Very worried.: I haven't posted on here in a... - Thyroid UK

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Very worried.

Lillie23 profile image
54 Replies

I haven't posted on here in a couple of years. Unfortunately now more ill and unable to work.

A couple of months ago I had thrush for the first time. I have had multiple treatments and it still hasn't resolved.

My Dr is now doing a test for diabetes and I'm really worried. My maternal auntie got type 1 at 39 (10 years ago). She started off having regular bouts of thrush before her symptoms got really bad.

I was just wondering what is the likelihood that the thrush might be because I'm pre-diabetic, even though I don't have the 4 major symptoms?

I am so fed up of perhaps having another chronic condition to add to the list and am very scared.

I hope someone might have some answers as I don't think I can cope with another thing wrong with me.

Thankyou all so very much in advance,

A distressed Lillie x

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Marz profile image
Marz

Why not have bloodtests for diabetes to put your mind at rest .... 😊

Lillie23 profile image
Lillie23 in reply to Marz

Having it done on Monday, but my anxiety is sky high worrying about it. Do you think it's worth posting on a diabetes group as they might have a few answers?

Marz profile image
Marz in reply to Lillie23

I don't think they would say anything any different. Are you being treated for candida ? - or following the candida eating plan ?

Lillie23 profile image
Lillie23 in reply to Marz

I have had multiple treatments. The last was 2 weeks of oral tablets. Now got to wait for blood results, then Dr said cyclical oral tablets and wait and see what gynae say in Oct at my appt. So still nothing sorted yet, bit of a waiting game, I just don't want it to do lasting damage to me.

Hillman51 profile image
Hillman51 in reply to Marz

Hi, I am 1 month into taking Levo.... This is a personal guestion , but has anyone developed a vaginal discharge while taking Levo ? Mine started 2 weeks into taking it and I have read that this can happen. It's not there all the time , hope some one can reassure me on this.

Lillie23 profile image
Lillie23 in reply to Hillman51

I can't remember as have been on it for a few years. Hoping some of the other people might be able to help :)

Nanaedake profile image
Nanaedake

It's good your doctor is testing to rule out diabetes. I don't think you should worry until you have some hard facts and evidence to go on. One good thing to remember is diabetes is treatable but the more likely scenario is that you are simply vitamin deficient and so your body is less resistant to thrush. Have you had vitamin levels tested?

Lillie23 profile image
Lillie23 in reply to Nanaedake

I have b12 injection every 3 months. Maybe I should ask to get new levels done after diabetes blood test come back? Just can't relax, felt dizzy in bed and so uncomfortable.

Marz profile image
Marz in reply to Lillie23

On B12 injections will skew any test results so not worth doing. Are you taking a B12 Complex to keep all the B's in balance - one containing folic acid or folate ?

Maybe you need some Magnesium to help you relax 😊

Lillie23 profile image
Lillie23 in reply to Marz

I am not no, is it important to? Vitamins are just so expensive though:(. I'll look into magnesium!

Marz profile image
Marz in reply to Lillie23

B12 works with Folate aka B9 - in the body. A B Complex keeps all the B's in balance.How is your VitD these days ?

Lillie23 profile image
Lillie23 in reply to Marz

Okay, will look into sourcing. I have no idea about D. Haven't taken vit D supplements for about a year! Should I probably start them again too? What is the best daily dosage again?

Also I take lansoprazole and read a few weeks ago that it inhibits b12 absorption, is this true?

Marz profile image
Marz in reply to Lillie23

Yes that is true. It also reduces absorption of other vital minerals and vitamins. Why do you take it ? - have you looked into the side effects ?

Your VitD needs testing before deciding on a daily dose.

Lanzoprazole blocks acid -most Hypos have low acid - so it makes matters worse.

Lillie23 profile image
Lillie23 in reply to Marz

I started getting acid coming up into my mouth. I tried a couple of days without but I can't. It seems to run in the family. So I have sorted one thing but gained another by doing so! Joy haha. Will badger for vit d test next time :)

Marz profile image
Marz in reply to Lillie23

drugs.com/sfx/lansoprazole-...

Scroll down for the less serious symptoms - dizziness is mentioned. Low acid can have the same symptoms as high.

There are lots of natural treatments you could try :-) - perhaps you have tried them.

Lillie23 profile image
Lillie23 in reply to Marz

But I've been on them a little while now, over a year. No haven't tried anything natural, didn't know it was a thing, Dr never mentioned anything!

Marz profile image
Marz in reply to Lillie23

No - Docs never do mention other treatments. They are well rewarded for prescribing PPI's or at least the Surgery receives funding points. Many people fine Betaine HCL very helpful and Apple Cider Vinegar. It is discussed so often on this Forum. Difficult to come off the PPI and it must be done very slowly. Did your doc do any tests to identify high acid ?

When stomach acid is low - then food is not adequately digested in the stomach - especially proteins. We need good acid levels to digest our foods. They remain in the stomach too long and begin to ferment. It is the upward funneling of the fermentation that can be confused with rising acid. Think of yeast bubbling !

