Results and I'm freaking out....again! - Thyroid UK

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Results and I'm freaking out....again!

Zuzka1 profile image
20 Replies

I'm freaking out a bit. Please could I ask for some help? So I had a colonoscopy and endoscopy 3 weeks ago. I was told I would only get a call for a meeting if some thing was wrong......I just got the call and a meeting made for June 6th at 6pm.

Please could you tell me all the things they could of found? I know they tested for Celiac but what else? What are they looking for? What could they of found?

Thank you so much.

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Zuzka1 profile image
Zuzka1
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20 Replies
humanbean profile image
humanbean

Evidence of coeliac disease perhaps? Polyps? Positive test for Helicobacter Pylori? Ulcerative colitis? Crohn's Disease?

humanbean profile image
humanbean in reply to humanbean

Is trying to guess what they found actually going to help you?

Zuzka1 profile image
Zuzka1 in reply to humanbean

Ha! No. Not in the slightest. But I can't help it.

I am wondering if they test for cancer too?

ajs100uk profile image
ajs100uk in reply to Zuzka1

Generally speaking, if they had found cancer they would have had you back much earlier than 5 weeks. With both of these procedures the performing doctor can see what is going on at the time and if cancer from either end had been suspected/seen it would have been flagged up to report sooner :-)

Saggyuk profile image
Saggyuk in reply to Zuzka1

Don't quote me on it as you never know with the NHS, but I would have thought if they had found an unidentifiable lump, they would have biopsied and informed you at the time and said they would let you know results of biopsy and been a little quicker about it??? I might be wrong but I would assume the others for now. If they were testing for coeliacs, it will take them a little longer than something you can see more obviously as they have to get the sample taken under a microscope as can't be seen with the naked eye x

humanbean profile image
humanbean in reply to Zuzka1

If they found any polyps they would have removed them. Testing them for cancerous changes would be automatic.

cjrsquared profile image
cjrsquared

If they had found something cancerous you would have fallen under the 2 week rule so highly unlikely. Much more likely to be coeliac.

Zuzka1 profile image
Zuzka1

Ok I'm feeling a bit better!

After when I was in recovery she said she didn't see anything 'bad' but it was all a bit confusing as it was in French and I was just out of a general anaesthetic.

So likely options are Celiac? Chrones? Pollop?

Justiina profile image
Justiina in reply to Zuzka1

Eosinophilic inflammation which is allergy type condition, it is not serious just uncomfortable.

Justiina profile image
Justiina in reply to Justiina

It's autoimmune disease. (Couldn't edit my posting on phone)

shaws profile image
shawsAdministrator

It maybe just a normal appointment to discuss the procedure. After all it's been more than 3 weeks since you have the procedures so it may be a normal appointment just to give you an update on what they found or dididn't find.

Zuzka1 profile image
Zuzka1 in reply to shaws

She said I would only see her again if there was a problem....

I'm quite sure there is as I have so many tummy issues...just thinking the worst ☹️

shaws profile image
shawsAdministrator in reply to Zuzka1

I think that's unusual i.e only if there was a problem. Anyway, best wishes for a speedy recovery.

shaws profile image
shawsAdministrator in reply to Zuzka1

If hypo we can have stomach issues due to low stomach acid and I'll give you a couple of links which might be helpful.

scdlifestyle.com/2012/06/hy...

draxe.com/low-stomach-acid/

It is common with hypothyroidism.

SlowDragon profile image
SlowDragonAdministrator

Presumably up to endoscopy you had to remain eating gluten. You could now change to gluten free diet to see if it helps

Zuzka1 profile image
Zuzka1 in reply to SlowDragon

A while back I went GF for 3 months and I felt no difference. Mabye a little less bloated but not much....so I've been eating gluten since. I think that's going to stop tho isn't it! 😬☹️

SlowDragon profile image
SlowDragonAdministrator in reply to Zuzka1

Have you had vitamin D tested? Couldn't see it in any past posts

Zuzka1 profile image
Zuzka1 in reply to SlowDragon

Yes last sept and it was ok 😊

SlowDragon profile image
SlowDragonAdministrator in reply to Zuzka1

What's "oK"

On Levo /with thyroid issues we seem to need or use more

Level needs ideally to be at least 70 nml/L and around 100nmol/L seems better (that's UK unit measurements not USA units )

Gingergirl1948 profile image
Gingergirl1948

I had the tests too. They took biopsy and told me then it was fine.

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