Could it be?: I just got back the results of a... - Thyroid UK

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Could it be?

anticloud profile image
20 Replies

I just got back the results of a thyroid ultrasound yesterday. It says I have a mild goiter with multiple nodules - solid, cystic, and mixed. The largest is 9mm. My TSH is normal.

I have been having neck pain that seems to be spreading and getting worse. I have a very sore throats for most of the day every day. It is the worst sore throat I have ever had and I have had strep. My neck stings and aches in the front. I feel like someone has their hand around my neck sometimes. It it sometimes hard to breathe and I feel like all the blood is rushing to my head. The pain, when particularly bad, will spread to the middle of my chest.

I have started getting pain in the back of my neck, upper spine and an aching in my shoulders recently. It is much worse at the end of the day and especially if I have done any amount of walking around, which I don't always do since I have severe fatigue.

I also sometimes have a cough and will cough up white phlegm with bubbles that is sometimes pinkish. My chest aches and it kind of hurts in my windpipe when I breathe.

My thyroid ultrasound was painful and I coughed up a lot of phlegm (including pink phlegm) afterwards and had more pain for the rest of the day.

Does this sound familiar to anyone? I have had so many tests and have been to so many specialists and the mild goiter is the first thing in the tests that shows anything that may point to what is wrong. I am about to go have a neck X-ray. My GI and ENT doctors do not believe I have GERD.

Any thoughts would be so helpful. I am so miserable and feel like I am just watching life go by from my couch.

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anticloud
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20 Replies
Saggyuk profile image
Saggyuk

Apologies, I'm not sure I've come across those symptoms as being typical for thyroid. Has your chest/lungs been thoroughly checked out? Has you heart been checked out? Hopefully something will show up in the xray?

TSH is not enough so you really should have T4 and T3 levels checked too with a goitre as there are some conditions which mean the TSH is useless so just to be on the safe side.

Have any blood tests come back out of range? Blood count? Has infection been ruled out etc etc?

Sorry this is so far from anything I have any knowledge on that I can't really help but do really hope you get to the bottom of it and you get better soon :-)

anticloud profile image
anticloud in reply to Saggyuk

I have also had a T3 and T4 and they are in range. My white blood has been getting lower and lower, but it still in range at 3.8. My lymphocytes are always flagged low.

anticloud profile image
anticloud in reply to Saggyuk

And I have not had my lungs checked out this year. Last year I did have periobronchial cuffing show up on my X-ray. They did a peak flow test and I was at 70 something percent. Breathing treatment did not improve.

Saggyuk profile image
Saggyuk in reply to anticloud

Sorry I just can't advise as nothing much I know about it. I doubt the thyroid/goiter has much to do with some of your symptoms although might cause some and instead think you must have a full proper look at your lungs and heart with a specialist. Phlegm with bubbles indicates coming from lungs and heart can be involved also taking into account the cuffing. Plus they need to get to the bottom of your low lymphocytes where it has continued - this wont go away until the underlying cause found.

What are your blood heamoglobin levels like? Do you have any legs swelling/water retention?

anticloud profile image
anticloud in reply to Saggyuk

Blood hemoglobin is fine. Feet swell sometimes, but not constant.

Saggyuk profile image
Saggyuk in reply to anticloud

Sorry that's all I can suggest based on very limited knowledge lol - heart and lungs so think you should get this seen to although maybe xray will help but sooner rather than later would be better :-)

Saggyuk profile image
Saggyuk

Sorry I just saw you're only having neck xray - I think you need chest xray, I think the goiter is just confusing matters maybe

anticloud profile image
anticloud in reply to Saggyuk

Thank you for taking the time to answer. 😊

Saggyuk profile image
Saggyuk in reply to anticloud

You have chest pain, pink and white frothy phlegm, struggling to breath, fatigue and abnormal lung results a year ago, plus swelling in your feet - i think these are the symptoms you should be concentrating on as indicate heart/lungs.

Plus low lymphocytes also.

Hopefully someone will get to the bottom of it soon but keep pushing them :-)

Saggyuk profile image
Saggyuk in reply to Saggyuk

Maybe also get electrolytes checked out - kidney function test (sodium/potassium) and calcium?? Might give some further clues?

anticloud profile image
anticloud in reply to Saggyuk

My calcium is consistently over 10. Usually 10.3. It has been flagged high a couple of times.

Saggyuk profile image
Saggyuk in reply to anticloud

Have they tested your PTH?

anticloud profile image
anticloud in reply to Saggyuk

No. I was assuming a parathyroid tumor would have shown on the ultrasound of my thyroid though?

Today I woke up with a hot, flushed face. Flushing is not unusual for me lately, but it has not stopped and is really severe today. I have an ice pack on my face for some relief.

Saggyuk profile image
Saggyuk in reply to anticloud

What was the range on the calcium test?

anticloud profile image
anticloud in reply to Saggyuk

It varies from 10.2 to 10.3 on the upper end (have had multiple tests this year).

Saggyuk profile image
Saggyuk in reply to anticloud

No, I meant what was the range of the test (the numbers in brackets after the results) :-)

anticloud profile image
anticloud in reply to Saggyuk

8.6-10.2 or 10.3 (I was giving you the upper range of the tests, they vary)

Saggyuk profile image
Saggyuk in reply to anticloud

oops sorry lol, I know it's unusual for calcium to go over as it's the most regulated hormone in the body but not sure if only one point over is an issue. If you take too much, your body will just deactivate Vit d and lower this to nothing so you can no longer absorb more calcium in your stomach so only becomes a problem if parathyroids have an issue and are constantly over producing??

Have a read of this site and see what you think

If you are supplementing Vit D you may want to stop if calcium is continuously high?

Either way - still push for lungs and heart to be looked at and a PTH test :-)

Saggyuk profile image
Saggyuk in reply to Saggyuk

Apologies, was i a rush earlier - meant to have put in this link to site:

parathyroid.com/high-calciu...

anticloud profile image
anticloud

Because I have been tested by different specialists and doctors.

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