Did you click onto the side effects ?

healthunlocked.com/search/p...

The above link takes you to over 300 other posts about PPI's on Thyroid UK :-)

Lillie23 profile image
Lillie23 in reply to Marz

Thankyou so much :). Crazy that they get points yet are unlawfully taking away my t3! I did but then I have a lot of them due to other co-morbid factors haha. No Drs just gave me them, think because last year I had so many infections they just sorted them out. What could it be though? Any chance low stomach acid can make it hard to lose weight? Haha x

Dreamer12 profile image
Dreamer12 in reply to Lillie23

Hi Lillie23

I stopped Omeprazole after 20 years and now take HCL with Pepsin (Swanson) and never looked back and as Marz said Apple cider vinegar is excellent too. I found out high and low acid have the same symptoms. Good luck with all xxx

Lillie23 profile image
Lillie23 in reply to Dreamer12

Wow, cool. And this is safe and can be found easily? I guess you just slowly decrease the dose of lansoprazole? X

Dreamer12 profile image
Dreamer12 in reply to Lillie23

Hi Lillie23

I reduced my Omeprazole very slowly indeed - over 3 months, as I had been on stomach tablets for 30 years. I was always extremely bloated before and now never it's amazing. HCL with pepsin and lots of people on the Forum told me about it and recommended it to me. When I take apple cider vinegar I don't take the HCL. I take two teaspoons mixed in a little water and use a straw to protect your teeth. It helps you to digest your meals, especially protein. Send me a PM if you want to know anything about weaning yourself off the PPIs. Try not to worry lots of people in here will help you and give you good support. Take care Jane xxx

Marz profile image
Marz in reply to Lillie23

Possibly :-)

CSmithLadd profile image
CSmithLadd in reply to Lillie23

You really need a functional doctor who knows about the body's need for nutrients in order to function properly by way of its regulator: the thyroid. No hypothyroid person should ever be on proton pump inhibitors (PPIs) like lansoprazole (better known as Prevacid).

Proton Pump Inhibitors also interfere with the absorption of the intake of thyroid hormones like Thyroxine: pharmacytimes.com/publicati...

PPIs are known to cause Thrush.

ncbi.nlm.nih.gov/pubmed/258...

So there are your answers. For total understanding, there are more things to of which to be aware:

PPIs are prescribed for those who have too much stomach acid; yet, because the symptoms are much the same -- those with too little stomach acid (common with hypothyroidism) are put on it. This is reckless and dangerous to your health. The PPIs do more damage to your health by removing the acid that is necessary for you to absorb the very nutrients necessary for optimal thyroid function. It's a vicious cycle that makes pharmaceutical companies rich and patients sicker.

PPIs not only make it more difficult to control hypothyroidism: they cause hypothyroidism. Without magnesium, Vitamin D, Iron, and other nutrients that PPIs keep the taker from absorbing... thyroid function slows as it is dependent on those nutrients in order to function properly. The thyroid controls the whole body. So you get sick and can have more than 300 symptoms of illness. All are related to being hypothyroid. It's the mecca of money for those who make these most dangerous drugs. PPIs keep those who take them addicted to them and sick due to nutrient deficiencies that keep their thyroid from proper function.

It all rings in mega money for the companies who make PPIs and the doctors who keep prescribing them.

You will have to wean off the lansoprazole very slowly. I've done it myself (after thirty years of PPI use) and have helped others to do it. Reducing slowly is the trick.

peoplespharmacy.com/2016/02...

medicalnewstoday.com/articl...

After you've weaned from it, you can use the opposite of it: HCL with Pepsin to replace the LACK of stomach acid you have that was erroneously treated as being too much acid. By the time I figured this out, I had zero detectable stomach acid. Zero.

All your nutrient levels need to be checked as you've had no stomach acid by which to absorb them. That includes many of your supplements. It would be wise to find a doctor of Functional Medicine. The average conventional doctor knows very little of vitamins and nutrients. If yours had, PPIs would not have been prescribed to you.

I would venture to guess that no other drug has made more people sicker than Proton Pump Inhibitors. They wreak all sorts of havoc in the body and the patient usually has no clue. Who would think their physician would sabotage their efforts to gain good health? If the physician didn't know... they should turn in their medical license. Everyone now knows that PPIs are to be used for only a very short time. In my opinion, among others, they should be removed from use all together. They are prescribed for one thing (excess stomach acid) while treating a fake version of that (low stomach acid). They both have very similar symptoms. Most know that very few people have too much stomach acid, yet doctors are not checking for it. That allows PPIs to stay on the market.

PPIs are also known to cause dementia. Of course! As that is what a brain starved for proper nutrients will succumb to being -- reduced to very little cognizant brain activity. So sad.

