Thyroid UK

Mental support, please

It's been 3 weeks since my TSH came back 0.01 and nodules were found in the thyroid gland, and I still have no clue what's going on or a treatment plan. I have stumped the docs. T3, T4, free and total were "normal" and antibodies for hashimotos and graves were negative. Last Monday my doctor ordered a bunch of labs for autoimmune diseases, like celiac (my son has), lupus, rheumatoid arthritis, etc. and going absolutely nuts waiting for the results. Have a thyroid uptake scan scheduled for Wednesday, then a biopsy to follow. I just want to know what's wrong with me so I can start to do something to feel better. This is awful and scary and not knowing is torture.

In the mean time, I have a short temper (my poor son), anxiety, all over joint pain that's worse in my hands, feet, and hips, dizziness, nausea, migraines, weight gain, brain fog, light sensitivity, insomnia, acid reflux, and I'm sure more symptoms I can think of at the moment.

In another post I made, pituitary was mentioned and my doc said she'd consider a mri depending on the thyroid results.

Any ideas or advice for what I should do or think or ask the doc about?

Thanks for reading!

4 Replies

Sounds as if your doctor is well clued up. I wish mine was.


Afraid she's not, most of what she's done or is doing is at my request from what people have mentioned on here or from a naturopathic endocrine doctor I private paid to see. That's good that she sounds clued up though, makes me feel better that what's done is what needs to be. Thank you.



It sounds like your GP is being very proactive in investigating what's wrong. Treatment will depend on the outcome of the results. There's really nothing to do until the results are in.


I'm relieved she sounds proactive. It's all been at my request and I'm making her and the girls in the office a bit mad, but I have to be my own advocate. Guess I should cut her some slack since she is willing to do what I suggest, she could say no. Thank you, I will try to be a bit more patient.


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