"Many struggle with pain and illness despite years of treatment. Could healing involve more than physical/medical interventions?
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A very big sell. An affiliate sign up that offers a whopping 50% to those who spam sites with the affiliate links. It makes the whole thing look exploitative.
Not for one moment are you, HEA72, exploiting the affiliate links (your links are nice and "clean").
Oh, no, just seen what you said, how disappointing!! I thought for some time that my symptoms are psychosomatic, I can't believe they are exploiting people in pain! Very sad!
If you are hypo then your symptoms are due to low T3. Nothing to do with being psychosomatic. That's what doctors want us to believe so that they don't have to bother treating us! Please don't buy into that cope out.
I'm hypo but I'm on T3 and NDT and my T3 levels have been in the top 1/3 for the last 3 years. However, I'm very very achy, muzzy headed and a bit flabby... No doctor ever told me it's psychosomatic, it's just my idea.
If your thyroid hormones are in balance, you may have another issue at mitochondrial level. NHS doctors don't investigate mitochondrial function in the respect for ATP production. T3 is only one element of driving the energy cycle within the mitochondria. It sounds like you have classic low energy output from your mitochondria but there may be other factors other than T3 now that are contributing to that e.g. toxins - heavy metals, chemicals, also infections, unaddressed nutritional deficiencies, even structural problems can affect mito function. Yes (from my personal experience) emotions can play their part too in the whole picture. It's always good (in my experience) to get the biochemistry covered first, then you're in a better place to look at any emotional issues that may be affecting healing too.
From my personal experience so far, it seems healing comes from a multi-pronged approach, because the body's health is reflected by balance between biochemistry, structure and emotions.
If you're wanting to investigate this further, let me know and I can give you info that may be of some help.
This is what's helped me find answers to so many unanswered questions about my poor health, when I've reached a dead end with NHS doctors:
Finding practitioners who understand 'functional medicine'. There are two leads that have helped me, one is sourcing a doctor of functional medicine, you can find a registered one here:
These doctors are helpful if you need prescriptions for items that the NHS doesn't routinely prescribe (e.g. NDT, vitamin injections etc). As well as working more holistically and at a more in depth way at finding the 'cause' of your illness. Some of these doctors are also on the TUK's doctors list.
Another method is finding a chiropractor or osteopath who also works in functional biochemistry, you can find one here:
These practitioners can work out cheaper than seeing a functional medicine doctor, though they can't prescribe medicines but they will have training in anatomy, physiology, biochemistry and approach health issues from a more holistic stance e.g. addressing nutrition/biochemistry, structure and emotions. Don't go to an osteopath or chiropractor who's not on this website, because they will most likely only work within the realm of osteopathy or chiropractic and won't address your biochemistry needs.
Because these are private practitioners you will have to pay. Some of their fees are claimable using Personal Health Care Plans e.g. 'Simply Health' or 'Medicash'.
Before I see a new practitioner that I have to pay for, I always find out before making an appointment if my case history is an area they are confident in treating, because you don't want to pay to see someone who isn't able to help you move forwards.
Dr Sarah Myhill's website is full of lots of free information about the areas of thyroid and mitochondrial function, she is also listed on the BSEM website, so you'll get a feel for how the doctors on this website work:
Thank you so so much, this is really helpful! We are on holiday as of today and my wifi is not the best but I'll check out these websites asap. As we are not living in the UK ATM, I might have to wait until we move back; I assume these lists contain UK doctors only. But that's ok, light at the end of the tunnel... May I ask how long it took for you till you started to feel better? Are you feeling totally OK now and are you taking any thyroid replacement hormones? Thanks very much!!
Where are you living? When are you returning to the UK? Because if you think it's worth embarking on some treatment before you return to the UK, I can point you in the direction of some international registers.
My turning point on my own healing journey came when I found out I had 'mitochondrial failure' and this was diagnosed with the ATP Profiles blood test. Interestingly it was also picked up with an osteopath who practices functional biochemistry. Through following a comprehensive nutritional plan I started to improve. I also decided to embark on NDT under the guidance of a doctor of integrated medicine (who's now sadly retired but was on the BSEM & TUK's doctors list) because I wasn't quite there with my health and the NDT helped me improve that much more but I still hadn't quite got there.....