How could anyone actually think a patient could get better by using a drug that has been proven to be so very dangerous to good health? The tremendous number of class-action lawsuits against the makers of PPIs continues to pile up, yet the pharmaceutical companies will continue to pay out and keep convincing doctors to prescribe them. It is a mega billion dollar a year industry. It won't change until others know what long-term PPI use does: it destroys the thyroid function which is necessary for good health.

All your illnesses are likely to be a part of what Prevacid has done to your body. Definitely the lack of nutrients and definitely the Thrush also. Getting off the PPI will help you tremendously. But I wouldn't ask a doctor who was out-of-the-loop enough to put a hypothyroid person on a PPI. Find yourself a good doctor who knows about functional medicine and the value of ensuring nutrients in the body. It's the only way to truly have excellent thyroid function. You must have nutrients. The PPI has robbed you of that along with giving you Thrush. It also has kept thyroid hormone from being absorbed properly.

But don't be hasty and dismiss understanding that you PPIs must be weaned from use. You cannot simply stop taking them. Depending on how long you've been on it, there is a protocol for weaning from it. The links are above to help you.

In the meantime, please stay away from refined sugar as if it were the poison it really is -- as it feeds inflammation in the body (inc. feeding the Candida albicans responsible for Thrush).

Healing Hugs!

Lillie23 profile image
Lillie23 in reply to CSmithLadd

This is such a detailed reply and so interesting! I am going to show my grandma too as she is on PPI's but doesn't have thyroid issues, so think we need to both come off them together! How do we know when we have enough stomach acid back?? I wish I could see a functional Dr but money is an issue. I will get up to date vitamins etc done and go from there. I just hope we can get somewhere with this petition and consultation as we are being fobbed off and kept ill for too long! Thanks so much again x

CSmithLadd profile image
CSmithLadd in reply to Lillie23

Hi there Lillie,

Nice to hear from you. Thank you for your kind words.

Unfortunately, you may not ever have adequate stomach acid after being on PPIs. Too, with hypothyroidism, stomach acid secretes less and less all the time (as all other systems slow down as well). The way to remedy this issue is to make use of HCL with Pepsin (also called Betaine) with every meal that contains protein (any form of protein over 6 grams).

PPIs keep nutrients from being absorbed, so ultimately there will always be thyroid issues for anyone who takes them continuously.

You can help your grandmother to wean off them. You two can do it together and then slap High Fives as you regain your health. Just make sure you wean off properly.

Remember to also steer clear of anything which inhibits thyroid function (including foods, drinks, topical applications, etc.). This means looking at labels of any and every pharmaceutical and OTC drug you take -- and doing research to make sure none of those are harmful to nutrient absorption or otherwise harmful to thyroid function.

Read up on nutrients at functional medicine sites and blogs to see what dietary resources are best for maintaining healthy levels of certain nutrients. We don't have to spend tons of money on nutrients. After we have topped up where we have known deficiencies, if we work at it, we can get most nutrients from our food choices. But we must also ensure we have adequate stomach acid for absorption. That is where HCL supplementation is key.

The lack of adequate nutrients, these days, is mostly caused by a lack of absorption. This is what keeps pharmaceutical companies in business. I'm sure they love the money, but we all know the thyroid cannot function properly without the nutrients needed for its total functioning to be in place. It's all about the money.

I cannot trust an industry that allows PPIs to be prescribed. I cannot trust an industry that puts pharmaceuticals ahead of simple vitamins and minerals.

We know what PPIs do and we know doctors are paid to write and refill prescriptions for them. So we get educated in what makes our body work best. Then we put it into practice.

We can become knowledgeable about what it is our body needs. Then we go about doing what is best for us and getting whatever it is we need to retain that healthful state. If we must, we do it ourselves.

Healing Hugs!

Lillie23 profile image
Lillie23 in reply to CSmithLadd

This is just crazy! I just told my grandma what you said and she is angry that the Drs do this. So when I started getting acid coming up into my mouth it was probably because if low acid not high because I'm hypothyroid?! So I may probably have been treated the wrong way and have done damage! For people that had high acid (my grandma) confirmed 11 years ago what do they do after taking the HCL? X

CSmithLadd profile image
CSmithLadd in reply to Lillie23

Yes. Acid reflux is known to be caused by having too little stomach acid. Hypothyroidism causes too little stomach acid as it slows down all functions of the body: including stomach acid output.

Low stomach acid has been mistaken for too much stomach acid ever since the introduction of Proton Pump Inhibitors (PPIs). The health complications have been rampant ever since.

There's no money in treating too little stomach acid, as anyone can easily correct it to gain absorption of nutrients (and to keep the stomach protected from bacterial overgrowth) by taking OTC HCL with Pepsin. However, most times, by the time the lack of stomach acid is detected, hypothyroidism has begun. A lack of vital nutrients for thyroid function = hypothyroidism.

Instead, the medical industry for over thirty+ years has made a ton of money by prescribing PPIs that simply block all acid formation in the stomach by shutting down the proton pumps. The symptoms are quelled and the patient thinks their health has improved. But that is only the beginning of a nightmare of health issues that are caused by PPI use.

