Underactive Thyroid and Collapsing.: Hi, I've... - Thyroid UK

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Underactive Thyroid and Collapsing.

Ellouise2007 profile image
17 Replies

Hi, I've been Hypothyroid for nearly 10 years and I'm 22. I have been feeling very ill and collapsed last Friday. I'm also aneamic (my blood score was 4 last year) I have been having problems with going dizzy and light headed, tiredness, chest pain and feeling incredibly stressed after collapsing. I've also been craving sugar really badly, I used to only have 1/2 teaspoon in tea and now need 2 or I feel worse but this is becoming less effective.

Could it be that I'm diabetic or my thyroid (25 mg levothyroxine once a day) or aneamia (I'm on ferrous sulphate 3 times a day) are playing me up. I'm also losing weight despite eating loads. Waiting for a DR's appointment after A&E on Friday :-(.

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Ellouise2007
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Clutter profile image
Clutter

Ellouise2007,

Do you have your thyroid results and ranges?

Iron anaemia can cause you to faint and the symptoms you describe can certainly be due to low iron.

Craving sugar is not usually a symptom of diabetes. Symptoms include drinking excessive amounts to quench thirst and excessive urination.

Ruthi profile image
Ruthi

Ferrous sulphate is not the most effective iron supplement. Ask your doctor for ferrous fumarate. But also he needs to do comprehensive tests because its fairly unlikely to all be due to the thyroid too.

Sugar cravings are a symptom of adrenal problems, and also of systemic candida. But suddenly increased cravings suggest something else might be going on, especially given your weight loss. Do not allow the doctor to shrug and leave you to suffer. Keep being a nuisance until he refers you to someone who can do the necessary investigations.

Ellouise2007 profile image
Ellouise2007 in reply to Ruthi

Thanks Unfortunately my doctor just tells me whether I'm find or need more I don't actually see the results. I can drink loads compared to normal and basically starving most the time and have no energy.

It seems to be getting a lot worse ATM but collapsing worries me to death as I collapsed three and a half years ago and ended up in a Coma. Hoping the doctors will listen as it needs sorting. Work are terrified of something happening (I was down the horses on Friday).

greygoose profile image
greygoose in reply to Ellouise2007

Doctors don't tend to give patients their results, because they think we wouldn't understand them! You have to ask for a printout. It's your legal right to have one, under the 1998 Data Protection Act. And it's a really good thing to keep your own records. :)

SlowDragon profile image
SlowDragonAdministrator

Are you taking 25mcg Levothyroxine, which is a very small "starter" dose? Or 250mcg (25mg) which is a very large, above average dose?

What are your recent Thyroid blood test results?

Do you have any test results to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's the most common cause in UK of being hypo.

(NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.)

ALWAYS Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out. Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

If you have not been tested on all these and can not get GP to do these tests, then like many of us, you can get them done privately

thyroiduk.org.uk/tuk/testin...

Blue Horizon - Thyroid plus eleven tests all these. £99

This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

Usual advice on ALL thyroid tests, (home one or on NHS) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

If you have raised antibodies, then you have Hashimoto's - you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too. Selenium supplements can help reduce antibodies and improve conversion too

Lastly do you always take Levo on an empty stomach and then nothing apart from water for at least an hour after.

Some of us find taking Levo at bedtime more effective that taking early morning.

Ellouise2007 profile image
Ellouise2007 in reply to SlowDragon

I'll try and request the other tests. I only moved to this doctors after problems with my other one I was only diagnosed with anaemia by an external doctor when my blood score was 4.

Yeah I started taking it night several hours after tea as my anaemia medication interfered and has to be taken at tea time.

SlowDragon profile image
SlowDragonAdministrator in reply to Ellouise2007

What dose of Levo are you taking 25mcg or 25mg

There is a huge difference

Ellouise2007 profile image
Ellouise2007 in reply to SlowDragon

25 mg

SlowDragon profile image
SlowDragonAdministrator in reply to Ellouise2007

That is a high dose.

Suggest you get your recent results from GP ASAP (and previous test results too if possible)

Perhaps you have malabsorption issues - that could make absorbing Levo tricky & could be why you have low iron too

Ellouise2007 profile image
Ellouise2007 in reply to SlowDragon

I'm going to Dr tomorrow as desperate for answers.

Thanks for all help its greatly appreciated. Xxx

Ruthi profile image
Ruthi

If you are in the UK you are legally entitled to your results.

Demand a referral if your doctor won't help. Probably initially to a general physician. No-one should collapse without a definitive cause being sought.

If you drink a lot, but lose weight, then one possibility is type 1 diabetes. They must surely have tested for that? You never know nowadays because everyone is under so much pressure it is easy to miss something out.

What cause did they give for your collapse three years ago?

Ellouise2007 profile image
Ellouise2007

Not tested for diabetes. I wasn't given any answers at all 3 years ago. School even tried to help me find out but they wouldn't say anything. Its the not knowing which worries me the most. If I have loads of sugar I seem to be better but its getting well too much. I've been light headed and had problems for years but been managing without collapsing too many times. This was the eigth time I've collapsed within 2 months. :-(

Paulaw22 profile image
Paulaw22

Have you been tested for Pernicious anaemia? I've had bad thyroid issues due to PA

Ellouise2007 profile image
Ellouise2007 in reply to Paulaw22

No I've not heard much about it? How is it different from normal iron deficiency?

helvella profile image
helvellaAdministratorThyroid UK in reply to Ellouise2007

Pernicious Anaemia is nothing to do with iron

Have a look here:

pernicious-anaemia-society....

And our close neighbouring forum here:

healthunlocked.com/pasoc/about

Ellouise2007 profile image
Ellouise2007 in reply to helvella

I'll talk to the GP and see if tests prove it. One of my aunties has it and has to have injections but that's all I know.

All I'm hoping is that they find something and get some form of explanation.

helvella profile image
helvellaAdministratorThyroid UK in reply to Ellouise2007

You really would be far better off reading up thoroughly before talking to your GP. You need to know what the GP should do.

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