My wee girl❤️: Hi all so off to see the endo... - Thyroid UK

Thyroid UK

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My wee girl❤️

Mb2003 profile image
3 Replies

Hi all so off to see the endo again tomorrow with my girl,she was 13 yesterday and spent the day lying on top of her bed feeling ill such a different girl to this time last year,used to be so athletic,that's all she does these days lie on her bed in a dark room now she's saying the light is bothering her eyes,anyways if I don't get anywhere this time in respect of her being medicated I've decided I'm going to make an appointment with a private doc as I feel I am watching my daughter slowly die in front of me,can't believe a child in this country can be so ill for 8 months and there is no available treatment , it's disgraceful I'm so angry people don't realise how debilitating thyroid disease is any advice on how I should approach endo would be greatly appreciated as I'm not so clued up as all you cheers wish me luck xxx

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Mb2003
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3 Replies
shaws profile image
shawsAdministrator

I understand despite your daughter's high antibodies she remains unmedicated.

email louise.roberts@thyroiduk.org.uk and ask for a copy of Dr Toft's Pulse Online article. Highlight where he says that if antibodies are present we should be prescribed levothyroxine. He was president of the British Thyroid Association.

I feel for your child as I know what it's like to be undiagnosed/unmedicated.

Mb2003 profile image
Mb2003 in reply to shaws

Thanks I will do that right now x

silverfox7 profile image
silverfox7

Make sure your doctors is aware that children have different ranges to us grown ups. They are still growing so need extra help to carry that out.

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