Seeing my endo and I am not convinced t4 only is working..

[VEE71]

Hi I am pretty new to this group an wanted to ask for your views and advise. 

Since I was diagnosed with hypo (3 1/2 years) I never felt OK or returned back to my old self. When I was diagnosed my Tsh was 100 and my T4 was 0.02. I had myxedema and muscle spasms. I gained about 10 kg which never went. I have been prescribed 125 Levo.

Since Feb this year, I have been contacting my endo and finally, after a blood test results I got an appointment for tomorrow. Before I put my test results ( which are basic) my main concern was and I felt like my cells were not absorbing t4/t3...( sorry I am new to this and just learning the technical terms.

From other thyroid groups I read that you are suppose to stop your Levo at least 24 -48 before the blood test. Which I did and surprisingly I still got:

Free T4 14.8 ( 10.30 - 24.50) this is down from 20's.

Free T3. 4.1. (3.50 - 6.50) 

TSH 0.05 ( 0.30 - 5.50). Down from 3. 

Some of the website I am checking referring to too much T4 and possibly going hyper but I do not have any hyper symptoms at all.. Still got the weight, latergy, night swets cloudy head, constipation, ...The only difference has been an increased palpitation, constantly red - blood shot chest and face. 

Any suggestions or ideas before I see my endo?

[Clutter]

Welcome to the forum, VEE71.

Your TSH is low but FT4 and FT3 are also low in range so you are not overmedicated.  A dose increase to raise FT4 and FT3 will suppress TSH but may improve your symptoms.  Read Treatment Options in thyroiduk.org.uk/tuk/about_...

Night sweats can be caused by menopause, B12 or folate deficiency and both can be checked via blood tests.  Trying a 100% gluten-free diet may improve constipation and some people have said it helps with weight loss.

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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[VEE71 in reply to Clutter]

Thank you, have removed gluten from my diet but need to look into it in more detail... I am hoping I am not starting the menapause journey, but I will ask for B12 and folate check today...

[Clutter in reply to VEE71]

VEE71,

I should have said that menopause, B12 and folate can all be checked via blood tests.

[VEE71]

Good afternoon everyone...

Quick update

I went to see my endo today and VERY good news... He agreed to start me on T3. I was originally on 125 mg levothroxine.

I am now on 75/100 Levo alternative days and 10 mg of T3. ( 5 mg morning and night)

Can anyone tell me how soon I should expect to see a difference... 

And I did ask about NDT but he said he is no longer allowed to prescribed but if I do get a result from T3 he said it is the similar outcome.