However I have relapsed since having a nasty giardia infection and influenza 18 months ago. I've since found out I have 'increased gut permeability' aka 'leaky gut syndrome', gut infections, food allergies and toxicity from metals and chemicals. So I'm in the process of addressing these presently. Since working on my gut health, I've had signs of improvement again. I'm also waiting for the results of the DIO2 gene test, because I have a history of poor conversion between T4 and T3 thyroid hormones.
I think those patients who get better purely on taking some thyroid hormones are the lucky ones - it makes life so much more simpler if a magic pill can create a return to health. I'm one of those frustrating patients where ill-health seems to be a multi-layered thing. One of those that gets the label 'CFS/ME' but this is just a label and doesn't give any clue to the causes, which I am determined to find. I keep finding answers (which is great), work to correct those, then keep finding more issues! I have been at the end of my tether with it all numerous times but I guess as long as I get answers, I have to be strong and keep ploughing on until I start feeling better again. It has to happen at some point!
Yes, hypothyroidism is so so complex, I've been learning for over 5 years on and off on different websites and fora, but I feel like I still don't know anything!
How did you get heavy metal poisoning? I had all my Mercury filling removed at least a decade ago and avoid deep sea big fish like tuna, Marlin, shark etc. I use deodorant that doesn't contain aluminium. I too had been worried about leaky gut a few years ago but then saw a kinesiologist and was better afterwards.
I admire your tenacity in finding a solution! Sometimes I feel so fed up, I only carry on for my precious little girl whom I adore more than life.
We live in Hungary at the moment and planning to move back to the UK next year. We are currently on holiday in the UK, visiting my in-laws.
I thought I was fairly clued up but I don't know what you mean about mitochondrial failure? Do you mean absorption / conversion?
It would be SOOOOOO amazing to see a doctor that knows more than me about my condition, someone that can actually help me, someone that knows what they are talking about! I'm fed up of arrogant endos and GPs that don't have a clue! Not that I have seen that many but I read about loads...
I think one thing I have going for me is that I e been gluten-free for nearly 20 years and 90% of the time lactose-free too. We cook everything from scratch or we know where it comes from (except the occasional eating out, when I do tell about my dietary requirements (gluten- lactose- grain- and sugar-free).
What I notice is that if I sleep at least 8hrs / night regularly, I exercise ~30 mins / day 5/7 days and COMPLETELY avoid sugar, I'm much, much better, almost normal!! If I eat sugar, I'm in terrible pain for days! I can do less sleep but then after a while I get flabby, and I can go without exercise for about 7 days but then I'm in pain.
With 6-7 hrs sleep, no exercising and eating anything with sugar, I feel like death and the pain is very bad
Hi Amazon07, how frustrating for you. It's good you feel the benefit of exercise. I sometimes do, other times I feel full of lactic acid and exhaustion. It's really hard to gauge at this stage I'm on, what's for the best, because I never know until afterwards and that can be too late if I feel floored as a result!
It sounds like you're doing so much support for your health, you truly deserve to get better with all the hard work you put in.
I had mercury toxicity, I don't have any amalgams but had a couple of little amalgams many years ago these fortunately came out with my baby teeth. My Mum had a mouthful of amalgams and I wonder if I absorbed the mercury from her whilst I was in utero. Mercury is also in vaccinations and I've had some through my life, though not many. I have trouble with BPA (bisphenol A). It's an awful toxic chemical they put in plastic bottles and containers. It's proved hard to shift out of my body and it's come up a number of times over the years with my history of CFS symptoms. It can block mitochondrial function and it has with me. I'm very sensitive to synthetic chemicals and get easily toxic, which then in turn inhibits my mito function. My doctor says that many of the patients he sees are in fact suffering with mitochondrial failure, when the patient thinks they're soley experiencing hypothyroidism. Which probably explains those complex patients like myself who don't get well by just taking thyroid medication.
Here's a link on how to find a doctor of 'functional medicine' worldwide:
Hi Fellow Thyroidies who have replied with not much enthusiasm,
I take on what you say, thank you for sharing your comments. It's always good to get a good rounded view from all angles.
When I see online health summits like these I try to be savvy and ignore any of the marketing aspects and make the most of any free information that's shared and take what I feel would benefit me. There's always emotional aspects to any illness, being chronically ill in itself can create trauma I've personally found.
I shared this post in hope that it may help others. I hope it does on some level - me included. I do understand it isn't for everyone though. I guess it's what strikes a resonance with us personally as an individual on our own personal healing journey.
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I thought for some time that my symptoms are psychosomatic, I can't believe they are exploiting people in pain! 
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