Just a moan

I contacted my dr 2 weeks ago with how Levo makes me feel strange i was told to stop taking it have a blood test and she would refer me to see an Endo which i did this was from a locum dr ,receptionist phoned and said Dr wants me to increase my dose and retake a blood test in 6 weeks obviously hadn't read my notes i explained what had been said and i needed to see him we agreed on a telephone call.

Had my call Friday he didn't want me going to long without any medication and if i hadn't heard from the Endo by this Friday to contact him ,I have been feeling so bad this week i phoned the surgery this afternoon to see if they had heard anything and it Comes to the referral didn't get sent off till yesterday and i was told if i think i will hear from them by Friday I'm rather getting my hopes up i can have a telephone call from him on Tuesday i don't know how i didn't cry I'm so angry now I've demanded a prescription so i can get the wockhardt brand I'm waiting for a phone call so i can go and collect it i will put up with the best of a bad bunch till i hear from the endo

sorry just had to moan

4 Replies

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  • If only one brand of thyroxine suits you then make sure you stick on that. If you need 75mcg & that brand only available in 50mcg tablets, take 50mcg one day and 100mcg the next. Always ask Pharmacist for same brand and check each time you pick up that it's correct before you leave shop,

    Read the last paragraph ......

    academic.oup.com/jcem/artic...

    You say in previous post that you have been taking PPI (lansoprazole) for years. We are often misdiagnosed with high acid, when if have thyroid issues it is more likely low stomach acid. Very similar symptoms, but very different treatment. If you search "low stomach acid" on here you will find masses of info

    Long term use of PPI's can cause low B12 and low magnesium.

    nhs.uk/Conditions/Anaemia-v...

    gov.uk/drug-safety-update/p...

    ask GP to check levels of vitamin d, b12, folate and ferritin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

    Also do you know if you have had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both antibodies are high this means autoimmune thyroid - called Hashimoto's the most common cause in UK of being hypo.

    If you have Hashimoto's then you may find adopting 100% gluten free diet can really help reduce symptoms, and lower antibodies slowly over time too.

    chriskresser.com/the-gluten...

    Excellent free web based document-series - re-running, starting March 1st

    Masses of advice for all thyroid issues, but especially for Hashimoto's or Graves

    thethyroidsecret.com/trailer/

  • Thank you for replying SlowDragon and sorry for taking so long to reply back i literally had crashed and burnt out thank goodness my husband has been off work this week there was a prescription waiting for me they just didn't bother to phone me back like they said they would.

    I didn't actually realise different brands effected me till a month ago with this new prescription I did make sure it was wockhardt but i still feel of balance after 40 mins of taking it

    I take ppi for a hiatus hernia I've tried coming off it as I'm certain that is what is causing my low folic acid but i am just in so much pain even if i half it ,i do wish i had never started to take it.

    I do take vit D and folic acid ,i Was taking Iron but it turned out that my iron level were at the very top end i had been bleeding for month's really heavily and had to stop it was that high i was referred to blood specialists they told the dr to monitor me as i was 0.01 under the referral cut off point and as for having my antibodies tested in the past i was told there is no point as it won't change how they treat me ,but they were going to check them but for some reason it was never put on the forms and after having 3 blood tests in one week i really couldn't be doing with a 4th as i dont work I'm not in a position to pay for it

    I've had bloods done for the menopause that is all normal

    I do keep going hypoglycaemic don't know if that is related to my adrenal glands

    Thank you again :)

  • You can do a search on here about low stomach acid & how to treat.

    Lots of posts. Apple cider vinegar (with mother) or Betain HCL and/or Slippery elm seem to give good results according to lots of postings.

    I have not had low stomach acid, but I read you have to ween off PPIs incredibly slowly

    Ask GP to test B12 as you are on PPI's.

    Taking folic acid can mask or make worse a B12 deficiency

    medscape.com/viewarticle/72...

    articles.latimes.com/2003/a...

    Really better to take folate rather than folic acid. It's not very expensive, but GP won't prescribe, you would have to buy it

    chriskresser.com/folate-vs-...

    Film about how serious very low/missed B12 deficiency can be

  • in all probability its the actual brand of levo and its fillers thats affecting you

    find out from the pharmacist what brand you have been given and ask for one with different fillers

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