under medicated and a few have mentioned sleep disturbance as a result.
Although I can never find anything conclusive about this online, for me it definitely seems to be to do with my low adrenal function and some patient stories back this up. My integrative practitioner said it was to do with adrenaline being released to compensate for low cortisol (though I've never been able to find a conclusive study, etc to back that up).
Good morning Kittyjump ,I also get internal tremors, but I also have tremor in both hands, I was diagnosed with Parkinson's disease 3years ago. When I was first diagnosed the consultant told me to hold my hands out , typically they were quite steady that day, but I said to the doctor my hands seem to be steady but I'm shaking inside,in my chest! He said "I know you are I'm not looking at your hands ! I'm looking at your chin. He was very aware of internal tremor. May be this is something you could think about. I was relieved when I was diagnosed as at least I had a name for how I was feeling! Also medication which helps.
Yes
Screaming for help but no one is there about to lose my home and will end up in a homeless shelter most definitely can no longer clean the house can no longer fill out paperwork nothing I struggle every day for hours to keep my head above water and very little results
Screaming for help but no one is there about to lose my home and will end up in a homeless shelter most definitely can no longer clean the house can no longer fill out paperwork nothing I struggle every day for hours to keep my head above water and very little results
Oh no do you have anyone who can help you.👋🌹
Ashwagandha although I can only afford to take one a day because I insist upon organic don't want any pesticides thank you
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