inside those (((((( are my replies that myself and another lady with lyme experience have included between us, as this ignorant letter needs a reply so me and the other lyme knowledgeable lady have
included our answers to her within her writing, our answers are contained in (((((((( and ))))))), and to say that people who haev had lyme can give blood after 14 days clearance is disgraceful, the whole problem is that lyme can be laying dormant in a person and they wouldn t even know, I think JEHOVAHS witnesses havegot it totally right
Dept of Health.
: Reply to your correspondence
Our ref: ***************
Dear Mrs .
Thank you for your correspondence of 1 and 10 January to the Department of Health about Lyme disease. I have been asked to reply.
I was sorry to read of your ill health, and I appreciate your concerns about Lyme disease.
I would encourage you to
continue to discuss your problems with your doctor, who is best placed to assess your health needs.
(((( (((( ( How can he be when he's not got any information about the correct diagnosis and treatment of Lyme? or the fact that it can lay dormant for years, or the
multiple symptoms and devastation it causes, there is enough knowledge out there from Lyme but doctors and NHS are very closed off, about lyme, it is very complicated and
doctors are general practitioners only))))))) .....
If you would like to make a complaint about your treatment, you can direct your complaint about your GP to the practice manager, or make a complaint about your treatment at a hospital to the trust responsible for it provision of services.
(((((((( Making a complaint is more than we DARE do because LYME destroys ALL FUNCTIONS and Body systems and gets into the brain and nervous system, and if we complained we WOUL D HAVE no help at all with the consequences of LYME.))))))))
Details of trusts can be found by using the search function at nhs.uk.
(((((((( That is a complete waste of time - you'll just get more patronising claptrap from them. They are accountable to nobody!)))))))
More generally, the Government is committed to improving support for people suffering with Lyme disease.
((((((( (( how can they ? they haven’t a clue ,neither have GMC of how to do proper testing.))))))))
The Department has commissioned the National Institute for Health and Care Excellence to prepare national guidance for the recognition and management of Lyme disease, which will be available in 2018.
((((( (and just who are they asking for guidance on these NICE guidelines. They MUST get guidance from experts in the USA and Germany as there is not one single doctor in the UK who knows anything about it!! This is your most important question!))))))))
In addition, Public Health England has helped revise the patient advice on NHS Choices and will work with NHS colleagues to increase awareness in the medical profession and to see how access to specialist services for Lyme disease patients could be further improved.
((((( (Again they need to get guidance from people who actually know how to treat it i.e. doctors in Germany and USA. Back in the 1980s and 90s there were scare ads everywhere about AIDS. The Lyme epidemic needs similar ads. It is as dangerous if not
more so than AIDS as it is transmissable in so many ways.))))))
With regard to your concerns about Lyme disease and blood transfusions, people infected with Lyme disease may not give blood. A donor must be completely healed or recovered from any infection for at least 14 days
before giving blood.
(((((( ( This comment shows your complete ignorance and beggars belief. Lyme can hide in the body for years in 3 different forms -bacteria,biofilm and cyst - without the host knowing it's there, and then it can strike unexpectedly YEARS later. Even after a course
of antibiotics it's impossible to know if it's gone
for good. This 14 day rule is NOT ACCEPTABLE. Blood should be routinely tested before being given to another patient. How can a person know whether or not they are infected with Lyme when there's no
accurate test in the UK. I am sorry to point this out but Government and NHS and Public Health dept are
completely out of touch with knowledge regarding Lyme tests, a simple blood test is totally inadequate, cd56 cd 57 NK absolute, cd8 and cd4 cells have to be
included/ western blot is for antibodies, Q-RiBb test is for ANTIGENS, co infections go with Lyme, bartonella, babesisa, c. Difficile, and more including MOLD which as always overlooked, all cause a magnitude of
symptoms, it is a death sentence for those
not treated, it changes its DNA in the body and produces devastation. A simple blood test is NOT GOOD ENOUGH. You need to learn from Lyme literate American and german doctors. Dr Klinghardt, he has lyme himself, Dr Richard Horowitz, Dr. Armine. Robert Cowden to name a couple.)))))))
I hope this reply is helpful.
Ministerial Correspondence and Public Enquiries
Department of Health