The problem is that doctors made the mistake of prescribing PPIs without ever testing patients to see if they actually have too much stomach acid. Many have no clue about the importance of nutrients to the well-being of the body (truth, seriously) and hurt their patients by giving them PPIs and never limiting how long the patient was on them. Bottom line: Even for just two weeks (the limit of use without being under the care of a doctor: therein lies the error of the pharmaceutical companies), PPI are dangerous to one's health.

The more research I did on the problems with health and PPIs (and the resulting Class Action lawsuits), the picture became crystal clear. M-O-N-E-Y.

The makers of PPIs recommend they not be used for longer than two weeks. They now also state that the physician should medically determine whether or not a patient actually suffers from too much acid before prescribing. Many doctors never got the memo or simply don't care.

At the very least, they certainly aren't paying attention.

The fact is that PPIs will cause your grandmother, and anyone who uses them, far more dangerous health issues than they are worth. She will have digestive issues that lead to Leaky Gut and little or no absorption of nutrients that are vital to her health.

If your grandmother actually had too much stomach acid, it may have been a temporary situation due to diet. It is far more common that overuse of antibiotics and NSAIDS (among other things) have reduced her stomach acid to a trickle of its former output. Then, to make things far worse, if she's been on them for a while, her stomach acid is no longer there.

That is a huge problem.

This opens the stomach to an overgrowth of bacteria. The second of the links below explains all that in a very understandable fashion. Please read it with your grandmother. She should not be afraid of slowly weaning off them. PPIs are not good for anyone as they shut off all stomach acid. We cannot live a healthy life without adequate stomach acid.

Knowledge is power.

drjockers.com/causes-and-sy...

doctorschierling.com/blog/h...

Lillie23 profile image
Lillie23 in reply to CSmithLadd

I just cannot believe it. My grandma is very worried now, bless her. We are going to order HCL with pepsin and get our levels back hopefully. I guess you continue on this for life as it's a healthy amount of acid and not dangerous and can help other things too? I have had my blood test this morning, so will wait for results before I buy supplements etc. Will get probiotic ordered though x

CSmithLadd profile image
CSmithLadd in reply to Lillie23

Tell your Grandmother now that she will be correcting the problems, she should not worry at all.

It is an excellent idea to begin the use of both probiotics and prebiotics to promote gut health and reverse the issues caused by PPI usage.

The HCL with Pepsin has directions that allow you to slowly determine exactly how much you need for your individual situation. Your body should be secreting enough HCL for you -- but it doesn't because the PPIs have shut it down (and hypothyroidism slows it down to a trickle).

Stomach acid (HCL) is what keeps you healthy as it allows your body to break down foods and digest them properly. That's how we absorb nutrients, via adequate stomach acid. It also keeps harmful bacteria from forming in the gut. When we are out of balance, our entire body becomes unbalanced as well. That is due to the lack of absorption of nutrients which are vital to all facets of total thyroid function.

So the HCL with Pepsin are merely replacing what your body would normally be providing. Just follow the directions. You will need to take it each time you eat protein in sufficient quantity.

No worries. Just good health to come!

Healing Hugs!

Lillie23 profile image
Lillie23 in reply to CSmithLadd

Thankyou ever so much! We are going to purchase now. I am stopping mine straight away and will take apple cider vinegar if I get pain etc. Am going to order a probiotic someone suggested, can you suggest a prebiotic? And I can't eat the food prebiotics, yuck! Ps can you take ranitidine if gets very sore or is that just as bad. Thankyou so much again x

CSmithLadd profile image
CSmithLadd in reply to Lillie23

Antihistamines are not good for you. With thyroid dysfunction, the body has a tendency to become quite full of histamines. The reason for this is the lack of DAO Enzymes, which are the body's natural way of neutralizing histamines from foods we eat.

"Doctors now warn their patients not to take antihistamine medications continuously because of the damage to the sinus membranes from long-term constant use. Health of the membrane tissues is most important to the immune response. A treatment protocol to restore healthy membrane immune responses is needed with all diseases treated with antihistamine medications, which are prescribed to relieve symptoms temporarily. Antihistamines as H2 Receptor Antagonists are also used to block stomach acid production combined with Proton Pump Inhibitors, but now come with warnings that prolonged use is associated with an array of adverse effects, including various nutrient malabsorptions and increased risk for GI infections."

acupunctureintegrated.com/a...

Not smart to trade one bad antihistamine (PPI) for another! Use DAO Enzymes for histamine issues. You will find that as you wean off the PPI and get ample thyroid hormone to allow optimal T3 in your cells, most all your histamine issues will disappear! People think allergies are simply a reaction to things as is "normal." Allergies are there to indicate that something in the "normal" scheme of things is not entirely optimal. Most just take antihistamines day after day. This is ruining the health of millions who are unaware that antihistamines are not without risks to your health.

The reason you have histamine reactions is because just as we lack stomach acid, we also lack adequate amounts of DAO Enzymes (which naturally neutralize histamines found in foods).

