Update: Hi all,so saw endo on Monday she... - Thyroid UK

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Mb2003 profile image
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Hi all,so saw endo on Monday she confirmed my daughter definitely has autoimmune,reckons she has been overactive, but is now flipping between over and under and says her thyroid function is still 'normal' but expects that it will flip to underactive soon,,and she can then prescribe meds.I questioned what happens if it takes years for her blood to come into range and she says she doesn't see that happening,we'll see,have asked for copies of her blood results at gp but I know her antibodies are 988,I don't know if that's high or what it means so I need to get learning.I feel a bit better,got a better idea of what's going on,endo was very nice and felt she listened to us,and is seeing her in a month,she also said 'that's only her blood we don't know what's happening in the tissue yet',does that mean they may do more tests on the thyroid itself?

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Clutter profile image
Clutter

Mb2003,

Thyroid antibodies 988 is high. Your daughter is positive for autoimmune thyroid disease (Hashimoto's) which causes 90% of hypothyroidism. In the early days Hashimoto's can cause transient hyperthyroidism because when lymphocytes infiltrate the thyroid gland cells are destroyed and hormone is dumped into the bloodstream as they die off. Eventually cell destruction shrinks the thyroid gland which is then unable to produce sufficient thyroid hormone causing hypothyroidism.

There is no cure for Hashimoto's. Treatment is for the low thyroid levels it eventually causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Mb2003 profile image
Mb2003 in reply to Clutter

Thanks for you're reply been reading stuff about gluten free will need to give it a go though I think her being 12 I might get some resistance x

Clutter profile image
Clutter in reply to Mb2003

Mb2003,

It might delay progression to hypothyroidism where she has to take daily Levothyroxine if she adopts g-f. It can be helpful in reducing weight too.

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