Parathyroid symptoms and tests?

[sallypg]

Does anyone know anything about parathyroid issues? I'm feeling like I have been hit by a truck and my symptoms are similar to what I"ve read about parathyroid. looking for more info.

Thanks

[SlowDragon Administrator]

See parathyroid.com - excellent website written and aimed at us patients (so we can then teach and educate our medics perhaps?)

There is also an app - calciumpro.com - cost about £3.50 to download.

If you have your blood test results (all done on same date) for calcium, vitamin D and parathyroid, just put your data in the app and it works out wether your parathyroid issue is primary, secondary or tertiary.

Clearly explains the different causes of the three and the treatments necessary. According to this site (run by the Norman Parathyroid Centre in Florida) primary Hyperparathyroidism is the most missed diagnosis.

[bantam12 in reply to SlowDragon]

Slowdragon can I just clarify something, although the app may give a rough idea of the problem actually diagnosing the cause is far more complicated, it can take many many months and a lot of tests and scans to make a definite diagnosis, likewise treatment is not always straightforward.

[SlowDragon Administrator in reply to bantam12]

Hi

Yes I realise it's not that "simple"

Actually I have found the other app the Norman centre has made, called "Vitamin D Pro" the more useful for me as my main issue is vitamin D.

This app clearly explains that secondary Hyperparathyroidism can (amongst other things) be due to longstanding low vitamin D/calcium (eg due to undiagnosed gluten/coeliacs).

In my own case I have been stuck for years on propranolol (one of the few drugs that apparently lowers parathyroid hormone), and recently discovered I had low magnesium (due to gluten?) as well. I suspect both these were lowering PTH, but my undiagnosed problem with gluten was causing low calcium/vitamin D, therefore raising PTH. (A right mess, no wonder I felt rubbish)

Going gluten free & taking magnesium supplement I have finally been able to stop taking propranolol. Feeling so much better too.

I never managed to get PTH test done (I gather it is expensive) but I doubt it would have shown a problem anyway.

[bantam12]

Have you had calcium and parathyroid blood tests done ? The symptoms that come with parathyroid disease are very similar to thyroid symptoms so easily confused. If you have results to post either on here or hyperparathyroid.org.uk I might be able to advise.

[sallypg]

Thanks all. No tests done yet. Have to try persuade the doc to do these tests, he is not a very willing character

[bantam12]

What makes you think you have hpth ?

[sallypg]

Dont know if I have it but experiencing symptoms that sound similar. Started about 3 weeks ago and seem to be gettng worse

[bantam12 in reply to sallypg]

Symptoms of hpth are due to hypercalcemia and wouldn't normally happen over a few weeks. As I said thyroid and hpth symptoms are very similar so easily mistaken. Your GP may agree to a calcium and vitd test for starters but PTH isn't usually done unless calcium is high, vitd and phosphate low. When you have those results I suggest you post them on our forum as above where we have info and hpth members to advise.

[sallypg]

Hes only doing calcium for now. Ive been feeling tired for about 4 months but symptoms of body pains and acute dizxiness started roughly a minth ago, along with increased thirst and urination.

[sallypg]

Excuse typos..

[Janicej]

Hi I have had 4 blood test done in succession I have now received a letter from my Consultant for me to have a Parathyroid (PTH) (PTH) done A S A P. I bnhad noticed on the results of my previous blood test 3 Red lines through previous results, I asked the nurse during the last Blood test what was they checking and her reply was Thyroid. Bone! B12 , forgot what else! I do have R A. Osteoporosis in Spine and Osteopins!! In Hips I also have severe Hypertension, high Cholesterol, Osteoarthritis Asthma so pretty FIT!! Dearly!! I only had the letter day after latest Blood test to now go for this Parathyroid (P T H) (P T H) I would like to know if anyone on this Site as any experience of this please.

[ITYFIALMCTT in reply to Janicej]

bantam12 knows a lot about PTH issues and runs a forum on the topic for people in the UK, iirc.

[Janicej]

Hi there I am looking like yourself for some advice, I have many health issues so I have regular Hospital appointments with my R A Consultant, but I have received a letter from my Consultant requesters I go for a Parathyroid (p t h) ( P t h) blood test at the Hospital this is after I have had 3 Blood test one after the other and I noticed there was 3 red lines through my last results, obviously I know there is a problem but just curious if anyone on this site as been through this! I am more curious than concerned, I do have inflammatory R A, Osteoporosis in Spine Osteopins in Hip. Severe Hypertension, high Cholesterol . Asthma and my new Rheumatologist as diagnosed me with Fibromyalgia and I also suffer with Depression!! I was under my last Consultant ,for 7 plus years but he went to another Hospital so anyone with any advice would be most appreciated. P.S. I must say I have only been on this site for a short time but I find it and the people on it to be a great support and a wealth of information so many tks. P.S I have just noticed Sallypg post was a year ago! That's me always LATE!!!