Hi. Im jo. Bit baffled on symptoms and docs res... - Thyroid UK

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Hi. Im jo. Bit baffled on symptoms and docs results.

Jojosmiley profile image
16 Replies

Hi..im jo.

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Jojosmiley profile image
Jojosmiley
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16 Replies
puncturedbicycle profile image
puncturedbicycle

Welcome! What's baffling you? It can be a bit confusing at first all this thyroid stuff.

Jojosmiley profile image
Jojosmiley in reply topuncturedbicycle

For the last two years I was on low dose of thyroxine., due to sleeping 10_12 hours and not losing weight. Recently my doctor did lots of bloods tests, due to some other aliments, such as nerves, body temp, plus my heart rate was quite rapid, He said for I didn't need to be thyroxine, so I came off it two months ago.. I had test relating to hormone, thyroid, celiac. However he has said all test are clear. Baffled ad I still have symptoms, but now psoriasis has kicked in three weeks ago. Through out the years I've had ovary issues, one been removed, face swells when I eat wheat,plus foul bowl problems, fertility issues, hands shake. As my doc has said my blood are clear can anyone give me advice where to go from here.

Jazzw profile image
Jazzw in reply toJojosmiley

Gluten intolerance can exist without a positive diagnosis of Coeliac. If I inadvertently eat gluten, the first thing that happens is that my lips tingle. A few hours later I get really emotional. A few hours after that I lose the ability to string a coherent sentence together (even though I'm clear in my head what I want to say!) and then a couple of hours after that, the toilet and I get very well acquainted... But I don't have Coeliac disease. Go figure.

So. First thing to know is that "the test was negative" means nothing. If your face swells when you eat wheat, that's not good - I assume you avoid wheat now?!

Second - your doctor's basing his decision to not put you back on levothyroxine on TSH most likely. But if your FT3 and FT4 are low in range (or even under range) you badly need that levo. Chances are though he won't even have tested them, just quietly congratulated himself for getting someone off a repeat prescription. It's not his fault - it's what they're taught in medical school.

I look forward to seeing your next post. Stick with us - we'll do our very best to help you get well x

Jojosmiley profile image
Jojosmiley in reply toJazzw

That's really useful. I've was fobbed off years, when I knew something was wrong, years later the symptoms I'd been having were being caused by a Dermoid. Size of dew melon at this point, which is why they removed the ovary.

Jazzw profile image
Jazzw

Hi Jo. Lots of people will be happy to have a look if you'd like to post them here. If you have a copy you could try taking a picture of your results. You'd need to edit your original post to do that - look for the little arrow at the bottom of your post. If you click it, you'll see options for editing, deleting and reporting. If you edit, the option to add a photo should pop up.

Jojosmiley profile image
Jojosmiley in reply toJazzw

I haven't got the results. I just had a phone from practice, saying everything normal. I am allowed to request my results?

SeasideSusie profile image
SeasideSusieRemembering in reply toJojosmiley

Hi Jojosmiley The answer is yes. As you are in the UK, the Data Protection Act legally entitles you to have your results. Just pop along to the surgery and ask for a print out. Make sure you have the reference ranges included for every test done, they're usually at the side of the result, sometimes in brackets. Some surgeries make a small charge to cover printing. If you are asked why you want them, just reply they're for your own records, no other explanation needed so don't feel pressured.

Once you've got your tests, make a new thread, include a clear photo or list the results with reference ranges. Also list any symptoms you have and ask any questions you want to. Members will be happy to comment and make suggestions where necessary.

Jojosmiley profile image
Jojosmiley in reply toSeasideSusie

That's great. Thank you for help. I'll contact them tomorrow and get up loaded.

Jazzw profile image
Jazzw in reply toJojosmiley

Yes you are. You could ask for a print out, for which there may be a small fee. Or you can just ask to have a look at the screen and write them down yourself.

Incidentally, we often find here that normal doesn't mean what you think it should. Normal tends to be an opinion, rather than an absolute statement of fact. :)

greygoose profile image
greygoose in reply toJojosmiley

It is your legal right to have a print-out of YOUR results, under the Data Protection Act.

I'm just wondering if you've had your antibodies tested... What you're saying sounds like it could be autoimmune thyroiditis. But, one thing at a time, get hold of your results, with the ranges, and post them on here. Let's see exactly what was tested, and what the results were. :)

Jojosmiley profile image
Jojosmiley

Thank you everyone for your help. I'll get my results and get uploaded on here.

Gambit62 profile image
Gambit62

B12 deficiency would be another possible explanation for your symptoms - people vary a lot in how much B12 they need and significant numbers of people can be very deficient well into the range where most people are okay - the normal ranage - but GPs aren't aware of this - another reason for making sure that you get a copy of your results.

Jojosmiley profile image
Jojosmiley in reply toGambit62

Hi...thank you. I did take multi b vitamins, for a number of months, as I was made aware nerves are related b12. However, they didn't seem to do much, my hands still shaked.plus they seemed to go through my system very quickly. For example, after 10 minutes,my urine was bright yellow, which I know they can do this but thought that would occur a number of hours later. Hope that makes sense.

Gambit62 profile image
Gambit62 in reply toJojosmiley

what dose of B12 were you taking - if you have an absorption problem then you would need to be taking really high doses for it to have any effect - 1000mcg a day +

urine going bright yellow can happen with a number of vitamins- particularly vitamin A - but shouldn't happen with B12.

Jojosmiley profile image
Jojosmiley in reply toGambit62

Health each vitamin b complex. Thank you to your information I seem to be uncovering lots more and getting to know more information.

Bluemaxx profile image
Bluemaxx

Hi - apparently people with hypothyroidism have trouble absorbing vitamins and minerals which is why Members here suggest that you supplement B12 & D (with Vitamin K) with sublingual tablets (that melt under your tongue and go straight into your bloodstream) or drops.

You can buy Jarrows sublingual B12 (Methylcobalamin) and Vitamin D3 with K2 DROPS (Thornes or Nutri Advanced) on Amazon.

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