So you need to replace the DAO Enzymes your stomach lacks.

You can purchase DAO Enzymes under many brand names (such as HISTAME). As long as you get DAO Enzymes and take as directed, all will be fine. Try to remember that histamines are are almost dead last on the priority list of who gets T3 in the body. So we do what we must in order to be comfortable by taking DAO Enzymes.

Anti-histamines are very harmful to the body. Most just don't realize it. Do everything you can not to use them. As your body heals, you'll be amazed that you can live without antihistamines. They're just another thing to "mask" symptoms caused by real issues that conventional medicine wants you think you have to treat in that manner. Anti-histamines only cause more problems with the current dysfunctions going on in your body. Adequate thyroid hormone will eventually take care of all those issues.

About the apple cider vinegar and weaning off PPIs: Continue to use the apple cider vinegar before meals (if it still agrees with you during that time) as you are weaning off the PPI. Do so until you get to the point where you will be skipping days every so often. On those days when you skip taking the PPI, be sure to use the HCL with Pepsin with your meals.

The following link has excellent step-by-step instructions for weaning off PPIs and of the use of apple cider vinegar and HCL with Pepsin (or Betaine) during that time.

fearlesseating.net/how-to-w...

The apple cider vinegar, for now, will be used on the days you take the PPI. As you cut back more and more, soon you will skip an entire day, then two days, and so on. On those days when you skip, you take the HCL with Pepsin when eating meals containing protein. I found that I used it even if a meal didn't contain protein. You have to test it out for yourself. Just use the directions. You'll continue in this manner until you are totally weaned off PPIs for good. At that time, you will no doubt still make use of the HCL with Pepsin for all your digestive needs when eating meals that consist of 8 grams or more of protein. Any kind of protein.

foodrenegade.com/hcl-not-ju...

The HCL is the replacement stomach acid you need. Be sure you follow the instructions to-the-letter so that you find how much you need. Then, as time goes on, you will probably need less and less to get the same result.

As far as prebiotics -- some are able to get enough in their diets. The article below is extremely helpful in understanding the need for prebiotics (fiber) and what they do for gut and overall health. Dr. Axe lists many common food sources by which to consume prebiotic fiber:

draxe.com/prebiotics/

It is best to get as much as you can from diet, rather than supplements. But for many of us, like you, we get recurring issues with histamine and food intolerances that limit our dietary choices for certain supplements. Or we just say, "Yuck!" and be done with it. LOL

You will need to learn to eat such food in order to maintain balance in your diet. It is nutrients that are the best friend of the thyroid. Without nutrients, the thyroid cannot perform all its functions; and hormone conversion to active T3 cannot take place.

If you decide you wish to take a prebiotic until your diet is able to provide enough (hey, I have faith in you!) -- the prebiotic supplement buyers guide below will be very helpful to you.

"There are only two official prebiotics, both of which are oligosaccharides. The two accepted prebiotics are fructo-oligosaccharide and galacto-oligosaccharide.

Unless regulatory processes can be elevated to Good Manufacturing Practice (GMP) standards used by many companies in the United States, Canada, and Europe, it’s best to purchase prebiotics that were manufactured according to GMP standards."

Following those guidelines will offer you many suitable choices.

prebiotin.com/prebiotic-sup...

Healing Hugs!

Lillie23 profile image
Lillie23 in reply to CSmithLadd

Sorry for the late reply, I have been very exhausted and stressed. I really appreciate all the advice. I am now taking the HCL with pepsin, b complex, magnesium, selenium and zinc, so hopefully these will kick in soon and I will think about prebiotics haha. I hope you are having a nice bank holiday and I can't thank you enough :)

Nanaedake profile image
Nanaedake

Oh, and I think it needs to be someone in your immediate family to increase likelihood of genetic predisposition to type 2 and I don't think type 1 is usually inherited but I could be wrong. Main thing, worrying won't help so try to relax. Do something calming.

CSmithLadd profile image
CSmithLadd in reply to Nanaedake

You've got those turned around. Type 1 is when the pancreas ceases to function and will never regain function. Type 1 was previously thought to be inherited.

Type 2 is when insulin is not regulated properly and is usually acquired.

It is my belief that diabetes is more of a result of having undiagnosed and/or uncorrected thyroid dysfunction. Conventional medicine will beg to differ. But functional medicine will not.

The thyroid in dysfunction affects the entire body... which certainly includes the pancreas.

MiniMum97 profile image
MiniMum97

Has the GP tested you for thrush? I had ongoing "thrush" for about two years and saw multiple specialists I was finally referred to a dermatologist who realised straight away that it was eczema.

If it is recurrent trust this could be for a variety of reasons so I would get the test for diabetes done before worrying about it if you can. I know that is easier said than done.

Lillie23 profile image
Lillie23 in reply to MiniMum97

Thankyou, yes I have, although the last test was done in July. The thing is it hurts inside so that's why I don't think it's a skin complaint? I have the test booked for Monday but I couldn't sleep well at all last night :(.

