I told a number of people that I'd post after my visit to see Dr Allahabadia. I'm just waiting for my blood tests, after having just come out of his office.
He was very, very good. He listened to all I had to say and recommended many tests I've never had before, including tests for malabsorption, which I've wanted for ages. The upshot of it is that he's willing to prescribe 40 mcgs if Liothyronine for me for the time being and until we have the test results in. It's taken me seven years to get to this point. I'm so relieved I could cry!!
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I too have been referred to Dr Allahabadia and had my first appointment on Saturday just gone - what a relief to speak to someone who seems to actually care and knows what he's talking about. Didn't rush me and was very thorough in the examination and asking my history of thyroid problems.
He sent me for blood tests the same day which, same as you, some I know I have never been tested for before.
I have a follow up appointment this Saturday for the results - sort of hoping there is something picked up in the blood tests (nothing sinister obviously) and that he can help me from there.
What was your outcome? Did he help your problem?
Or has anyone else seen Dr Allahabadia and had positive outcomes please?
Hi just to say I am also under the care of Dr Allahabadia for subacute thyroiditis and he really took the time to listen to me and take my concerns into account. I had been incorrectly prescribed by a non-endo doctor which he corrected and he has been very responsive in my care so far. Fingers crossed it leads to positive outcomes for us
Many thanks for replying (I know it was a while ago that you posted)
I haven't heard of that medication but will research it now. I'm on Levothyroxene (25) and did increase to 50 for a short time but i had very unpleasant side affects from it.
I was on Levo up to doses of 200mcgs a day for quite a few years. It didn’t do a THING to make me feel any better. It just made me feel tired and achy. I put 14 pounds on and lost lots of hair and every joint in my body ached, particularly the soles of my feet.
So I began to self medicate with natural desiccated thyroid. That made me feel better but still not well. So I began self medicating with Liothyronine, sourced from another country. This made me feel much better.
I had a private genetic test done that showed I have a heterozygous (from one parent) DIO2 conversion problem. So I have a reduced ability to convert T4 to T3. Because of this test, my doctor referred me to an endo in Lincoln, who referred me to the one in Sheffield. And he was willing to prescribe me 60mcgs of T3 per day. Although it is recorded in my notes that he has made me aware of the dangers of brittle bones, AF, etc.
200 is a lot!!! Must admit my 25's are a starter dose but I have been kept on this for 2.5 years. Took it upon myself to ask the doctor for an increase to 50 which he agreed.
My brand was changed at the same time and it coincided with the very hot weather we had back in June but the side effects were really horrible, insomnia, hot sweats, very irritable, tearful, over sensitive etc etc.
I reduced back down to 25's and the side effects have decreased/stopped so can only think I am sensitive to Levo increases.
I researched NCD but not sure wether available on NHS??
Weirdly I haven't put on weight at all - if anything I have slightly lost but have had a few stressful months so putting it down to that.
I suppose Saturday I will hopefully get some answers...... maybe I don't convert well either??
He suggested trying 50 one day this week (I am now back to original brand) and see if I feel any different that particular day which I will do midweek.
I'm really pleased you are now well - it really robs you of a life with the symptoms it brings with this disease.
The brand of Levo that I felt the sickest on was Teva. They’ve had loads of recalls in the past so I don’t know if that’s anything to do with it.
I don’t think you’ll have much hope of getting a prescription for NDT. Maybe privately would be a better bet.
I’m 58, almost 59 now, and was first diagnosed with thyroid problems when I was 48. As an avid rock climber and long distance walker, who’s always been as fit as a butcher’s dog, it hit me hard. It’s been a long road to feeling as well as I do now but I’m back to weight training and walking twelve miles at a stretch and still being able to get out of bed next morning.
There is hope and there is wellness.
Part of it is to be found in great forums like this one. X
The Liothyronine brand I do best on is Mercury Pharma. I felt less than well about four months ago and realised I’d been getting Teva Liothyronine. So now my doc has stipulated that I must be given MP all the time.
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