I had one NHS doctor refused tsh/t3/t4 so I went to a new surgery and the new doctor did a full test, has this happened to you?

A doctor from the city area who was extremely rude shouting at me and telling me all my symptoms is all in my head. She even tried to make out I was mental, I switched surgery and my new doctor discovered my T4 levels was extremely low below 01. I'm being referred to a specialist because the medication is not working. I am so sad and disappointed in that doctor for wasting so many months when all she had to do was write on a bit of paper and send my results off.

It seems the nhs doctors doesn't care because they don't have a thyroid disease.

I've been through so much which I'll post about soon, I just wanted to know if there's anyone out there that has been humiliated, bullied and treated badly by angry NHS doctors and nurses?

I even received rude remarks from receptionist and social services members. The mental health department are just as bad they only want to full you up on lilly tablets which destroys the thyroid more.

It just seems having a thyroid disease is not only painful but makes us an easy target for cowards.

38 Replies

  • I think the majority of people have experienced similar treatment at some point. But, it's not just the NHS. I live in France and have had a lot of similar treatment. And not just where my thyroid was concerned, either! It seems a lot of doctors and nurses just want to prove you're crazy, no matter what's really wrong with you. I think it might have something to do with the superiority complexs they all seem to have.

  • Middle-aged women + overweight + mental health issues (the latter often as a consequence of being hypo) = ugly treatment. (PS. I don't mean you are any or all of these things, just that these all intersect and are subject to unkindness from doctors.)

    My partner has never once been spoken to about his weight or his health problems being in his head.

    I was told by a leading dermatologist that my lingering discomfort at a vulvar biopsy site was due to having suffered (in the past, over than 10yrs ago) w anxiety and depression as people w these problems suffer more pain after biopsies. She didn't look at the incision which was stitched too tightly resulting in an adhesion. The mind boggles.

    Hope the new doctor continues to be good for you.

  • You may wish to complain to the Practice Manager. You are unlikely to be the only patient treated so appallingly. And yes, it's' happened to me.

  • Well, if people actually have mental health problems, they shouldn't be treated this way either! Grrrrrrrrrrrrrrrr. ...!

  • I agree you need to make a complaint - it's not right how you have been treated!

    I hope your new doctor helps you.

  • Silly question but is there a link to NHS doctors in the country that DO test for everything concerning with Thyroid issues? As I am going to try and get my Dr today to test for Adrenals, FreeT3, Ferratin etc etc but whether he will I dont know....so if there was a Dr in Kent that would...I would happily go to him! Do we have a list of NHS Drs that do wish to help?

  • You have my sympathy. We seem to have GPs who hate both their jobs and their patients in equal measure. Don't get me started on their sense of entitlement ... to be rude, this must be learnt either in school or medical college as so many are afflicted.

    Recently I was subjected to casual sexism, if I'd had a husband or partner with me then the GP wouldn't have said what he did.

    Whilst we all need to complain about such unacceptable behaviour, if nothing else it ends up on their personnel file and would need to be explained at their 5 year revalidation. The Regulator defends GPs, after all GPs pay a yearly fee to them for 'training purposes'.

    I strongly suspect there is an acronym on my medical records which means that I'm treated in an appalling manner and everything I say is shut down by little upstarts who just have to try to inflict their perceived 'superiority' on me.

    Be strong and do what's right for you.

  • I carry a small recording dongle with me and let them know I will be recording any conversations. (not every time but when I suspect the need to). x

  • Mango - curious about this, what is it and have you encountered any objections? Thanks!

  • amazon.co.uk/Voice-Best-Rec...

    This is a brilliant little device that looks just like an ordinary dongle. I got it when on offer for a £6.00 but it's back to normal price now. To charge it, just plug into laptop. x

  • Really helpful Mango, thank you!

  • My pleasure x

  • I haven't had any objections so far. x

  • Ooh, I would be interested too, just like cinnamon_girl .

    What is it, how easy is it to conceal, how much does it cost, and how long can it record for?

  • amazon.co.uk/Voice-Best-Rec...

    I totally recommend it. Also useful to remind yourself what is being said during appointments. x

  • Thanks, Mango_555.

  • My pleasure..every little helps when dealing with the medical profession. I do state that I am using this to help me remember what you have told me Doctor. x

  • Ditto

  • By the way, you don't need to inform a medical practitioner that you are recording a consultation. I checked this out - since a consultation is for your benefit, or something (cannot recall the exact legal terminology) then you have the right to record without either permission or notification. See for yourself.

