I was diagnosed with Hashimoto's Hypothyroidism in 2015, I think I was probably Hypo some years before this and I think the Hashimoto's may have been affecting me for decades.
I had to ask for all tests (thyroid function tests, vitamin levels, antibodies test) myself. Struggled to get Levo increases. Was not listened to about how awful I was feeling. I had to really push for an endo appointment. First endo refused to prescribe T3, had to find another one who would myself (thanks to help from this forum).
Now I am on T3 and feeling much better, the depression I have had all my life has lifted and I'm less tired. It is still a work in progress, but I finally feel an improvement after struggling for so many years. And I am truly happy about that.
But I am also furious. My whole life I have been depressed and tired, unable to have any sort of normal life. I am angry at the waste.
I wish I had been tested for antibodies when I was first given a thyroid test, I feel these things should go together.
I wish I could have begun treatment much earlier. I wish when that treatment didn't work I was listened to. I wish T3 was readily prescribed.
Now, I love the NHS and am so, so grateful for it, I would be dead many times over without it. And they have diagnosed my issue and treated it. However, I just feel there is a lot lacking in the diagnosis and treatment of Hashimoto's and Hypothyroidism.
So, apart from this being a big rant, is there anything I can do to help with these things, petitions I can sign, campaigns I can get involved in, that sort of thing?
Sorry for the rant and thanks for reading xx