I was thinking this morning about my crap health and all the referrals and non or nearly had' diagnosis but no actual diagnosis even tho I have been so ill. I am a tough old bird and been thru a lot a heck of a lot trauma in my life, with a dreadful marriage, sons
being ill, finance, nearly homeless, kids suffering, I could go on there is much much morebut all thru this I battled on,---- right-- I eventually got very very ill-- and spent thousand s that I didn't have on credit cards desperate for answers.
i was in hospital in 2007 aftercollapsing in high street and then collapsed again in the hospital, but before i was admitted i was in the high street and my gp round the corner, i do not recall how i hgot there but i fell on her floor, the room spun and i saw white noise boy did i feel ill, my whole body was shaking and she shouted--
don't faint in here we cant cope with it you are feelin g ill because eyou are not taking your antidepresants ---- i was given a glass of water and sent home by taxi.
the taxi driver said that surgery is rubbish.. a couple of days later i was admittd in hosptail, after picked up by ambulance in high street. the consultant i saw took a load of questions and said your body is totally burned out, it cant cope with anything else-- well that is adrenal burnout but he didn't document it!--- why????
thatnightin hospital i wa s vominting for England which is the final sign of adrenal malfunction... i felt so terribly ill, i didn t have the strength to sit up or hold a teaspoon, but i was put ina wheel cchair after a week and sent down to the psychiatrist!--- all my symptoms of what i had been suffering were acute addisons
crisis- no one thought to do a cortisol test- i had no diagnosis except on my hospital form it wa s Adrenaline problems and nothing else. except a VIRUS, well adrenaline kicks in when cortisol is non existant to save a life.
i was discharged aftera week with a diagnosis of a VIRUS--- i never really recoverd and in 2010 my body went haywire, nervous syetm was like an electric circuit gone wrong- throbbingdown spine and in limbs, hot at night and drenched in sweat- felt faint lost a stone in weeks, couldn't eat heartbeat shot up 120 beats a minute dzzy , all symptoms of acute addisons again..
isaw a prof of neuro endocrine who didn't listen and said i wa ssuffering chronic depression and i couldn't have any treatmen til i saw a psychiatrist, my friend had to
half carry me home from London on train, i was so ill i had to live withmyfriend for 6 weeks, myhomeopath tried to help, it was worse than 2007-- i wrote death notes telling the boys how much i loved them and where to cancel direct debits etc, out for my boys,- i shook from head to foot and didn't know who i was or where i was , i felt like i was slowly dying a painful death, i felt like i ws being poisoned, another friend wa s goingto drive me to dr skinner but my shit doctor cancelled the appt she said he
wasn't an endo-- i bet they are all glad he is dead now rest his beautiful soul!
adrenaline was rife, i couldn't stop shaking, my son said he felt the tremors when he put his arms round me,, i had a bad time, 2010 to 2015, i am still not right not bya
longshot but those first 3 years were hell, i spent thousands and each time i went somewhere i took the previosu consultant letters.. to HELP i thought-- the only one
who had touched on what happened was a neuro from London who listened to my story and said - those episodes you describe are those of an addisons crisis!
i was gobsmacked iasked him to writ e that down on a reprt, - he said hecouldn tas he wasn't an endocrine and had to democratically writei n cinic letter -- i don't know how well her adrenals have been investigated!...... i though t i had struck gold- he also said he
thought i had pots, tha t is an endocrine disorder at the end of the day as everything is haywire-but hey- there specific tests for blood pressre and i wasn't tested properly on two accounts- the first one under that doctor he said, yes i think you have pots by this blood pressure result-- ordered more tests an dtilt table an d that showed up
severe blood pooling and vasodepressor autonmonic mediated sycnopy, but my blood pressure wasn tdone correctly.
i wrot eto the doctor and hegot me back and they still didn't do it properly-- so instead of my heart beats leapingup to 30 beats a minute as i stand, i wa s not allowed to stand the full 10mins so the hearts beats went to 26, so NO DIAGNOSIS,
so again the clinic nurse said to me- it is psychosomatic- i said HOW DARE you say that, you have no idea what i have suffered these last 3 years that wa s2013-- but it went on til 2015 and I am still throbbing everywhere an d tingling and body l ike concrete etc etc, I wonder if I willever be right, -I take clincic reports to the next consultant and now thinking-- i should NOT
have done that-- i think they read them and do not want to actually give a diagnosis a s the previous one hasn't said the right thing-- so 'stick together chaps... sh e is just a mental case-- i would say, to everything think befor eyou take your previous clinic letters to ' help' them out it doesn't work...--- don't take the previous clinic letters. hope you can read the words cant be arsed to go and correct them.. and looking at old reports i have just seen a referral to the bladder clinic in 2007 with a list of my other conditions---
with the dates on there. including 1996 NEUROTIC DISORDER!
what bloody cheek--- this time iwa sgoing thru a bad time at home with ex, had been awfu l trauma for years but also my mum died. and i have that detrimental crp put onmy records...