Vitamin D

Hi

My daughter was diagnosed about 20 years ago with ME, she manages to work but has no social life and lives at home, so her meals are prepared and her laundry done. She normally goes straight to bed when she gets in, and eats off a tray. Her diet is awful and she is overweight considerably. I don't want to nag her re the weight as I feel she has enough on her plate as it is.

6 months ago GP told her she was Vitamin D deficient and to take (I think) 1000units/mg ? per day. She did this and then inadvertently picked up 2.5 strength and took those without realising. She had another blood test which showed her a Vitamin D levels had not improved after 6 months. GP says this is normal, because it is winter, is this correct? The reason I ask is that she was taking more than twice the dose GP said and still no improvement. She is to go back for another BT in a few months time. She has also just been out in Foluc acid as her Folate was low

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5 Replies

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  • Ninapark,

    1,000iu to 2,500iu are maintenance doses and won't raise very low vitD levels. What was your daughter's vitD level?

  • M.E. CFS and Fibromyalgia seemed to be named about 10 years after the introduction of blood tests for the thyroid gland in the late 50's/60's..

    I would ask your daughter to request doctor (or you can have them all done by a recommended lab) for a Full Thyroid Function Test. As they only take notice of the TSH and in the UK the advice is not to diagnose until the TSH is 10 whereas in other countries it is 3+.

    Ask for a full thyroid function test, TSH, T4, T3, Free T4, Free T3 and Thyroid Antibodies. The doctor should do B12, Vit D, iron, ferritin and folate.

    The blood test should be the very earliest possible, fasting (she can drink water) and if she was taking thyroid hormones you'd allow a gap of 24 hours before test and take afterwards.

    thyroiduk.org.uk/tuk/testin...

    thyroiduk.org.uk/tuk/testin...

    thyroiduk.org.uk/tuk/about_...

    thyroiduk.org.uk/tuk/testin...

    Get a print-out of the results with the ranges and put on a new post for comments.

    There must be millions of undiagnosed hypo people in the worlld.

  • Chances are she is actually hypothyroid and has lived half a life thanks to spurious ME tag

    has anyone bothered to test

    thyroid antibodies

    TSH

    freet4

    freet3

    ferritin

    folate

    b12

    vit d3

    do other family gave auto immune diseases

  • My cousin was diagnosed with ME back in the 60's and gave up her career as a Physiotherapist. When I was diagnosed with Hashimotos in 2005 she too decided to have tests and was found to have the same. A life spent being unwell as the label had been firmly stamped on her notes.

    As others have mentioned full testing is required ..... If her Folate is low then I bet her B12 will be too as they work together in the body. When B12 is below 500 it can cause neurological issues if left untreated .

  • You may struggle to get these tests done on the NHS, but you can get them done privately by mail order with a little finger prick. The ThyroidUK website tells you how.

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