Hi I'm new here in 56 and I have hypothyroidism was severly eneamic be b12 deficient..I felt I was dying so exausted ..I'm currently taking levo 75gm daily and injecting b12 weekly doing iron tablets x3 daily's been a slow process in feeling better .and I tire very easily still ..I have good day nd bad ..I don't think people understand how it effects your life I felt so depressed at one point but that he improved ..look foward to hearing fell your stories and welcomed advise


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14 Replies

  • Welcome to the forum, Kimbkr. Sorry you need to be here!

    How long have you been on 75 mcg levo? It's a very small dose. Does your doctor test thyroid hormones, or just TSH? Do you get copies of your results? :)

  • Went to Doctors yesterday she had upped my thyroxine to 100 as I've been getting worse ..I will ask for results next week ..she sugested antidepressants but I said no it's all down to my thyroid and my levels need sorting b12 /iron ..just TSH level ..she said my level is the same as when I first started and it should have gone up ...Yes someone on thyroid site looked at one of my blood test results and said I have hashimotos. .I don't know how they know that ..x

  • .just TSH level ..she said my level is the same as when I first started and it should have gone up

    Sorry, but that makes no sense. If your TSH level is the same now as it was when you were first treated, then your TSH must be far too high, and you must be under-medicated.

    Someone who is hypothyroid and untreated has a high TSH. Treatment should reduce the TSH, it shouldn't make the TSH go up. If your TSH is rising then your doctor should keep on increasing your dose by 25mcg Levo every 6 - 8 weeks until your TSH has reduced to (approx) 1.0 or less.

  • Yes she has just upped my dose..I've not got the confidence to keep questioning as yet hope I can pluck up the courage x

  • Well, your life does rather depend on it, because it doesn't sound as if your doctor know much about thyroid if she thinks your TSH should go up!

  • Have you had vitamin D checked? Common to be low & it can cause significant issues

    What about folate levels? Been checked? Recommended we take vitamin B complex as well when on B12. One that contains folate rather than folic acid

    Make sure you always get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out.

    Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

    Do you have Hashimoto's? Been tested for thyroid antibodies?

    If you have Hashimoto's then going gluten free might help reduce your antibodies and improve symptoms. Selenium supplements can help too.

  • Thankyou for that advise x

  • If you can not get GP to do these tests, then like many of us, you can get them done privately

    Blue Horizon - Thyroid plus eleven tests all these. (£99)

    This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

    Usual advice on ALL thyroid tests, (home one or on NHSu) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

  • Thankyou will do this best get saved up x

  • I saw your post today re Armour

    Further to my earlier replies to you

    Did you get your vitamin D level checked and supplement so result is about 100 nml/L

    Also have you added B complex to keep your B12 injections in balance?

    Hashimotos- a very high % of us find gluten free gives significant improvement - about 85% of us according to The Thyroid Pharmacist - very good website for anyone with Hashimotos

    We need vitamins sorted for Levo or Armour to work well

  • Also suggest you read SeasideSusie excellent replies to this post

  • I'm taking folic acid .5mg daily iron daily.b12 injections every month ..multi vitamins.. vitamin d no I don't isn't that the sun ? Thanks for your help x

  • With thyroid issues we very commonly need high vitamin D, and can't get enough from sun even if living somewhere hot & sunny, let alone in Uk.

    You can get vitamin D postal test, if GP won't but ask - they should as you have thyroid problems & it's known they are connected - £28

    we generally find vitamin D level needs to be towards top of range - about 100nml/L and definitely more than 70. Don't supplement without testing, & retest after 6 months especially if on high dose.

    Folic acid some find difficult to process. Folate is better form and as you have B12 injections you should take good vitamin B complex- E.g. Jarrows B right. Or Thorne. Both these contain folate, not folic acid

    As you have Hashimoto's then gluten is very likely to be causing problems. 85% find noticeable improvement gluten free, for lots of us it is very significant improvement

    Most multivitamins are complete waste of time & money. With Hashimoto's we should never take anything with iodine in. It makes Hashimoto's worse.

    If you read lots of posts on here .....masses of info every day about getting the four main vitamins at good levels. Vitamin D, B12, folate & ferritin

    Also best to avoid absolutely all soya including soya lecithin and change toothpaste to fluoride free.

  • This is so helpful thankyou cx

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