Long term health condition with my son 27 years old - ( diagnosis to date aspergers scoliosis of spine and mild C.P. was starved of Oxygen at birth had Hypoxia 15/20 min )
(Had Low potassium regular in blood tests and c reactive protein 3/7 ) and regular
Tachycardia and raised heart rate - all testst negative
He has started last year July 2016 where he was walking with me and lost power/feeling to left leg (dragging leg ) and weakness this has looked at by Neurologist who noted loss of sensation to left leg below knee and foot - but to dat have no diagnosos ( spine and brain scam MRI have shown no mechanical issues/physical )
He has also started with collapse floor with both legs from Knees
also complete black out and collapse past 7/8 months - again no diagnosis
He finds walking difficult and walks like shuffle/penguin
Had routine blood tests other than raised c reactive protein
He has general weakness to muscles and drooping eyelids which are hard to open
Has pain to both knees lower/mid/neck back and headaches and does not like bright light
have seen Neurologist and to date no Diagnosis and seem Rheumatologist
no diagnosis one consultant mentioned Metabolic an other Myasthenia Gravis
Spanish Consultant told me could be functional Brain Damage & or Hypopituitarism
Andersen Tawil type 1 or 2 ( needs functional MRI & spect pet scan as its his Opion which I agree with is Brain Functional problem which is causing problems )
WHAT DO YOU THINK AS I NEED TO RESOLVE AS HE GETTING A LOT WORSE AND NEED TO GET RIGHT MEDICAL TREATMENT - TO DATE NONE ON NHS
Paul - please e mail what I should do and any advise as I am quite concerned
Thanks
welcome any ideas/opinions