  • Thanks, I don't always inform them but appreciate your input.

  • I should have known you were sussed - nice one Mango.

  • A girl as to do what a girl as to do. lol x Sometimes though when I have told them, I seem to get a much better informed appointment...could be super stardom edging them on! x They ain't the only ones with Dictaphones ha ha x

  • Bl***y brilliant!

  • Report to health watch via citizens advice please

  • Went to a Workshop run by local HealthWatch. They have said that not enough people know about them and they would like more places to give out information.

  • I agree with Musicmonkey. No one should treat you like this and I would be putting in a complaint to the Practice Manager. It makes me angry that people are treated this way.

  • I wrote a formal letter of complaint to a practice manager in a previous GP practice - who was a woman of my age and stage and was frankly, just appallingly unprofessional. I substantiated every point I made with facts about my past medical history and pointed out that even if I truly did have "health related anxiety" as she had stated on my notes - then she should still have been respectful regardless.

    I gave a copy of this letter to my new practice and asked for it to be kept next to the offending comment on my notes please. I received a letter of apology from the pm saying that the letter would have to be part of the GP's ongoing reflective practice for all of this year. Yay!

    The next young GP was terribly respectful and helped me to get my new diagnosis of Sjogrens (most prevalent in women of a certain age - so a very neglected disease). So when I left her practice I did the opposite and wrote a letter thanking her for everything and giving her an update in case it helps her with future patient referrals. I sent a copy to the PM also. I think this continuity is important and it felt good to also give praise where praise is due.

  • And yet another Doctor who should not sit down whilst they are talking (or shouting).. It is impossible to hear any Doctor who talks out of their backsides whilst they are sitting on them!!!

  • My last gp only tested for TSH and T4. after 4 months on levo she said everything was fine and that i was to come off levo. Being a nurse myself i knew this wasnt right but she wouldnt listen. I too was put under mental health luckily they did listen and agreed i had a thyroid problem. I even ended up in A and E after the levo was stopped. I changed drs and hashimotos was diagnosed by a young student doctor.

  • I had a T shirt made with "I am a martyr to my hormones" on the front, and wore it to the GP - he started listening to me.

    I wrote "I am up here" with an arrow pointing to my head when I was pregnant as the GP only addressed the bump - he did glance up!

    Sometimes humour has a way of making the GPs ears start to work, and of course they cannot say you are depressed if you giggle!

  • Oooooh how brilliant :-) well done you.

  • Yes took years to get a diagnosis and I was told many a times it was in my head and tried giving me antidepressants.

    I was referred last year to a rheumatologist because my bloods were normal but I still had symptoms she was convinced it was fibromyalgia but I was told it is chronic fatigue syndrome he was horrible had me sobbing and told me you do not have aches and pains with under active thyroid in fact told me I don't have an under actively thyroid it's called hypothyroidism (shouted it at me) that was the first I had heard it called that the dr had always called it UAT but I was treated appalling this was from a consultant at a hospital but it's got to the stage I really hate going to my dr feel I'm wasting their time .

  • You know your own body best. This is a wonderful site for information and support. If you have unexplained symptoms, they need to be explained. You are not wasting your doctor's time. By looking after yourself, you will in fact be saving him/her time and expense.

    May I suggest you learn as much as you can. Visit Thyroid UK website, copy their list of symptoms. Tick the ones that apply to you. Make notes before you see your Dr and take them, and the list, with you. Have someone supportive with you...and ask the questions you need answering.

    It unfortunately seems a battle familiar to many. I wish you well....in every sense.

  • I just wanted to know if there's anyone out there that has been humiliated, bullied and treated badly by angry NHS doctors and nurses?

    I've been in the situation you describe many, many times. In the end I got lucky. I paid £50 for a full copy of my GP record in all formats, and lo and behold, many of the things I'd been telling them about my past medical history were referred to in letters. So I copied the letters, wrote a covering letter, and asked for my summary record to be updated to include the information in the letters.

    It has made a difference to my treatment. I think it will wear off eventually. I don't think doctors can stay polite for more than 5 minutes at a time, but I still have my proof.

  • I see by your profile that you are new to this site, which makes your asking the wrong question understandable. The correct question, as you will learn over time is, 'does anyone out there have a really good experience with their doctor?'

