TSH normal but don't feel right

Hi I am new to this page and joined today to get some ideas.

I have hypothyroidism and take 100mcg levothyroxine but I am still so tired all of the time, my eyes are puffy and even my voice sounds tired if that makes sense.

I have just had my TSH levels repeated to he told they are normal- which was a shock co soldering how rubbish I feel.

I have already seen in here some suggestions of a range of bloods and am going to call the doctors again tomorrow !

5 Replies

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  • Ria_Licence A familiar story! Always ask for a print out of your test results and make sure the reference ranges are included, usually in brackets after the result, eg

    TSH: 3.5 (0.2-4.2)

    You are legally entitled to a copy of your results although your surgery may make a small charge for printing. If you get your latest results, post them on the forum for members to comment.

    TSH alone is not enough, ideally you need

    TSH

    FT4

    FT3 (rarely done)

    And to see if you have autoimmune thyroid disease thyroid antibodies:

    Thyroid Peroxidase antibodies

    Thyroglobulin antibodies

    The NHS may do TPO but rarely do TG antibodies. You can be negative for TPO but be positive for TG, so it's a shame it's not done routinely.

    And if you can get vitamins and minerals tested then that would be very useful:

    Vit D

    B12

    Folate

    Ferritin

    When having blood drawn for a thyroid test, always book the very first appointment of the morning, fast overnight (you can have water), and leave off Levo for 24 hours. This gives the highest possible TSH which is needed when looking for an increase in dose or to avoid a reduction.

  • ditto

  • Thanks so much for your advise - I'm going to request all of those tests when I call the doctors tomorrow

    Really appreciate your reply x

  • It might help to say, "these are the tests recommended by Thyroid U.K.".

  • If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Special offer at moment

    thyroiduk.org.uk/medichecks

    Extremely common when hypo to have poor levels of vitamins, as our digestive system can be affected, especially if you have Hashimoto's

    If you have Hashimoto's then you may find adopting 100% gluten free diet may really help reduce symptoms

    Excellent free web based document-series - re-running, starting March 1st

    Masses of advice for all thyroid issues, but especially for Hashimoto's or Graves

    thethyroidsecret.com/trailer/

    chriskresser.com/the-gluten...

    hypothyroidmom.com/92-of-ha...

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