MiniMum97 profile image
MiniMum97 in reply to Lillie23

Oh that's awful - although your skin does go all the way up inside. What have they given you for a thrush treatment? There are a number of different treatments and some types of candida respond differently to different medications - ie some are more resistant than others. Whenever I get thrush, I have to take a fluconazole AND 6 canesten pessaries, 1 per day at night. I also use the cream as well for the discomfort. I keep a stock of this ready so I have it as soon as it comes on.

There are some very strong anti fungals they can give you called itraconazole - I had various length courses of this when they thought I had resistent thrush. As vaginal eczema also has a fungal element it was very effective for that. Perhaps ask to try some different medications. Be aware that I think you need to be careful with itraconazole if you have liver problems. If your GP isn't helpful, go to the local GUM clinic - this area is the speciality and they were very helpful and persistent when I went. They tried loads of different meds, constanty tested and examined me, eventually did a biopsy and then referred me to the dermatologist. My GP had previously told me that I just had to put up with it!

I often get thrush when I have eaten too much sugar which I don't tolerate very well (I get hypoglycaemic episodes) - I understand metabolising sugar is a problem for people who are hypothyroid. So it could be this, rather than diabetes that is leading your blood sugar to spike and fall, which could lead to an imbalance and thrush.

Do you take a good probiotic, or drink kefir? It's possible that imbalances in the gut could lead to thrush so this may help. Probiotic yoghurt can be very soothing when applied, although it's never got rid of thrush for me, some people swear by it!

Lillie23 profile image
Lillie23 in reply to MiniMum97

Thanks for your reply. I have had, creams, tablets and pessaries Yes, but only fluconazole so far. Dr didn't do another swab the other day which I would've liked. Yes I went to GUM clinic once for it and they looked it up under the microscope there and then which confirmed thrush, I was amazed! Somebody suggested a keto diet to get rid of excess insulin and burn fat. Need to get some probiotic as I don't like yoghurt. Do you think the vitamins I need to help are zinc, magnesium, selenium, b complex and probiotic? X

MiniMum97 profile image
MiniMum97 in reply to Lillie23

I think you should get your diabetes test, and also your latest thyroid results (TSH, T4, T3) plus vit d, ferritin, and folate. Get a private test if GP won't do all that (about £79 usually on Thyroid Thursday with Medichecks - Thyroid Ultravit).

I am guessing you have Pernicious Anaemia if you have 3-monthly B12 injections? I understand that this is too infrequent for many people - go over to the PA forum and get some advice on this.

Once you have your blood test results this will give you an idea of what you might be deficient in before you start supplementing. You can then focus on what you are deficient in so you don't waste money and risk your health my taking supplements you may not need, or where too much of is toxic. Once you have sorted those, you can think about the others.

I wouldn't do keto personally, a very restrictive diet is not good for your gut bacteria. Just focus on eating lots of vegetables with lots of different colours and don't eat any sugar, and limit refined carbs. Have a look at The Clever Guts Diet book for evidenced based information on resetting your gut bacteria. A good probiotic won't hurt so I would go ahead with that and try drinking kefir which you can make yourself at home very cheaply (if you want to do this, let me know and I can explain it all) or buy now in most supermarkets but check that it isn't pasteurised or it won't do anything. I am currently taking Alflorex which isn't too expensive and it seems to be working - I've tried bio-kult before but this didn't work for me but others have had results with it. Other good probiotics are Symprove and VSL3 but these are expensive so I would try one of the other two first personally. You should notice some bowel changes pretty quickly (within a couple of weeks) if they are going to do anything - these may not be good changes - ie more gas and possibly discomfort or changes in bowel pattern - but this means it's doing something and it should die down within a couple of weeks. With probiotics it's a lot of trial and error as you don't know which bacteria your body needs. Don't bother with a cheap probiotic, it's a false economy as it's unlikely to do anything.

I can see from your previous posts that you have hashis - are you completely gluten free. This is recommended for hashis sufferers as being gluten free can reduce your antibodies. It may also be making your gut unhappy and causing imbalances in your gut flora.

Hope that helps.

Lillie23 profile image
Lillie23 in reply to MiniMum97

Thankyou so much for all this information :). I had Get a done a few weeks ago so will see if I can add vitamins on Monday with the nurse! I do want to get all the right supplements that will help me, but not being able to work means a lot of my "spare" money will be going on tablets, wish they were prescribed for people with auto-immune diseases. I don't know if I do have PA but I got my b12 back up to where it should be and finished tablets and months later it had all depleted again, so I asked for injection and am asking next time I go to up it as I become even more forgetful than usual! I have been gf for couple of years now, but since not working I have been sneaking in a sandwich/doughnut/pastry every now and again- I can't have much as do react but I know it's not good as doesn't help my antibodies but comfort food helps a bit when you feel a lost cause at 26 lol x

Maje profile image
Maje

For Lillie. Thrush develops because of Vit B6 deficiency. Babies use a high amount of Vit B6 in the womb so very common in pregnant women, also responsible for teeth caries (holes) in teeth developing then, so 12 months free dental care after pregnancy. Also main cause of baby blues and severe depression after pregnancy. Contributes to toxaemia and eclampsia in pregnancy.