    Perhaps you detect a note of cynicism? Joking aside, your experience is disgusting. But it is very hard and anxiety provoking to complain. You have our sympathy, and understanding.

  • Im so sorry you have been treated so badly. I have been through exactly the same as yourself. I also took 3 years doing a counselling course just to find out a solution to what was wrong with the counsellor i was sent to by my doctor who said i was depressed and stressed.. which i wasnt. I went to the counsellor who was frustrated at not finding out ehat was wrong with me ...her words were you do my head in... ( basically i was undiagnosed with parathyroud problems but non of my doctors had even heard of parathyroid or how to diagnose it till i tracked it down on internet my symptoms and printed them out and took them to a doctor who looked them up on her mobile and phoned hospital.) I later had operation which unfortunately has left me hypothyroid for life.

    The point im making is we get treated really badly by doctors etc... no one teaches them obviously with our problems. A plain blood test and proper medication would prevent loads of misery and wasted suffering by us. Its as if they like to keep us ill that way they make money from us purchasing medication. Thousands of pounds are spent on finding cures and medication to help with illnesses but then the minute a person needs it its out priced and then not used. Wierd cruel and disgusting.

    I am sick of the way i have been treated... no explenations just a fob off with your depressed or stressed. Dont you think its easy for them to pass the buck so you jusy go away because they cant be bothered.

    The medical proffession need teaching about thyroid deseases and the true facts.. symptoms and numbers not numbers alone.

  • Do complain to the Practice Manager, insist that a copy is kept on the GP's personnel file and make sure you keep a copy of all paperwork on your own files.

    There is currently a mantra in the NHS, and I guess has been for some time, usually somewhere on a wall/noticeboard in most practices and some hospital departments, essentially stating something to the effect that disrespectful patients will not be tolerated.

    Surely this should be a dual process - I was always under the illusion that patients should be treated with dignity and respect at all times.

    I too have had difficulties with medical personnel in the past just trying to get proper blood tests done - I have Hashimotos. In the end I resorted to using the private sector for management of my condition and was utterly horrified by the arrogantly dismissive attitude of a certain endocrinologist I initially saw. I now go elsewhere, out of area, for management of my condition which has not been without its ups and downs owing to the nature of the illness. Thankfully, I now appear to be properly cared for, am feeling very well, my condition managed well with regular check-ups with someone I can relate to and my current GP practice is usually OK and sometimes even very good, depending on which doctor I see and how experienced they seem to be on thyroid conditions, especially Hashimotos.

    I have unfortunately experienced when my GP has requested that TSH, T3 and T4 are tested, the local hospital would only test for TSH! This was really very annoying and frankly disrespectful and was partly why I decided to see someone who I hoped knew what they were doing.

    I understand from speaking to my current endocrinologist that medical training for doctors on thyroid conditions can vary considerably and often does not entail much. Surely there should be greater training in understanding thyroid diseases especially as so many people are affected by them. Given that a fully functioning thyroid is essential for a healthy life, I would have thought that medical practitioners should be more au fait with what can go wrong.

    Do assert yourself and don't stand for any nonsense. One thing I have learned down the years is to take a list of questions I have for the gp/consultant with me to each and every appointment. I take two copies - one which I give to them and one which I keep myself so that we can both keep on track of what is being discussed.

    Good luck.

  • I was mis-diagnosed for two years before being told I was "borderline"hypo with a TSH of 4.8 and tons of symptoms the GP put down to my age, my job, the travelling I did,and the menopause.

    I took too low a dose of Levothyroxine for 7 years, based on the TSH results never eliminating all my symptoms,and gained two stone in weight etc.I felt desperate so got on this great site and educated myself...and my GP.I told her I wanted to see an Endocrinologist, and was prepared to pay.She prescribed me NDT and I started to take supplements as advised on here.I am seeing a Naturopath now to sort out my digestive issues as I was eventually diagnosed with Hashis.My GP now does a full blood panel twice a year including T3 ,T4,Ferritin,Folate,B12,D, and thanked me recently for helping her understand the thyroid better.........miracle! She wants to borrow a book on it.

    Never give up.Don't settle for rudeness and apathy from your GP.We all deserve to be listened to and treated with respect.It's hard to be assertive when we feel crap,but there is no other way.

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