I have recently taken part in a severely affected CFS/ME research project that entailed a home visit to take blood and detailed medical questionnaire. Unfortunately the blood tests included all my thyroid tests although I had already taken my dose that day - I assumed that as it was a research project and that as I had not given them consent to communicate with my GP then they would contact me if a result were a cause for alarm. How wrong was I: they gave all the results to my GP who has taken the time to write to me lowering my levo does without even talking to me. Sod discussion of the clinical feature and symptoms obviously the blood test of TSH no doubt is all that they require. I am currently waiting to resolve an issue before doing an NDT trial and now have the added stress of a levo dose reduction to deal with and a doctor that was just waiting for the ammunition. I was waging the battle with research and info letting her know the real facts rather than the dogma. And now all is for nothing. SO ANGRY!! So beware researchers.
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