You must take at least 50 mgs of Vit B6, plus magnesium (50 mgs or half a teaspoon of Epsom salts (magnesium sulphate) in warm fluid) and (15mgs of ) zinc as these three supplements are synergestic and only work when taken together. Thrush is also very common after being given antibiotics, always take yoghurt and Vit B6 after taking antibiotics.

Vit B6 also affects the thyroid gland since the gland can't work without it, and if short the the thyroid slows down or stops. Again, take all three supplements together. Vit E deficiency means the thyroid works at only about 5% efficiency, but it CANNOT be taken if blood thinners such as coumadin, warfarin etc are used, or if blood pressure is critically high, or a rheumatic heart condition is present. Can lead to fatality if used with those three conditions, otherwise brilliant for all other heart conditions. Low dose, below 50 mgs of Vit E daily brings blood pressure safely down to normal, never goes below normal. Hopes this helps, with love, Maje X

Lillie23 profile image
Lillie23 in reply to Maje

Wow this information is astonishing! I guess the we get more of these deficiencies because of the auto-immune part of things? Sounds like a good trio to take if it does the job! What is a well priced place/website to get vitamins from apart from Holland and Barrett? Thankyou ever so much, feel a bit less stressed now x

MiniMum97 profile image
MiniMum97 in reply to Maje

Do you have any references for this information as it is my understanding that there is no evidence to support that a B6 deficiency causes thrush.

More importantly, I assume that you are not aware that taking too much B6 can be toxic as otherwise I am sure you would have warned the OP about that in your reply. I really don't think anyone should be advising people to take 50mg of B6 a day when the RDA is around 1.3mg without warning them of the possible toxicity issues:

livestrong.com/article/4947...

mayoclinic.org/drugs-supple...

webmd.boots.com/vitamins-an...

Note that the more serious side effects of taking too much B6 include nerve and brain damage, stomach ulcers, irregular heartbeat, liver damage, vision loss and gout.

CSmithLadd profile image
CSmithLadd in reply to MiniMum97

How Much Vitamin B-6 Can a Person Take Without Harm?

Tolerable Upper Intake Level

According to the Food and Nutrition Board, the tolerable upper intake level, or UL, of vitamin B-6 is 100 milligrams per day for adult men and women, including pregnant or nursing women. This means that 100 milligrams of vitamin B-6 is the maximum amount that an adult can consume each day without possibly experiencing harmful side effects. The UL for adolescents is lower, at 80 milligrams per day. Children between 1 and 13 years old have a vitamin B-6 UL ranging between 30 and 60 milligrams.

Toxicity Symptoms

Taking more than 100 milligrams of vitamin B-6 daily may cause nausea, heartburn, increased sensitivity to light, abdominal pain, decreased appetite and skin reactions like rashes or the development of lesions. High doses of vitamin B-6 over a long period of time may also cause damage to your nerves, resulting in leg numbness and difficulty controlling gross motor movements. The Office of Dietary Supplements reports that these symptoms aren't permanent; they go away when the level of vitamin B-6 consumed decreases.

healthyeating.sfgate.com/mu...

MiniMum97 profile image
MiniMum97 in reply to CSmithLadd

The NHS website indicates that there is not enough evidence to tell whether doses over 10mg a day long term have negative consequences so it seems the jury is still out on whether high doses are ok in the long term.

nhs.uk/Conditions/vitamins-...

Given that there is no evidence that a high dose b6 supplement would help the OP's thrush Personally that's not a risk I would want to take.

CSmithLadd profile image
CSmithLadd in reply to MiniMum97

The key is to use many reputable resources to discover optimal nutritional levels that are necessary to restore and/or to maintain good health.

Conventional medicine is about prescribing pharmaceuticals that mask symptoms caused by nutrient deficiencies. They are not reputable resources for nutritional information.

The NHS oversees conventional medicine. Surely you see the problem with this.

It has been proven that thyroid dysfunction wreaks havoc throughout the body. It has also been proven that thyroid dysfunction's primary origin is usually due to a lack of nutrients.

Most often from an iodine deficiency. Yet we are told there is no problem with iodine deficiency in our populations. How could they possibly know? No one ever routinely checks iodine levels.

But if you look at the low iodine levels set by the NHS (we do it just as poorly in the U.S.) -- it's no wonder we have thyroid issues. No ones seems to take into account all the pollutants and toxins in food and water that negatively affect thyroid health.

My reply was in regard to B-6. It doesn't mean I'm promoting the use of B-6, just that B-6 is not toxic when daily values are beneath 100 mg.

The nutritional values set by governments are usually done with a number of vested interests in mind. They are blind to reality and health. Bottom line: No one will care about your health more than you do.

Trust is no longer an option for me. They've proven what they do not know.

CSmithLadd profile image
CSmithLadd

Hey there Lillie,

Found a wonderful medical journal on Candida (Thrush) and though it pertinent to put it here. It is full of information to help you understand the connection between Thrush and Hypothyroidism.

thefinchleyclinic.com/shop/...

An excerpt:

"Hypothyroidism

The functioning of the thyroid gland is one of the first activities interfered with by Candida,(9) and it has been observed that 90% of Candida victims have low thyroid function.(8) As with adrenal hormones, it appears that Candida receptor sites can bind thyroxine and render it physiologically unavailable.(8) This may help explain the common finding of a normal blood level of thyroxine in a person who is clinically very obviously hypothyroid. Moreover, candidiasis is commonly associated with zinc deficiency, and since zinc is necessary for the conversion of thyroxine to its active form, tri-iodothyronine, such a deficiency could produce symptoms of hypothyroidism (which also could occur in the presence of normal blood levels of thyroxine). (10)

Again, as with the adrenal glands, damage to the thyroid gland from Candida-induced free-radical activity and Candida-induced autoimmunity is a possibility.

Editorial Note: The article didn't mention the main botanical food supplement we use with herbs traditionally used to support the thyroid gland - Kelp Formula . There is a very strong similarity between symptoms of thyroid insufficiency and candida, primarily because the two problems frequently go hand in hand."

_______________

(My personal note: Kelp/seaweed and other forms of iodine should never be taken without adequate Selenium supplementation.)

With that said, the more we understand what is going on within our body, the more we can identify the proper treatment we need in order to reverse thyroid dysfunction and regain optimal health.

Healing Hugs!

Lillie23 profile image
Lillie23

Hi lovely people. Sorry for late reply but I've been very exhausted. Apparently I don't have diabetes but my results are as follows. I am now taking zinc, b complex, selenium, magnesium and hcl with pepsin, probiotic and about to start pre biotic.

Haemoglobin A1c level- 5% (4.0-6.3)

HbA1c- 31 mmol/mol

Serum folate- 4.4 ng/mL (3.9-26.8)

Serum iron- 9.2 umol/L (6.6-26)

Serum transferrin- 2.91 g/L (2.0-3.6)

Transferrin sat index- 14% (15-50)

Serum ferritin- 31ng/'ll

Cholesterol okay as far as I can see.

Last TFT

TSH- 0.85

T4- 7.6 (12-22)

This was done end of June and have been upped to 50mg of levo. Apparently I have been at this level for about a year. Could this be why I am still tired and can't lose weight?

Dr said ferritin nothing to worry about as iron is fine.

I look forward to your input, love Lillie x

SlowDragon profile image
SlowDragonAdministrator in reply to Lillie23

Ferritin looks far too low. Have you got the range on that?

Eating liver once a week will improve this if you don't want yet more supplements

See SeasideSusie vitamin replies about ferritin

Vitamin D needs testing

betteryou.com/vitamin-d-tes...

What about b12 - or are you on B12 injections

PPI's lower B12 mega amounts too

Lillie23 profile image
Lillie23 in reply to SlowDragon

No, that was all that was on my printout :/. So it's low enough that I need to supplement unlike what Dr said then?

I'm waiting for my vitamin D results back as they take a bit longer.

And yes I do have b12 injections :) I have come off them completely and on the HCL with pepsin which appears to be working well so far. Crazy I thought I had too much acid but I had too little! Ty for your reply :)

SlowDragon profile image
SlowDragonAdministrator in reply to Lillie23

No money in diagnosing low acid.

Masses of posts about this on here.

It's almost probably as outrageous and widespread as poor thyroid treatment.

When hypo, we can get double whammy of poor treatment for both

If you have Hashimoto's then absolutely strictly gluten free is likely to be essential

Lillie23 profile image
Lillie23 in reply to SlowDragon

Apparently not!

I went gluten free in 2015 but last few months I have relapsed as I just miss nice tasting things :( and things are cheaper even if I do get sore tummy. Think after I come back from holiday I will try and crack down again

SlowDragon profile image
SlowDragonAdministrator in reply to Lillie23

I had incentive of not being able to walk. But I really really do not miss anything containing gluten. There are lots of other options

The smell of new baked bread is still pretty tempting though! So is best avoided

But I also, as an ex-smoker, love the smell of newly lit cigarette. But I'd never have one

PaulB profile image
PaulB

Lillie

I was diagnosed with autoimmune hypothyroid in US and they tested for islet cell antibodies, ICA, as a routine, my test results were very very high. The consultant said he had seen late onset diabetes, like your auntie. Over 10 years I have slowly become diabetic as well as other endocrine issues on top of thyroid.

Get an HBA1C test, lada can sneak past gating blood glucose and challenge tests.

Just goes with the territory afraid, feel free to pm me to chat

Best

Paul

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